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Bone Tumors

Nemours Center for Cancer and Blood Disorders in the Delaware Valley and Florida

Locations & Doctors Who Treat Bone Tumors

 
Delaware

Wilmington

Nemours/Alfred I. duPont Hospital for Children

1600 Rockland Road
Wilmington, DE 19803
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For Appointments: (800) 416-4441

Doctors Who Treat Bone Tumors at This Location

 
New Jersey

Voorhees

Nemours duPont Pediatrics, Voorhees

443 Laurel Oak Road
Therapy Services (Suite 200)
Pediatric Specialty Services (Suite 230)
Voorhees, NJ 08043
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For Appointments: (800) 416-4441

Hours: Fourth Friday each month; 9 a.m. to 4 p.m.
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Doctors Who Treat Bone Tumors at This Location

 
Pennsylvania

Philadelphia

Nemours duPont Pediatrics, Philadelphia

833 Chestnut St. E., Suite 300
Philadelphia, PA 19107
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For Appointments: (800) 416-4441

Hours: Monday–Friday: 8 a.m. to 5 p.m.
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Doctors Who Treat Bone Tumors at This Location

To find out which providers serve this location, please call the main number above.

Lancaster

Nemours duPont Pediatrics, Lancaster

2128 Embassy Drive, Suite A
Lancaster, PA 17603
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For Appointments: (800) 416-4441

Hours: Hours vary; please call
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Doctors Who Treat Bone Tumors at This Location

 
Florida

Orlando

Nemours Children's Hospital, Orlando

13535 Nemours Parkway
Orlando, FL 32827
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For Appointments: (407) 650-7715

Doctors Who Treat Bone Tumors at This Location


Nemours Children's Specialty Care, Orlando

1717 S. Orange Ave.
Orlando, FL 32806
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For Appointments: (407) 650-7715

Hours: Monday–Friday, 8 a.m. to 5 p.m.
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Doctors Who Treat Bone Tumors at This Location


Melbourne

Nemours Children's Specialty Care, Melbourne

1270 N. Wickham Road
Melbourne, FL 32935
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For Appointments: (407) 650-7715

Hours: Monday–Friday: 8 a.m. to 5 p.m.
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Doctors Who Treat Bone Tumors at This Location

To find out which providers serve this location, please call the main number above.

Jacksonville

Nemours Children's Specialty Care, Jacksonville

807 Children’s Way
Jacksonville, FL 32207
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For Appointments: (904) 697-3789

Hours: Monday–Friday, 8 a.m. to 5 p.m.
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Doctors Who Treat Bone Tumors at This Location


Pensacola

Nemours Children's Specialty Care, Pensacola

5153 N. Ninth Ave.
Pensacola, FL 32504
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For Appointments: (850) 505-4790

Hours: Monday–Friday, 8 a.m. to 5 p.m. (Central Time)
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Doctors Who Treat Bone Tumors at This Location

About Bone Tumors

Bone tumors can occur in children and adolescents. They may be benign (noncancerous) or malignant (cancerous), though benign tumors are more common. While both may grow and affect healthy bone tissue, benign bone tumors in children do not spread to other parts of the body and are rarely life-threatening.

Pediatric bone tumors may present as primary bone cancer or cancer that has metastasized (or spread) to the bone from another part of the body. Primary bone cancer is rare, with approximately 2,500 new cases diagnosed among adults and children in the United States each year.

Nemours' orthopedists (bone specialists) and orthopedic surgeons make our pediatric orthopedics programs among largest and most widely respected in the United States — and across the globe. Along with our renowned oncologists (cancer doctors), hematologists (blood specialists) and researchers from the Nemours Center for Cancer and Blood Disorders (a Children’s Oncology Group member institution), we rank among the very best in the country for both pediatric orthopedics and cancer care (U.S. News & World Report named Nemours/Alfred I. duPont Hospital for Children one of the “Best Hospitals”). Our combined expertise allows us to diagnose and treat common, rare and complex bone tumors in children — both malignant and benign.


Types of Childhood Bone Tumors We Treat

 
Malignant Childhood Bone Tumors
Osteosarcoma (Osteogenic Sarcoma) 

Osteosarcoma represents 5 percent of childhood cancers and is the most common bone tissue malignancy in children, teens and young adults. Osteosarcoma usually develops in the growing ends of the long bones in the legs and arms, and is most commonly found around the knee, the upper part of the shinbone, or upper arm bone close to the shoulder (but can also develop in the jaw, hips and shoulder). 

Osteosarcomas can be caused by genetic changes (inherited or acquired), certain bone diseases and past radiation therapy. They are classified as high grade, intermediate grade or low grade, which tells us how fast the tumor will grow and the chances it may spread to other parts of the body. We use this information to stage the tumor and plan the best course for treatment.

Ewing Sarcoma Family of Tumors

Ewing sarcoma is a group of primary cancers that mainly form in the bones or in the soft tissue around the bones. Types of Ewing sarcoma tumors include:

  • Ewing tumors (commonly found long bones of the legs and arms, ribs and pelvis)
  • primitive neuroectodermal tumors, or “PNET” (often grows in the brain)
  • Askin tumors (commonly found in the chest wall)

Ewing sarcoma is very rare, accounting for only 1 percent of childhood cancers. It’s diagnosed in children of all ages, but most often in late adolescence or young adulthood because symptoms go unnoticed and are usually attributed to growing pains or common sports injuries or bruises. 

