Children with Special Health Care Needs

National Organizations

The National Center for Medical Home Implementation, part of the AAP.  Includes a definition of Children with Special Health Care Needs (CSHCN) and many links to related websites and articles (explore the left and top menu bars).

Health Resources and Services Administration (HRSA) - Maternal and Child Health Bureau - part of the U.S. Department of Health and Human Services - Achieving and Measuring Success: A National Agenda for Children with Special Health Care Needs.

Data Resource Center for Child & Adolescent Health - CSHCN definition, demograhics, survey, and screening.

Mid-Atlantic Organizations

The Health Intervention Program for Families (HIP), Philadelphia Dept of Public Health, within the Division of Maternal, Child and Family Health. Provides home visiting and other support to families with infants and children who have special health care needs.

Easter Seals of Southeastern PA - Easter Seals helps the government and citizens to understand and act on policies, programs, and legislation impacting people with disabilities.

Disability Rights Network of PA - Mission to advance, protect, and advocate for the human, civil, and legal rights of Pennsylvanians with disabilities. 

Florida Organizations

Children’s Medical Services - A collection of family-centered programs designed to help children with a variety of conditions and special needs. 

Florida Healthy Start Coalition  is dedicated to strengthening maternal and child health by ensuring that all Florida families have access to a continuum of affordable and quality health and related services and advocating for public policy initiatives to facilitate those services.

The Arc of Florida works with local, state and national partners and advocates for people with mental retardation, autism, spina bifida, cerebral palsy (CP), prader-willi syndrome and other developmental disabilities to be fully included in all aspects of their community.