Primordial Registry


Clinical Trial

Offered by: Nemours
Location: Delaware Valley

What is the trial about?

The goal of this registry is to collect information on individuals with Microcephalic Osteodysplastic Primordial Dwarfism Type II (also called MOPDII) and other forms of microcephalic primordial dwarfism.

Who can participate?

Individuals with MOPDII, MOPDI/III, Meier-Gorlin syndrome, and unclassified or closely related forms of microcephalic primordial dwarfism as diagnosed by a physician are eligible for this registry.

What is involved?

This study involves only the collection and storage of data extracted from the medical record. There are no special procedures, visits, or expectations of you as a result of participation in this registry. You will not be asked to have any specific testing for the sole purposes of research. 

Contact Nemours Clinical Trials

Trial Name: Primordial Registry at Nemours/Alfred I. duPont Hospital for Children

Contact Information

(800) 354-5690
clinicaltrials@nemours.org