CareTalk: Blog for Cancer and Blood Disorders
Get insights and inspiration from Nemours’ experts in Hematology/Oncology.
At Nemours, we promise to do whatever it takes to treat children as we would our own. When your child comes to Nemours, we know you’re placing your trust in us. This trust and our dedication to improving the health of your child is what inspires us to provide exceptional care and the most satisfying experience possible.
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As a children’s health system, we take great pride in research at Nemours so that we can better serve children with cancer and blood and bone disorders today and in the future.
The mission of our pediatric cancer specialists and scientists at the Nemours Center for Cancer and Blood Disorders (NCCBD) is to build one of the nation’s top childhood cancer research centers — developing strategies to improve prevention, screening, diagnosis, and treatment of childhood cancers.
Our overarching goal of the Nemours Center for Childhood Cancer Research is to achieve a 100% cure rate of childhood cancers — and with minimal side effects. We aim to do “whatever it takes” to support research into finding new and better treatment options. This center is a place where scientists, doctors, patients, families, and the community can come together to improve children’s health.
Our expansive team of doctors and scientists, from throughout all of Nemours’ locations (Delaware Valley and Florida), work together to make a difference in childhood cancer and diagnosis. Through our shared goal of discovering new ways to improve the lives and futures of children with cancer and blood and bone diseases, we’re dedicated to bringing new discoveries from the laboratory to the patient’s bedside.
Nemours is proud to be part of a groundbreaking collaboration called the Delaware Health Sciences Alliance (DHSA). This collaboration allows our researchers and staff to use the vast resources at both Thomas Jefferson University in Pennsylvania and the University of Delaware. Through this alliance, our:
In Florida, our Nemours experts collaborate with many renowned institutions and medical school faculties to enhance our research efforts with childhood cancer studies and develop new brain tumor treatment. Some of our partnerships in pediatric cancer research include:
Our pediatric oncology specialists and researchers from throughout each of Nemours’ locations (Delaware Valley and Florida) work with other researchers and scientists to make important and promising discoveries to improve the lives of children with cancer and blood disorders. Also, many of our specialists participate with studies and clinical trials run through the Children’s Oncology Group (COG) – a worldwide group of children’s cancer specialists and institutions.
COG conducts research to identify cancer causes and pioneer state-of-the-art treatments and cures for childhood cancer. Our participation in COG allows us to offer the best cancer care available. So that means your child will receive treatments proven to be the most effective – and you’ll have access to clinical trials of promising new therapies that aim to reduce side effects and improve kids’ quality of life.
Within the past five years, our pediatric oncology specialists have enrolled more than 350 children in oncology treatment studies, focusing on improving outcomes so that more children can live longer. A clinical trial is a study that evaluates new medicines, new devices, new treatments, or new applications for old treatments.
Our team members literally have at their fingertips a powerful resource tool called NemoursOne, which electronically connects our services and programs across all Nemours sites and contains a database of all patient medical records. The system also houses all of our research protocols, applications, letters, and communications with investigators.
NemoursOne allow clinicians to communicate in real time and view clinical notes, test results, and lab reports simultaneously. Our investigators in the Nemours Center for Childhood Cancer Research mine the wealth of valuable clinical data contained in NemoursOne to support their research projects.
Clinical trials are safe and supervised by a qualified physician, under strict guidance from the Food and Drug Administration (FDA). Patient safety is extremely important to the FDA, to those conducting the studies, and to everyone at Nemours.
In a clinical trial, children participating in the study are monitored closely. Families may refuse any aspect of the study treatment or completely discontinue their child’s participation in the clinical trial at any time.
Also, as part of our commitment to protect the safety and special interests of your child, all research, experimental drugs, and devices involving children, must follow the strict guidelines of the Institutional Review Board (IRB) — established under the National Research Act of 1974, and other laws and regulations — for the protection of human subjects.