Cystic Fibrosis Program

The Cystic Fibrosis (CF) Program offers a comprehensive team approach for the treatment and management of children and young adults with cystic fibrosis. This Cystic Fibrosis Foundation-accredited program is a collaborative effort between the Nemours Children’s Clinic in Orlando and the Arnold Palmer Hospital for Children & Women.

The team includes four pediatric pulmonologists, two adult pulmonologists, a cystic fibrosis clinical nurse specialist, a genetic counselor, a gastroenterologist, a nutritionist, a respiratory therapist, a physical therapist, and a social worker. This dedicated team works together to meet the individual needs of each patient and provides patient and family education and support.

Services Available:

• Physical exams and health checks
• Nutritional screening and counseling
• Social work evaluation and support
• Respiratory therapy for airway clearance techniques
• Assessment by a physical therapist
• Referrals to genetic counselors
• Family education day (once a year)
• Educational materials provided during visits
• 24-hour patient coverage
• Pulmonary function testing
• Sweat testing
• Genotyping
• CF Research Program

Typical Diagnoses/Problems:

• Acute and chronic respiratory illnesses
• History of borderline or positive sweat test
• History of poor growth
• Recurrent respiratory infections
• Allergic bronchopulmonary aspergillosis
• Chronic sinusitis or nasal polyps

Additional Resources:

The Cystic Fibrosis Program provides patients and families with a variety of educational pamphlets, videos, and lectures. Patients and their families may also contact the program office with specific questions. The program also sponsors an educational day once a year to teach patients and families about cystic fibrosis and its treatment. To find out the date, time, and location of the Educational Day, please contact the Division of Pulmonology at (407) 650-7270.

The Cystic Fibrosis Foundation's Web site also provides information about cystic fibrosis.