CareTalk: Blog for Cancer and Blood Disorders
Get insights and inspiration from Nemours’ experts in Hematology/Oncology.
As a parent, hearing your child has sickle cell disease can be overwhelming. But with early diagnosis, progressive treatment, and regular follow-up care, Nemours' board-certified pediatric hematologists — doctors who treat blood disorders — can help your child manage sickle cell anemia symptoms and live an active and productive life.
Sickle cell disease or sickle cell anemia is a genetically inherited blood disorder, detected through a blood test. The disease is passed down from both parents who carry an altered hemoglobin gene, which causes their red blood cells to take on an abnormal (sickle) shape rather than the normal, smooth disc shape.
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It’s reassuring to know that when your child has been diagnosed with sickle cell disease and needs follow-up care or other services, that help is close by at Nemours duPont Pediatrics, Egg Harbor.
At Nemours, our goal is to provide an extension of our quality, family-centered care close to your home. One of our board-certified pediatric hematologists — doctors who treat blood disorders in children —with a member of our sickle cell disease program at Nemours/Alfred I. duPont Hospital for Children in Wilmington, is available to see your child for routine clinic visits, basic lab work, and help managing sickle cell anemia symptoms.
If your child needs comprehensive sickle cell anemia treatment and care, our experienced specialists at the Nemours Center for Cancer and Blood Disorders (NCCBD), located at Nemours/ duPont Hospital for Children in Wilmington, will care for your child with all the latest advancements and treatments.
This new Center not only combines all of our services and treatments for children with cancer or blood disorders, but allows our experts to collaborate and share important research with other experts from throughout all Nemours locations.
Sickle cell disease is a genetically inherited blood disorder that occurs when a child inherits an altered hemoglobin gene from both parents which causes their red blood cells to take on an abnormal (sickle) shape rather than the normal, smooth disc shape. These abnormally shaped cells clog small blood vessels in your child’s body, impairing blood flow and resulting in pain and organ damage.
Delaware, like most states, requires newborn screening — a simple blood test — for sickle cell disease. If your child’s screening test suggests a diagnosis of sickle cell, our pediatric hematology specialists in our Sickle Cell Program, will begin the process of caring for your child.