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Hemophilia

Nemours Center for Cancer and Blood Disorders in the Delaware Valley and Florida

Locations & Doctors Who Treat Hemophilia

 
Delaware

Wilmington

Nemours/Alfred I. duPont Hospital for Children

1600 Rockland Road
Wilmington, DE 19803
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For Appointments: (800) 416-4441

Doctors Who Treat Hemophilia at This Location

 
New Jersey

Voorhees

Nemours duPont Pediatrics, Voorhees

443 Laurel Oak Road
Therapy Services (Suite 200)
Pediatric Specialty Services (Suite 230)
Voorhees, NJ 08043
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For Appointments: (800) 416-4441

Hours: Fourth Friday each month; 9 a.m. to 4 p.m.
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Doctors Who Treat Hemophilia at This Location

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Pennsylvania

Philadelphia

Nemours duPont Pediatrics, Philadelphia

833 Chestnut St. E., Suite 300
Philadelphia, PA 19107
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For Appointments: (800) 416-4441

Hours: Monday–Friday: 8 a.m. to 5 p.m.
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Doctors Who Treat Hemophilia at This Location


Lancaster

Nemours duPont Pediatrics, Lancaster

2128 Embassy Drive, Suite A
Lancaster, PA 17603
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For Appointments: (800) 416-4441

Hours: Hours vary; please call
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Doctors Who Treat Hemophilia at This Location

 
Florida

Orlando

Nemours Children's Hospital, Orlando

13535 Nemours Parkway
Orlando, FL 32827
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For Appointments: (407) 650-7715

Doctors Who Treat Hemophilia at This Location


Nemours Children's Specialty Care, Orlando

1717 S. Orange Ave.
Orlando, FL 32806
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For Appointments: (407) 650-7715

Hours: Monday–Friday, 8 a.m. to 5 p.m.
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Doctors Who Treat Hemophilia at This Location

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To find out which providers serve this location, please call the main number above.

Melbourne

Nemours Children's Specialty Care, Melbourne

1270 N. Wickham Road
Melbourne, FL 32935
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For Appointments: (407) 650-7715

Hours: Monday–Friday: 8 a.m. to 5 p.m.
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Doctors Who Treat Hemophilia at This Location

To find out which providers serve this location, please call the main number above.

Jacksonville

Nemours Children's Specialty Care, Jacksonville

807 Children’s Way
Jacksonville, FL 32207
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For Appointments: (904) 697-3789

Hours: Monday–Friday, 8 a.m. to 5 p.m.
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Doctors Who Treat Hemophilia at This Location


Pensacola

Nemours Children's Specialty Care, Pensacola

5153 N. Ninth Ave.
Pensacola, FL 32504
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For Appointments: (850) 505-4790

Hours: Monday–Friday, 8 a.m. to 5 p.m. (Central Time)
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Doctors Who Treat Hemophilia at This Location

About Pediatric Hemophilia

Each year in the United States about 400 children are born with hemophilia. In some cases, there’s no family history of hemophilia, meaning the bleeding disorder can occur because of a spontaneous gene mutation (or change). There’s no cure, but with appropriate treatment and follow-up care, children with hemophilia can lead happy, healthy lives.

Our renowned hematologists, oncologists and researchers at the Nemours Center for Cancer and Blood Disorders work together to diagnose and treat bleeding disorders such as hemophilia, from the mildest to the most severe and rare cases.


Types of Childhood Hemophilia We Treat

Pediatric hemophilia is an inherited blood clotting disorder that occurs when the blood doesn’t clot normally because of a lack or low supply of proteins called “factors,” specifically factor VIII (8) or factor IX (9). These factors are responsible for clotting blood after an injury, which prevents excessive bleeding.

Common Types of Hemophilia
  • hemophilia A (the most common form, caused by a lack of blood clotting factor VIII)
  • hemophilia B (caused by a low supply of blood clotting factor IX)

Only males can have hemophilia A and B. However, females can carry the defective gene and pass it on to their children.

Von Willebrand Disease

Another inherited bleeding disorder caused by a factor defect or deficiency is von Willebrand disease (or “vWD”). Von Willebrand disease can occur in both males and females, and presents in different variations, or types, with symptoms ranging from mild to severe.

Diagnosing Hemophilia in Children

Signs & Symptoms of Blood Clotting Disorders in Children

The most common symptoms of bleeding disorders like hemophilia include excessive, uncontrollable bleeding and bruising easily. Other symptoms depend on severity and may include bleeding into the joints or muscles (causing pain, swelling, redness and limited mobility), bleeding from the nose or mouth, blood in the urine or stool, and brain hemorrhage (bleeding into the brain, a medical emergency).


Testing & Evaluations

If your child possibly has a bleeding disorder such as hemophilia types A or B, or von Willebrand disease, Nemours’ experienced hematology and oncology care team works together to appropriately diagnose its severity through a variety of tests and procedures, including:

  • thorough physical examination and medical/family history
  • blood tests (clotting factors)

Treating & Caring for Children With Hemophilia

Your Child's Comprehensive Hemophilia Care Team

If we discover hemophilia, our multidisciplinary (collaborative) team plans the most effective treatment personalized to your child’s needs.

In addition to an experienced, compassionate care coordinator (a nurse who provides your child and family support, education and care coordination), Nemours’ pediatric blood disorder teams include:

  • hematologists (blood disorder specialists)
  • neurologists (specialists in brain and spinal cord disorders)
  • pathologists (diagnose diseases by examining body tissues, fluids and organs)
  • geneticists (perform genetic counseling and testing)
  • pain management specialists (anesthesiologists trained in pain management)
  • registered dietitians (nutrition specialists)
  • behavioral health specialists (psychologists and psychiatrists)
  • hematology nurses (registered nurses specializing in blood disorders in children) 

Your care team is here to provide your family with ongoing support and follow-up. We always include you in the entire process, because we truly believe in the healing power of families and that you know your child best.

Learn More About Nemours’ Hematology Care Teams in Your Area »


Innovative Pediatric Blood Clotting Disorder Treatment at Nemours

Hemophilia in children is a lifelong bleeding disorder, and treatment focuses on promoting proper clotting (by increasing the factors missing from the blood) and working to minimize the risk for bleeding. Depending on the symptoms and resulting medical problems caused by or related to the disease, treatment might include:

  • clotting factor concentrate (adding blood factors intravenously, either recombinant factors/made in a lab or, rarely, plasma-derived/donated factors)
  • antibiotics (to help fight infections)
  • organ transplant (liver, rarely)
  • regular follow-up care (to anticipate and treat symptoms over time)
  • home management strategies (safety with over-the-counter medicines, immunizations, participation in sports, dental work, etc.)
For your child’s overall health and wellness, we also prescribe:

Learn More About Pediatric Hematology Treatment at Nemours »

Additional Resources & Support for Families

 
Nemours Support Services

Dealing with a complex medical condition is difficult for your child and family. But you don’t have to go through it alone. Nemours provides an array of support services that begin on the very first day we meet, and continues throughout your journey because at Nemours, your child and family become part of our own.

Our services include: 
  • patient and family education
  • social work
  • mental health counseling
  • Child Life services
  • creative therapy
  • support groups
 
Trusted National Resources for Blood Clotting Disorders

National Hemophilia Foundation: The leading national nonprofit organization dedicated to finding better treatments and cures for inheritable bleeding disorders and preventing the complications of these disorders through education, advocacy and research.

 
General Blood Disorder Information & Education

National Heart, Lung, and Blood Institute: The institute is part of the Department of Health and Human Services, and promotes the research, prevention and treatment of heart, lung and blood diseases.

National Institutes of Health: The institute provides a vast amount of information on diseases, treatments and research, including the informative site, Medline Plus.

Appointments & Referrals

Delaware, Pennsylvania & New Jersey

(800) 416-4441


Florida
Jacksonville Area

(904) 697-3789

Orlando Area

(407) 650-7715

Pensacola Area

(850) 505-4790

Learn About Our Locations »


International
Patients

+1 (302) 651-4993

Our Goal: A Better Tomorrow

At the Nemours Center for Cancer and Blood Disorders, we strive to maximize every child's quality of life — today and for many tomorrows. Watch Video »

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