Arthrogryposis is a condition of the joints and muscles that impairs children’s abilities to use their shoulders, wrists, fingers and lower extremities. From the early evaluation stages to creating a long-term treatment plan, Nemours’ world-renowned orthopedics experts will work closely with your family to determine the best arthrogryposis treatment for your child.
Arthrogryposis refers to a broad group of disorders that result in stiffness or loss of motion of multiple joints. There are many variations of this disease, some mild and some severe. In mild cases, only a few joints may be affected and the child may have nearly full range of motion. In extreme cases, nearly every joint is impacted, including those of the jaw and back.
For most types of arthrogryposis, we don’t fully understand why children have the condition. Some forms of arthrogryposis are the result of disorders of the nerves or muscles. Arthrogryposis can also be part of other medical conditions or syndromes.
Most forms of arthrogryposis cannot be cured. However, splinting, bracing, occupational and physical therapy, and orthopedic surgery are all treatments for arthrogryposis that can help to maintain and maximize a child’s range of motion and function.
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- photo ID
- medical and pharmacy insurance cards
- preferred pharmacy name and phone number
- names and dosage of all medications, including over-the-counter medication, your child is currently taking
- guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
Support Services & Information
- Ronald McDonald House of Delaware: a safe, free, family-centered home away from home when your child is sick and needs to be hospitalized
At Nemours/Alfred I. duPont Hospital for Children, named one of the best children’s hospitals in the country for Orthopedics by U.S. News & World Report, we provide comprehensive, personalized arthrogryposis treatment.
At Nemours, we treat the whole child, not just the condition. The compassionate expertise of our doctors at our Arthrogryposis Clinic — coupled with our child-centered, family-oriented atmosphere — helps to minimize the stress families and patients often experience throughout the evaluation, treatment and rehabilitation process.
Working Together to Provide Personalized Arthrogryposis Treatment and Care
To provide comprehensive and personalized arthrogryposis treatment, we work closely with our experts in:
- radiology (Medical Imaging)
- physical Therapy
- occupational therapy
Our arthrogryposis treatment services include:
- clinical evaluation
- diagnostic testing
- genetic consultation, as necessary
- muscle biopsy
- surgical intervention
- therapeutic and rehabilitation services
- home exercise program development
- aquatic therapy
- assistive technologies, including the Wilmington Robotic EXoskeleton (WREX)
Whatever kind of arthrogryposis your child has, know that at Nemours we do whatever it takes to give your child the very best, most compassionate treatment possible. We treat every child as we would our own — your child, our promise.