Nemours’ Cystic Fibrosis (CF) teams teach children and their families about CF and how to manage the condition on a daily basis. Nemours’ CF programs are nationally accredited as CF Care Centers by the Cystic Fibrosis Foundation. Membership in this network helps us to ensure that children living with Cystic Fibrosis get the expert treatment they need to live longer, healthier lives.
Cystic Fibrosis (CF) is an inherited disease that affects the lungs and digestive system. It makes kids who have it more vulnerable to repeated lung infections. This is because it causes the lungs to produce thick, sticky mucus that clogs the airways. The intestines are also affected in a way that interferes with the body’s ability to digest and absorb food.
Our team of health care providers works together to support children and their families, teaching them about Cystic Fibrosis treatment and how to manage the condition on a daily basis. We focus on meeting the needs of each of our patients from birth to age 18.
- newborn screening
- diagnostic testing, the gold standard of which is a sweat test performed in one of our state-of-the-art laboratories
- Cystic Fibrosis treatment for newly diagnosed infants and children
- long-term care plans
- assistance with transitioning our teenage patients to adult CF programs