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Nemours Receives $10,000 Grant from Liams Land

For Help for Children with Vascular Anomalies

Monday, Sep 14, 2015

Nemours Children’s Specialty Care has received a $10,000 grant from Liam’s Land for Lymphatic Malformation Research to develop the Nemours Vascular Anomalies Program (VAP).

When fully funded, the Nemours VAP will be the first center of its kind in Florida, with sites in Jacksonville and Orlando, to offer children with vascular anomalies the ability to see physicians from multiple specialties in a single visit with a family-centered and coordinated approach to their care.

A vascular anomaly is an area where a child’s blood or lymph vessel has grown or connected in an unusual way. Vascular anomalies vary in size and, depending on the type and location, they can be harmless, cosmetically challenging, or potentially life threatening.

Treatment for vascular anomalies is often complex and the families of impacted children often find that the number of appointments, tests, and interventions can be overwhelming. The development of the Nemours VAP will help coordinate care for these unique patients and also ensure that patients receive the most innovative care, as new treatments are constantly being developed.

"Children with vascular anomalies often face a lifetime of challenges and interventions, but we can help them immensely with the creation of this program, which will increase coordination of the best services available," said Janet Steffen, Founder and Executive Director of Liam’s Land.

"We are always looking for ways to improve care and the delivery of that care for patients and their families," said Gary Josephson, MD, Chairman of the Department of Surgery at Nemours Children's Specialty Care. "We want parents to be able to spend time playing with their kids, not worrying about scheduling doctor’s appointments and coordinating procedures. The development of this program will help take the stress off of parents while ensuring that their children receive the best, most comprehensive care."

About Liam’s Land for Lymphatic Malformation Research

Liam’s Land was founded by Janet Steffen after her son, Liam, was born in 2010 with multiple cysts impacting his airway. The mission of Liam’s Land is to advance the research and identify possible causes of lymphatic malformation by supporting a patient registry and funding further genetic testing and clinical trials.

About Nemours

Nemours is an internationally recognized children's health system that owns and operates the Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., and Nemours Children's Hospital in Orlando, along with major pediatric specialty clinics in Delaware, Florida, Pennsylvania and New Jersey.

Established as The Nemours Foundation through the legacy and philanthropy of Alfred I. duPont, Nemours offers pediatric clinical care, research, education, advocacy and prevention programs to all families in the communities it serves.