Cystic Fibrosis
A service of the Division of Pulmonary Medicine, the Cystic Fibrosis Program is accredited by the Cystic Fibrosis Foundation and offers a comprehensive team approach for the treatment and management of children and young adults with cystic fibrosis. The team includes two pediatric pulmonologists, a cystic fibrosis clinical nurse specialist, a genetic counselor, a nutritionist, a respiratory therapist, and a social worker. The dedicated team works together to meet the individual needs of each child and provide patient and family education and support. The Cystic Fibrosis Program meets each Wednesday afternoon.
The program team recognizes the importance of the parents role in the care and healing process of the child: the team strives to involve the parent in every step of the childs treatment. Physicians in the program are specially trained and are experts in cystic fibrosis.
Services Available:
- Physical exams/health checks
- Nutritional screening and counseling
- Social work evaluation and support
- Respiratory therapy
- Assessment by a respiratory therapist, physician, or advanced practice nurse
- Referrals to genetic counselors
- Family education day (once a year)
- Educational materials provided during visits
- 24-hour patient coverage
- Pulmonary function testing
Typical Diagnoses/Problems:
- Cystic fibrosis
- History of positive sweat tests
Additional Resources:
Nemours is committed to keeping children and parents informed of the latest medical information. The division provides a wide variety of pamphlets, articles, and videos to assist parents in learning more about their childs condition and treatment. Nemours also suggests the following sources and organizations where parents can obtain additional information:
- American Lung Association
- American Medical Association
- Cystic Fibrosis Foundation
- Healthfinder
- March of Dimes
- Mayo Clinic Health Oasis
- National Library of Medicine
- Quackwatch
- U.S. Centers for Disease Control and Prevention
- USDA for Kids
- U.S. Food and Drug Administration
- Your Child's Anesthesia
