Find us on facebook and learn more how we would like to improve the quality of clinical and psychological care of patients with Cystic Fibrosis being seen at AI duPont Hospital for Children.
Member Resources
Yahoo Listserv
This listserv is an online forum where families are able to ask and help each other answer questions that commonly arise for children living with CF. Please email Kim York at kyork@nemours.org for instructions to join. The listserv is only for families who are seen at the Alfred I. duPont Hospital for Children.
Support Group
The Cystic Fibrosis Family Advisory Council has started a support group that meets the third Sunday of each month from 7:00-8:00 p.m. Although different topics are discussed each month, the constant is that it remains a positive environment in which to share ideas and hear how others are coping with the challenges of CF. This is an online support group conducted as a chat room. It is open to all those who are living with CF. For a password and additional information, you will need to contact Leslie Gill at julian10251@msn.com.
Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation’s mission is to develop the means to control, and one day cure, cystic fibrosis and to improve the quality of life for those living with the disease.
Cystic Fibrosis Research, Inc. (CFRI)
Cystic Fibrosis Research, Inc. (CFRI) exists to fund research, provide educational and personal support, and spread awareness of cystic fibrosis.
The Boomer Esiason Foundation
The Boomer Esiason Foundation is a dynamic partnership of leaders in the medical and business communities joining with a committed core of volunteers to heighten awareness, provide education, and improve the quality of life of those affected by cystic fibrosis. The foundation also provides financial support to research aimed at finding a cure.