Hemophilia

Hemophilia is a rare disease that prevents blood from clotting properly. This means after a cut or injury, a child bleeds too much. Hemophilia is a congenital condition, which means a child is born with it. In our Nemours Children's Center for Cancer and Blood Disorders, our renowned hematologists (blood disorder specialists) diagnose and treat hemophilia. Although there’s no cure, with treatment and follow-up care, your child can lead a happy, active lifestyle. 

Learn More About Hemophilia

Hemophilia is a rare disease that prevents blood from clotting properly. This means after a cut or injury, a child bleeds too much. Hemophilia is a congenital condition, which means a child is born with it. In our Nemours Children's Center for Cancer and Blood Disorders, our renowned hematologists (blood disorder specialists) diagnose and treat hemophilia. Although there’s no cure, with treatment and follow-up care, your child can lead a happy, active lifestyle. 

Learn More About Hemophilia

Why Choose Us

Our Nemours Center for Cancer and Blood Disorders (or “NCCBD”) offers renowned hematology (blood disorder) care to families managing hemophilia — from the mildest to the most severe and rare types. Our medical teams take the time to listen to your concerns, and work closely with other specialists to address your child’s needs. As a member of the Children’s Oncology Group, we’re also involved in pediatric hematology and oncology research, and have opportunities for clinical trials. We also offer: 

  • Home management guidance to help your child and family be safe with over-the-counter medicines, sports participation, dental work and more
  • School outreach and advocacy including help with community resources

Regional Care Highlights

Delaware Valley Highlights

Delaware/Greater Philadelphia

We offer care for kids with hemophilia at Nemours Children’s Hospital, Delaware (Wilmington, Del.) and outpatient appointments at select Nemours locations.

In rare cases, kids with hemophilia need a liver transplant. Our program is approved by the United Network for Organ Sharing (UNOS), working in partnership with the Gift of Life Donor Program.

Our program is also a federally funded Delaware Hemophilia Treatment Center (HTC) for children and adolescents with bleeding and clotting disorders. Our multidisciplinary care team includes hematologists, pulmonologists, nutritionists, social workers, ophthalmologists, nephrologists, psychologists and community health workers. This team is able to provide the latest in research, treatments and pain management. The team is also connected with specialists across the entire health system that can help support your child's treatment.

Florida Highlights

Central Florida

We offer care for kids with hemophilia at Nemours Children’s Hospital, Florida (Orlando) and outpatient appointments at select Nemours locations. 

Northeast Florida

We offer complete care for kids with hemophilia at Nemours Children's Health, Jacksonville working with our affiliate, Wolfson Children’s Hospital, and collaborating with University of Florida College of Medicine-Jacksonville, UF Health/Shands Hospital and Mayo Clinic Florida. Outpatient and follow-up appointments are available at select Nemours locations. 

Our team located at Nemours Children's Health, Jacksonville is part of the federal hemophilia treatment center (HTC) network recognized by the Centers for Disease Control and Prevention. 

We are also a Hemophilia Foundation of Greater Florida treatment center and a member of the Hemophilia Alliance.  

Find Care at Nemours

We have many pediatric specialists and locations — find the care closest to you: