At Nemours, we treat the whole child, not just the condition. Our team approach to treating bone tumors in children brings together experts from a variety of related specialties to provide your child with the best possible treatment. Working together, we offer the most comprehensive and effective care for children with pediatric bone tumors.
The compassionate expertise of our doctors — coupled with our kid-friendly, family-centered atmosphere — helps to minimize the stress families and patients often experience throughout the evaluation, treatment and rehabilitation process of pediatric bone tumors.
Bone tumors occur often in children and adolescents. They may be benign (non-cancerous) or malignant (cancerous), though benign tumors are more common. Both kinds may grow and affect healthy bone tissue, but benign bone tumors in children do not spread to other parts of the body and are rarely life-threatening.
Pediatric bone tumors may be caused by either primary bone cancer or cancer that has spread to the bone from another part of the body. Primary bone cancer is rare, with approximately 2,500 new cases diagnosed among adults and children in the United States each year.
- photo ID
- medical and pharmacy insurance cards
- preferred pharmacy name and phone number
- names and dosage of all medications, including over-the-counter medication, your child is currently taking
- guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
Bring these forms for your first appointment:
- Patient Presents Without Legal Guardian (PDF)
Note: A parent or legal guardian must be with a child for a first visit.
- CaringBridge: A free site offering support and communication to help your family through your child's medical journey
- Ronald McDonald House of Delaware: A safe, free, family-centered home away from home when your child is sick and needs to be hospitalized
- Plan Your Visit: Learn what to expect when you visit us, from overnight stays to preparing for surgery
At Nemours/Alfred I. duPont Hospital for Children, named one of the best children’s hospitals in the country for Orthopedics by U.S. News & World Report, our Musculoskeletal Tumor Program is one of the top pediatric programs of its kind in the country. In fact, our team includes one of the few pediatric orthopedic surgeons specifically trained to care for bone tumors in children.
To give your child the best possible treatment, our team approach to treating bone tumors in children brings together specialists from the Department of Orthopedics and several other related specialties, such as Hematology/Oncology. Working together, we offer the most comprehensive, compassionate, and effective care for children with pediatric bone tumors.
Until recently, amputation was typically the only option for malignant pediatric bone tumors affecting the limbs. But, using the latest specialized surgical techniques and recent advances in research, our physicians have found that they can save a child’s limbs in many cases.
At the duPont Hospital for Children, we have the capability to use growing metal prostheses to replace the cancer affected bone in young children so that the affected limb can grow with the child. Following surgery, we work closely with your family and primary care doctor to provide rehabilitation and long-term follow-up care.
Thanks to our membership in the Children’s Oncology Group (COG — a national cooperative research organization that develops and tests innovative surgical and medical treatments for pediatric and adolescent cancers), we provide families with the most up-to-date treatments for bone tumors in children.
At the duPont Hospital for Children we care for:
A variety of benign (non-cancerous) childhood bone tumors, including:
- Bone cysts (including unicameral and aneurismal)
- Cartilage tumors (including osteochondromas, enchondromas, and chondroblastomas)
Malignant (cancerous) bone tumors, including:
- Osteogenic sarcoma (also called osteosarcoma)
- Ewing sarcoma
A host of rare and uncommon pediatric bone tumors
Our team also has special experience and expertise with polyostotic fibrous dysplasia (also called McCune-Albright syndrome or the Albright syndrome). In this syndrome, there’s bone disease with fractures and deformity of the legs, arms, and skull; pigment patches of the skin; and endocrine (hormonal) symptoms, including early puberty (early menstruation, development of breasts and pubic hair) and an increased rate of growth.
Helping children with bone tumors from diagnosis through treatment, our extensive pediatric bone tumor services include:
- Tumor staging
- Medical imaging evaluation, including computed tomography (CAT scan), magnetic resonance imaging (MRI), nuclear medicine, and ultrasound
- Diagnostic biopsy
- Surgical management, including resection (removal of a portion or all of a tumor) and reconstruction
- Prosthetic fabrication and fitting provided, on-site, for children who need amputation (a prosthesis — or prosthetic — is an artificial extension that replaces a missing body part, such as an arm or a leg)
Reconstruction options, including:
- conventional grafts (replacing tissue with either natural or synthetic materials)
- large segment allografts (replacing tissue with tissue donated by another person)
- modular and custom endoprosthetic replacement (reconstruction that uses an internal prosthetic)
- Rehabilitation after limb-sparing surgery and amputation
To help your child’s body, heart, and mind feel better throughout bone tumor diagnosis and treatment, we also offer:
- child life therapy
- integrative medicine (like massage, music therapy, yoga, meditation, etc.)
Whatever kind of pediatric bone tumor you’re facing, know that at Nemours we do whatever it takes to give your child the very best, most compassionate treatment possible. We treat every child as we would our own — your child, our promise.