Hepatology (Liver Care)

A patient with pediatric liver disease gets a check-up.

A child may be born with a liver condition or acquire one through disease or infection. Our staff hepatologist (liver care specialist) evaluates and treats a wide range of pediatric liver diseases, and also provides pre- and post-transplant care.

 
Learn More About Pediatric Liver Disease
Some of the pediatric liver conditions we evaluate, manage, and treat include:
  • biliary atresia: a blockage in the tube that carries bile from the liver and the gallbladder to the intestine
  • jaundice: a yellowing of the skin and whites of the eyes caused by the liver’s inability to excrete or to get rid of bilirubin, a byproduct of the normal breakdown of red blood cells
  • acute or chronic viral hepatitis: including hepatitis A, hepatitis B,
    and hepatitis C
  • enlarged liver or spleen
  • alpha-1-antitrypsin deficiency: a genetic disorder that causes liver and lung disease
  • liver disease occurring in children with cystic fibrosis
  • metabolic liver disease: disease caused by a problem with the body’s enzymes
  • Alagille syndrome: a genetic disorder that affects the liver, heart, and other body systems
  • Wilson disease: a genetic disorder in which excessive amounts of copper accumulate in the body, affecting many organs such as the liver, the kidneys, and the brain
  • acute liver failure in which the liver fails to work and children develop symptoms such as jaundice, confusion, coma, kidney failure, bleeding that show up over a short span of time and may be due to medication overdose, poisoning, infection, or disease
  • autoimmune hepatitis: when a child’s immune system mistakenly attacks the liver
  • primary sclerosing cholangitis: inflammation of the bile ducts
  • NAFLD and NASH: which is non-alcholic fatty liver disease and non-alcoholic steatohepatitis, which is fatty liver with or without inflammation and damage not due to alcoholism respectively which often occurs in children who are overweight or obese
  • liver disorders related to gastrointestinal disease
  • enzyme deficiency
  • liver tumors and cancers: we work in conjunction with the cancer doctors

Nemours Children's Hospital, Orlando


13535 Nemours Parkway
Orlando, FL 32827
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Clinic Location: 2nd Floor

For Appointments: (407) 650-7715

General Information: (407) 650-7617 | Fax: (407) 650-7256

 
What to Bring
  • photo ID
  • medical and pharmacy insurance cards
  • preferred pharmacy name and phone number
  • names and dosage of all medications, including over-the-counter medication, your child is currently taking
  • guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
 
Helpful Resources
Resources for Patients & Families

Hepatology (liver care) is part of the Division of Gastroenterology, Hepatology, and Nutrition at Nemours Children’s Hospital. We have a board-certified pediatric hepatologist (liver specialist) on staff to work with children who have liver disease.

One of our first priorities is to make sure your child feels comfortableWe also want you to know that you will be listened to and heard by our entire team. Family-centered care is at the heart of everything we do and you can rest assured that you will have a voice in your child’s care and treatment.

Taking a Team Approach to Your Child's Care

Using a multidisciplinary approach to liver disease in children, our pediatric hepatologist works alongside other pediatric specialists right here at the hospital to provide comprehensive diagnostic testing and treatment for your child.

We hold specialized clinics for children with various forms of liver disease where they can receive convenient, coordinated care. Our team includes:

  • nurse practitioners
  • licensed clinical social workers
  • registered dietitians
  • pediatric psychologists
  • pain management specialists
  • registered nurses
  • medical and executive assistants
 
Types of Liver Conditions We Treat

Working as a team, we offer compassionate care for children with a wide variety of liver issues including conditions such as:

  • acute, chronic, and autoimmune hepatitis
  • biliary atresia
  • jaundice
  • liver tumors and cancers including hepatoblastoma and
    hepatocellular carcinoma
  • Alagille’s syndrome
  • Alpha-1-antitrypsin deficiency
  • gallstone, gallbladder and other biliary tract disease
  • glycogen and other storage diseases
  • hemochromatosis (iron storage disease)
  • neonatal cholestasis and neonatal hepatitis
  • obesity-related liver diseases, including “NASH”
  • primary sclerosing cholangitis
  • progressive familial intrahepatic cholestasis (PFIC)
  • TPN liver disease (a disease related to long term intravenous nutrition)
  • urea cycle disorders
  • Wilson’s disease
 
What to Expect on Your Child’s First Visit

Your child’s initial visit with us will include a thorough physical exam, medical and family history, and questions about the frequency and severity of your child’s symptoms. We always ask “What are your concerns?” as you are the expert on your child.

