At Nemours, we treat the whole child, not just the condition. Our team approach to treating bone tumors in children brings together experts from a variety of related specialties to provide your child with the best possible treatment. Working together, we offer the most comprehensive and effective care for children with pediatric bone tumors.
The compassionate expertise of our doctors — coupled with our kid-friendly, family-centered atmosphere — helps to minimize the stress families and patients often experience throughout the evaluation, treatment, and rehabilitation process of pediatric bone tumors.
Bone tumors occur often in children and adolescents. They may be benign (non-cancerous) or malignant (cancerous), though benign tumors are more common. Both kinds may grow and affect healthy bone tissue, but benign tumors in children do not spread to other parts of the body and are rarely life-threatening.
Pediatric bone tumors may be caused by either primary bone cancer or cancer that has spread to the bone from another part of the body. Primary bone cancer is rare, with approximately 2,500 new cases diagnosed among adults and children in the United States each year.
Phone: (407) 650-7715
- photo ID
- medical and pharmacy insurance cards
- preferred pharmacy name and phone number
- names and dosage of all medications, including over-the-counter medication, your child is currently taking
- guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
Our pediatric orthopedists at Nemours Children's Hospital are experts in the diagnosis and treatment of bone tumors in children.
We bring together experts from the Department of Orthopedics and other related specialties such as Hematology/Oncology to provide your child with the very best treatment possible. Together, we offer the most comprehensive and effective care for children with pediatric bone tumors.
At Nemours, we treat the whole child, not just the condition. The compassionate expertise of our doctors — coupled with our child-centered, family-oriented atmosphere — helps to minimize the stress families and patients often experience throughout the evaluation, treatment, and rehabilitation process.
Giving Children With Bone Tumors the Best Chance at a Full Life
Until recently, amputation was typically the only option for malignant tumors affecting the limbs. But, using the latest specialized surgical techniques and recent advances in research, our physicians have found that they can save a child’s limbs in many cases. Following surgery, we work closely with your family and primary care doctor to provide rehabilitation and long-term follow-up care.
Thanks to our membership in the Children’s Oncology Group (COG, a national cooperative research organization that develops and tests innovative surgical and medical treatments for pediatric and adolescent cancers) we provide kids with the most up-to-date treatments for pediatric bone tumors.
At Nemours Children’s Hospital, Orlando, we treat:
A variety of benign bone tumors in children, including:
- unicameral (simple) bone cyst
- aneurysmal bone cyst (a blood-filled, tumor like cyst)
- chondroblastoma (a rare benign tumor consisting of cells that produce cartilage)
- non-ossifying fibromas
- fibrous dysplasia
Malignant (cancerous) pediatric bone tumors, including:
- osteogenic sarcoma (also called osteosarcoma)
- Ewings sarcoma
Our team has special experience and expertise with polyostotic fibrous dysplasia (also called McCune-Albright syndrome or the Albright syndrome). In this syndrome, there is bone disease with fractures and deformity of the legs, arms, and skull; pigment patches of the skin; and endocrine (hormonal) symptoms including early puberty (early menstruation, development of breasts and pubic hair) and an increased rate of growth.
Helping children with bone tumors from diagnosis through treatment, our extensive pediatric bone tumor services include:
- tumor staging
- medical imaging evaluation, including computed tomography (CAT scan), magnetic resonance imaging (MRI), nuclear medicine, and ultrasound
- diagnostic biopsy
- surgical management, including resection (removal of a portion or all of a tumor) and reconstruction
- reconstruction options, including:
- conventional grafts (replacing tissue with either natural or synthetic materials)
- large segment allografts (replacing tissue with tissue donated by another person)
- modular and custom endoprosthetic replacement (reconstruction that uses an internal prosthethesis)
- prosthetic fabrication and fitting for children who need amputation (a prosthesis — or prosthetic — is an artificial extension that replaces a missing body part, such as an arm or a leg)
Whatever kind of diagnosis you're facing, know that at Nemours we do whatever it takes to give your child the very best, most compassionate treatment possible. We treat every child as we would our own — your child, our promise.
Working Together to Provide Personalized Pediatric Orthopedic Care
At Nemours, we treat the whole child not just the condition. Because pediatric orthopedic conditions such as bone tumors can affect kids in many ways, we rely on a
team approach that combines the expertise of our pediatric specialists throughout Nemours.
As a true children’s hospital, we can connect children and families to all the specialists they need including:
- orthopedic surgeons
- physical therapists
- occupational therapists
- orthotists (specialists who fabricate and fit braces and other supports)
- prosthetists (specialists who fit all types of prostheses)
- social workers
We believe in family-centered care and want you to be an active participant in the decision-making, care, and healing process for your child. And if your child's treatment requires surgery or an overnight stay at Nemours Children’s Hospital, we’ll help make your family’s experience as easy and stress-free as possible.
