Heterotaxy Syndrome

Heterotaxy syndrome is a rare, congenital (present at birth) condition, where a baby’s developing body has a problem determining the left and right sides. Heterotaxy translates to “different arrangement.” This causes problems where the baby’s liver may go across both sides of the abdomen and the spleen may be missing altogether. It also means the structure of the heart, lungs and blood vessels can be in the wrong place. Since heterotaxy syndrome happens while a baby is growing in the womb, it’s often diagnosed during prenatal tests.

At Nemours Children's, we offer leading-edge capabilities to detect problems early, including babies still in the womb. If your baby is diagnosed with heterotaxy syndrome, you can trust the pediatric heart care in our Nemours Cardiac Center. Our board-certified, fellowship-trained pediatric cardiologists are here to answer your questions, address your concerns and offer treatment options.

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Heterotaxy Syndrome

Heterotaxy syndrome is a rare, congenital (present at birth) condition, where a baby’s developing body has a problem determining the left and right sides. Heterotaxy translates to “different arrangement.” This causes problems where the baby’s liver may go across both sides of the abdomen and the spleen may be missing altogether. It also means the structure of the heart, lungs and blood vessels can be in the wrong place. Since heterotaxy syndrome happens while a baby is growing in the womb, it’s often diagnosed during prenatal tests.

At Nemours Children's, we offer leading-edge capabilities to detect problems early, including babies still in the womb. If your baby is diagnosed with heterotaxy syndrome, you can trust the pediatric heart care in our Nemours Cardiac Center. Our board-certified, fellowship-trained pediatric cardiologists are here to answer your questions, address your concerns and offer treatment options.

Contact Us
Heterotaxy Syndrome

Why Choose Us

World-class heart care requires the compassion to understand your family's journey, and the expertise to heal even the most complex conditions. Our cardiac surgeons treat a vast array of heart defects in infants, children and teens, using the most innovative, up-to-date approaches. Our specialty is the early detection and repair of heart problems. Our heart care specialists have been recognized for their commitment to delivering top-notch, compassionate care to children with congenital heart disease. We work closely with your family to help your child live their life to the fullest.

Regional Care Highlights

Delaware Valley Highlights

Delaware/Greater Philadelphia

We offer care for newborns and children with heterotaxy syndrome at Nemours Children’s Hospital, Delaware (Wilmington, Del.) and select Nemours locations.

The Nemours Cardiac Center at Nemours Children’s Hospital, Delaware offers a complete range of pediatric cardiology and heart surgery services. 

Florida Highlights

Central Florida

We offer care for newborns and children with heterotaxy syndrome at Nemours Children’s Hospital, Florida in Orlando and select Nemours locations.  

Our renowned pediatric cardiology and cardiothoracic surgery team at the Nemours Cardiac Center in Central Florida offers inpatient, critical and surgical care at Nemours Children’s Hospital in Orlando — including dedicated cardiac anesthesiologists and state-of-the-art cardiac intensive care unit (CICU). 

Northwest Florida

We offer heterotaxy syndrome care at Nemours Children’s Health, Pensacola and our hospital affiliate, West Florida Healthcare, with outpatient and follow-up appointments also available at select Nemours locations.

Our Nemours Cardiac Center in Pensacola is home to one of the few accredited pediatric transthoracic and fetal echocardiography labs in Florida and, if needed, can facilitate the transfer of extremely ill children between our Nemours Cardiac Center locations (e.g., to Nemours Children’s Hospital, Florida).  

Find Care at Nemours

We have many pediatric specialists and locations — find the care closest to you: