Cystic Fibrosis Family Advisory Council

There are two things we know for sure at the Cystic Fibrosis Family Advisory Council: that knowledge is power, and that there is strength in numbers. 

That’s why in September of 2008, a group of parents came together with Kim York, the CF care team social worker at the Alfred I. duPont Hospital for Children, with one goal in mind:  to improve the quality of clinical and psychological care of children living with CF.  As such, we became the only group of families working with the hospital on behalf of kids with a common disease or condition.

Currently, we’re hard at work on a variety of issues affecting in- and outpatient care, as well as insurance issues. But there’s so much more to be done.

So if you’re the parent of a child or teen with CF and are interested in joining this motivated, energetic, and optimistic team, please contact us. And even if you aren’t able to join us right now, please know that we still want to hear from you about the issues you care most about and would like to see addressed.