Based on our findings, we may then perform further tests that day:
  • blood and urine tests
  • specialized ultrasound, MRI, or X-ray testing
Or we may plan specific procedures:
  • liver biopsy

We strive to alleviate your child’s symptoms as quickly as possible and, when necessary, to provide an ongoing management plan to maintain your child’s health. We may prescribe specific medications to treat your child and provide detailed education on how to care for them.

 
Advanced Pediatric Medical Imaging Services Available Onsite

If your child needs medical imaging, we offer some of the area's most advanced pediatric radiology services here on campus at Nemours Children's Hospital, including:

  • Interventional radiology: Our team of experts uses image-guidance to diagnose and treat diseases and tumors throughout the body. Certain conditions that previously required open surgery can now be treated by Nemours pediatric interventional radiologists. We are very fortunate to have the only dual-trained pediatric diagnostic and interventional radiologist in the state.
  • Abdominal and Pelvic MRI (Magnetic Resonance Imaging): Our subspecialty-trained pediatric radiologists use this highly specialized imaging for children with complex conditions.

Our team of board-certified pediatric radiologists and pediatric radiologic technologists are experts in the safe medical imaging of children of every age, even newborns. We have also pledged our commitment to the "Image Gently" campaign of the Alliance for Radiation Safety in Pediatric Imaging, which is increasing awareness of the opportunities to promote radiation protection in the imaging of children.

Learn More About Medical Imaging at Nemours Children's Hospital »

 
Committed to Pediatric Liver Disease Research

Nemours Children’s Hospital is an academic institution as well as a pediatric medical facility. This means that pediatric research is a priority for us. In fact, the opportunity to pursue safer, better ways to treat children has attracted some of the finest pediatric specialists in the country to our hospital.

Our nationally and internationally recognized physician researchers will continue to improve the knowledge, research, and outcomes for pediatric liver disease. They will also be teaching and mentoring the next generation of pediatric specialists in this area.


A Hospital Designed by Families, for Families

At Nemours Children’s Hospital, family-centered care is at the heart of everything we do. In fact, families helped shape the unique amenities and convenient services that make our hospital like no other in the region.

 
If Your Child Needs to Stay Overnight in Our Hospital

You’ll feel right at home in one of our private patient rooms designed with input from families who know what it’s like to have a child in the hospital.

Our large, comfortable, single-patient rooms have sleeping accommodations for two parents, a private bathroom, wireless internet access, connections for DVD players and game systems, and two flat-screen TVs.

Other in-room features include:
  • full floor-to-ceiling windows for natural light
  • refrigerator for family meals and snacks
  • wardrobe storage for personal items and a hotel-style safe
  • GetWellNetwork interactive television is uniquely based on your child’s age, medical condition and more, and allows your child to watch TV, surf the web, check e-mail, play music and games, and learn about your Nemours health care team

Our “hospital within a garden” setting features many places for you and your family to go for fresh air and relaxation, including a one-acre interactive sensory discovery garden or one of our rooftop gardens on the second and fourth floors.

We have many more comforts and amenities, like:
  • complimentary valet and parking
  • kid-friendly commons areas for siblings
  • café coffee shop
  • non-denominational chapel
  • concierge services

Learn More About Nemours Children’s Hospital »

 
With Your Family From Clinic or Hospital to Home: KidsTRACK

If your child has a complex or chronic condition we encourage you to take advantage of KidsTRACK, a unique service of Nemours Children’s Hospital. Located on the 1st floor of our hospital, KidsTRACK is designed to help families by providing expert assistance and information on all aspects of your child’s care, even before you leave our hospital or clinic.

A KidsTRACK care coordinator is available during every step of diagnosis, treatment, and healing — helping your family make a smooth transition from Nemours Children's Hospital to home. Your coordinator works alongside the nursing/case managers in our subspecialty areas and acts as a single point of contact connecting you to medical and community resources.

Simply ask your physician for a referral to KidsTRACK
or call (407) 650-7715.

Learn More About KidsTRACK at Nemours Children's Hospital »