Your first trip to our pediatric orthopedic clinic, (located on the 5th floor of Nemours Children’s Hospital) is usually a comprehensive diagnostic visit. Please allow 1 to 2 hours for this visit, which may include:
- a thorough review of your child’s medical and family history
- a review of previous medical records and X-rays
- a detailed physical examination, including many measurements
- an assessment of range of joint motions and the relative length of the limb segments
Often, we can give you a specific diagnosis in this initial evaluation. But some conditions can take time to diagnose, so we may need to do further evaluation before we can pinpoint the problem. Once we’ve made a specific diagnosis, we’ll tailor the treatment and management strategies to meet the needs of your child and your family.
In addition to medical care and specialist referrals, we’ll make sure your child gets emotional and psychological support to help cope with and manage the condition or injury. We’ll also arrange for genetic counseling and therapy, as well as rehabilitation services, if needed.
A Hospital Designed by Families, for Families
At Nemours Children’s Hospital, family-centered care is at the heart of everything we do. In fact, families helped shape the unique amenities and convenient services that make our hospital like no other in the region.
You’ll feel right at home in one of our private patient rooms designed with input from families who know what it’s like to have a child in the hospital.
Our large, comfortable, single-patient rooms have sleeping accommodations for two parents, a private bathroom, wireless internet access, connections for DVD players and game systems, and two flat-screen TVs.
Other in-room features include:
- full floor-to-ceiling windows for natural light
- refrigerator for family meals and snacks
- wardrobe storage for personal items and a hotel-style safe
- GetWellNetwork interactive television (uniquely based on your child’s age, medical condition and more) and allows your child to watch TV, surf the web, check e-mail, play music and games, and learn about your Nemours health care team
Our “hospital within a garden” setting features many places for you and your family to go for fresh air and relaxation, including a one-acre interactive sensory discovery garden or one of our rooftop gardens on the second and fourth floors.
We have many more comforts and amenities such as:
- complimentary valet and parking
- kid-friendly commons areas for siblings
- café and coffee shop
- non-denominational chapel
- concierge services
If your child needs medical imaging, we offer some of the area’s most advanced pediatric radiology services here on campus at Nemours
Our unique services include:
- interventional radiology: Our team of experts uses image guidance to diagnose and treat diseases and tumors throughout the body. Certain conditions that previously required open surgery can now be treated by Nemours pediatric interventional radiologists. We are very fortunate to have the only dual-trained pediatric diagnostic and interventional radiologist in the state.
- neuroradiological or cardiovascular imaging, and fetal MRI (magnetic resonance imaging): Our subspecialty-trained pediatric radiologists see children with complex conditions who require this highly specialized imaging.
- Central Florida’s only 256-slice Brilliance iCT Scanner: We are one of only a handful of children’s hospitals in the country to have this latest generation CAT (or CT) scanner that scans faster than most machines and produces excellent images in a much shorter time with much less radiation exposure for the child.
Our team of board-certified pediatric radiologists and pediatric radiologic technologists are experts in the safe medical imaging of children of every age, even newborns.
We have also pledged our commitment to the “Image Gently” campaign of the Alliance for Radiation Safety in Pediatric Imaging, which is increasing awareness of the opportunities to promote radiation protection in the imaging of children.
At Nemours, we want to hear your concerns and share with you everything we can about your child's condition and treatment. If English is not your first language, we'll make sure you understand what to expect — in your language.
If your child has a complex or chronic condition we encourage you to take advantage of KidsTRACK, a unique service of Nemours Children’s Hospital. Located on the first floor of our hospital, KidsTRACK is designed to help families by providing expert assistance and information on all aspects of your child’s care, even before you leave our hospital or clinic.
A KidsTRACK care coordinator is available during every step of diagnosis, treatment and healing — helping your family make a smooth transition from Nemours Children's Hospital to home. Your coordinator works alongside the nursing/case managers in our subspecialty areas and acts as a single point of contact connecting you to medical and community resources.
Simply ask your physician for a referral to KidsTRACK
or call (407) 650-7715.
Connecting With Your Child's Primary Care Physician
We believe that one of the best ways to advance medicine to benefit children is through collaboration. We work closely with physicians in the community to triage their cases, offer expert diagnostics, and help to send patients to the right place for treatment.
NemoursOne, our electronic health record (EHR) is a secure, online environment that connects all phases of care for a child — inpatient, outpatient, at home, and at the referring physician's office. Using a special physician portal, primary care and referring physicians can securely access information about the care provided by our Nemours medical team and monitor a child’s progress any time, day or night.