 
Benign Childhood Bone Tumors
Types of Benign Bone Tumors and Cysts 
  • bone cysts (including unicameral and aneurismal cysts)
  • cartilage tumors (such as osteochondromas, endochondromas and chondroblastomas)
  • nonossifying fibromas (also called “fibroxanthomas,” usually found in the thighbone)
  • polyostotic fibrous dysplasia (McCune-Albright syndrome)

Diagnosing Bone Tumors in Children

Signs & Symptoms of Bone Tumors

Some symptoms of childhood bone tumors include swelling and soreness around the tumor site, pain that worsens with exercise and/or at night and low-grade fever. Malignant bone tumors can spread through the blood to other parts of the body.


Testing & Evaluations

If your child has a possible bone tumor, Nemours’ experienced cancer care team works together to appropriately diagnose and stage the disease through a variety of tests and procedures, including:

  • thorough physical examination and medical history
  • blood tests 
  • medical imaging (X-ray, MRI, PET scan, MIBG scan, bone scan)
  • diagnostic biopsy (via surgery or minimally invasive interventional radiology)
  • bone marrow biopsy and aspiration (biopsy of the solid and liquid parts of bone marrow)

Treating & Caring for Children With Bone Tumors

Your Child's Comprehensive Bone Tumors Care Team

If we discover a bone tumor, our multidisciplinary (collaborative) team plans the most effective treatment personalized to your child’s needs. 

In addition to an experienced, compassionate cancer coordinator (a nurse who provides your child and family support, education and care coordination), Nemours’ pediatric bone tumor cancer teams include: 

  • oncologists (cancer specialists)
  • surgeons (general and orthopedic surgeons)
  • orthopedists (bone specialists)
  • orthopedic oncologists (orthopedic cancer specialists)
  • pathologists (diagnose diseases by examining body tissues, fluids and organs)
  • geneticists (perform genetic counseling and testing)
  • radiologists (diagnose diseases through medical imaging)
  • radiation oncologists (specialists in radiation therapy treatment)
  • interventional radiologists (perform image-guided minimally invasive procedures)
  • behavioral health specialists (psychologists and psychiatrists)
  • registered dietitians (nutrition specialists)
  • oncology nurses (registered nurses specializing in cancer)  

Your care team is here to provide your family with ongoing support and follow-up. We always include you in the entire process, because we truly believe in the healing power of families and that you know your child best.

Learn More About Nemours’ Pediatric Cancer Care Teams in Your Area »


Innovative Childhood Bone Tumors Treatment at Nemours

Treating bone tumors in children depends on age, tumor type and size, and location. Until fairly recently, amputation was the only option for malignant pediatric bone tumors affecting the limbs. But in many cases, specialized surgical techniques and advances in research allow us to save a child’s limbs, often using growing metal prostheses to replace the cancer-affected bone. 

Nemours offers advanced and innovative childhood cancer treatments and approaches (called “modalities”) not available at other children’s hospitals.

We may use one or a combination of modalities that include:
For your child’s overall health and wellness, we also prescribe:

Limb-Sparing Procedures

Our orthopedic surgeons are experienced in limb-sparing procedures that effectively remove even the most difficult tumors.

They also provide the following services:
  • reconstruction (replacing tissue and using a prosthetic — an artificial extension that replaces a missing body part, such as an arm or a leg)
  • prosthetic fabrication and fitting (provided on-site for children who need amputation)
  • rehabilitation after limb-sparing surgery and amputation

Learn More About Pediatric Cancer Treatment at Nemours »

Additional Resources & Support for Families

 
Nemours Support Services

We know that dealing with childhood cancer is difficult for your child and family. But you don’t have to go through it alone. At the Nemours Center for Cancer and Blood Disorders, we provide an array of support services that begin on the very first day we meet and continue throughout your journey — because at Nemours, your child and family become our own.

Our services include: 
  • patient and family education
  • social work
  • mental health counseling
  • Child Life services
  • survivorship programs
  • support groups
 
Trusted National Bone Cancer Organizations Websites

American Childhood Cancer Organization — Bone Cancer: This site provides a wealth of information and support resources for children and teens with cancer. 

National Cancer Institute — Bone Cancer: This website offers information about bone cancer treatments, drugs, clinical trials and publications from the National Institute of Health.

 
Blood & Bone Marrow Resources

Blood & Marrow Transplant Information Network: BMTinfonet.org provides information and support for patients and families before, during and after transplant.

The Bone Marrow Foundation: They offer information on financial assistance and resources to bone marrow/stem cell transplant patients and their families. 

Center for International Blood & Marrow Transplant Research (CIBMTR): The center disseminates information on blood and marrow transplant research.

National Marrow Donor Program: The site contains info about marrow and cord blood donation and transplantation.

National Bone Marrow Transplant Link: The organization helps patients, caregivers and families cope with the social and emotional challenges of bone marrow/stem cell transplantation, from diagnosis through survivorship. They provide information and personalized support services.

Appointments & Referrals

Delaware, Pennsylvania & New Jersey

(800) 416-4441


Florida
Jacksonville Area

(904) 697-3789

Orlando Area

(407) 650-7715

Pensacola Area

(850) 505-4790

Learn About Our Locations »


International
Patients

+1 (302) 651-4993

Our Goal: A Better Tomorrow

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