Metatropic Dysplasia

Nemours Children's is world-renowned for diagnosing and treating skeletal dysplasias, including extremely rare disorders like metatropic dysplasia. The word “metatropic” comes from a Greek word that means "changing form." In medical terms, this dysplasia is one that progresses over time.

If your child has metatropic dysplasia, we’re here to help. Our experts have the experience and training to answer your questions, ease your concerns and build a coordinated long-term care team to give your child the best possible chance for a healthy future.

Learn More About Metatropic Dysplasia

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Metatropic Dysplasia

Nemours Children's is world-renowned for diagnosing and treating skeletal dysplasias, including extremely rare disorders like metatropic dysplasia. The word “metatropic” comes from a Greek word that means "changing form." In medical terms, this dysplasia is one that progresses over time.

If your child has metatropic dysplasia, we’re here to help. Our experts have the experience and training to answer your questions, ease your concerns and build a coordinated long-term care team to give your child the best possible chance for a healthy future.

Learn More About Metatropic Dysplasia

Contact Us
Metatropic Dysplasia

Why Choose Us

Nemours has been recognized for delivering advanced pediatric orthopedic care since 1940. Families from all over the world travel to see our skeletal dysplasia experts. Our care providers have the experience and training to diagnose even the rarest types of skeletal dysplasia, like metatropic dysplasia. Once we’ve identified your child’s condition, our care teams work together to create a personalized treatment plan that meets your family’s needs.

Treatment is led by our world-renowned skeletal dysplasia experts, including Michael Bober, MD, and William Mackenzie, MD. Since skeletal dysplasia can evolve and change with time, so does your treatment plan. We aim to guide your child to the right care at the right time.

Our care navigators coordinate appointments since most kids need to see different specialists. We also help kids with metatropic dysplasia achieve the highest possible function and quality of life through access to Nemours experts, clinical programs and support services.

Regional Care Highlights

Delaware Valley Highlights

Delaware/Greater Philadelphia

We offer complete care for children with metatropic dysplasia at Nemours Children’s Hospital, Delaware (Wilmington, Del.) and select Nemours locations.

Nemours Children’s Hospital, Delaware is ranked among the best children’s hospitals in the nation for pediatric orthopedics and surgery by U.S. News and World Report.

Florida Highlights

Central Florida

We offer complete care for children with metatropic dysplasia at Nemours Children’s Hospital, Florida in Orlando and select Nemours locations.

Northeast Florida

We offer complete care for children with metatropic dysplasia at Nemours Children's Health, Jacksonville and our hospital affiliates, Wolfson Children’s Hospital and Mayo Clinic in Florida, with outpatient and follow-up appointments available at select Nemours locations.

Nemours orthopedic specialists provide the care and orthopedic surgery and hold dual physician leadership roles at Wolfson Children’s Hospital’s orthopedics team, ranked by U.S. News & World Report as one of the 50 best children’s hospitals in the nation for orthopedics.

Northwest Florida

We offer care for children with metatropic dysplasia at Nemours Children’s Health,  Pensacola and our hospital affiliate, West Florida Healthcare, with outpatient and follow-up appointments also available at select Nemours locations.

Find Care at Nemours

We have many pediatric specialists and locations — find the care closest to you: