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Clinic for Special Children, Nemours Announce New Collaboration

Wednesday, Sep 30, 2015

Delaware Valley

Five-year agreement brings additional subspecialty care to Strasburg clinic

The Clinic for Special Children (CSC) and Nemours Children’s Health System (Nemours) today announced a five-year collaborative partnership for the care of children suffering from rare genetic disorders. CSC and Nemours have worked together for several years, combining CSC’s unique model of care and research with Nemours’ expertise and subspecialty pediatric services in the areas of ENT, Orthopedics, Ophthalmology, Pulmonology, Nephrology, and Audiology.

Scientists from the Nemours Biomedical Research Center for Pediatric Auditory and Speech Science (CPASS) have also been involved in collaborative and innovative research with CSC. Today’s announcement advances this successful relationship by adding additional subspecialty services for CSC patients including Psychology and Neuropsychology. As part of this collaboration CSC will also help Nemours establish culturally-sensitive medical services for a growing community of Old Order Amish near Dover, Delaware and coordinate shared research initiatives.

"Nemours is an invaluable partner in serving vulnerable children. Their subspecialists provide exceptional care, which is now integrated directly into our general clinical practice in Strasburg. Children see their primary care doctor and subspecialty provider during the same visit and under the same roof. This type of cross-disciplinary communication is virtually unprecedented in mainstream American medical practice, and is a vital service for children who suffer from complicated, multisystem medical problems," says Dr. Kevin A. Strauss, Medical Director at the Clinic for Special Children.

"Our goal is to provide our children and families with high-quality, culturally appropriate care close to home. Collaborations like this one with Clinic for Special Children go a long way toward achieving that goal," says Dr. Brent King, Enterprise Vice President for Nemours and Chief Medical Officer for Nemours/Alfred I. duPont Hospital for Children in Wilmington, Delaware.

Nemours is one of many important partners within a growing network of collaborative relationships at the Clinic for Special Children including Franklin & Marshall College, LG Health, and Children’s Hospital of Pittsburgh. "We remain a small, specialized practice, but our model of care is helping to inform the integration of genomics and preventative health care in everyday medical practice." says Dr. Strauss.

About the Clinic for Special Children

Founded in 1989, the Clinic for Special Children (CSC) serves children by translating advances in genetics into timely diagnoses and accessible, comprehensive medical care, and by developing better understanding of heritable diseases. CSC cares for more than 3,000 patients and manages more than 170 unique genetic disorders. Nearly 75% of CSC’s operating budget relies on philanthropic support, including 5 annual benefit auctions run by the Plain communities, private foundation grants, and individual charitable gifts. CSC is an independent 501(c)(3) not for profit organization.

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About Nemours

Nemours is an internationally recognized children's health system that owns and operates the two free-standing children’s hospitals: the Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., and Nemours Children's Hospital in Orlando, Fla., along with outpatient facilities in five states, delivering pediatric primary, specialty and urgent care. Nemours also powers the world’s most-visited website for information on the health of children and teens, KidsHealth.org, and offers on-demand, online video patient visits through Nemours CareConnect. Nemours ReadingBrightstart.org is a program dedicated to preventing reading failure in young children, grounded in Nemours’ understanding that child health and learning are inextricably linked, and that reading level is a strong predictor of adult health.

Established as The Nemours Foundation through the legacy and philanthropy of Alfred I. duPont, Nemours provides pediatric clinical care, research, education, advocacy and prevention programs to families in the communities it serves.