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When fully funded, the Nemours VAP will be the first center of its kind in Florida, with sites in Jacksonville and Orlando, to offer children with vascular anomalies the ability to see physicians from multiple specialties in a single visit with a family-centered and coordinated approach to their care.
A vascular anomaly is an area where a child’s blood or lymph vessel has grown or connected in an unusual way. Vascular anomalies vary in size and, depending on the type and location, they can be harmless, cosmetically challenging, or potentially life threatening.
Treatment for vascular anomalies is often complex and the families of impacted children often find that the number of appointments, tests, and interventions can be overwhelming. The development of the Nemours VAP will help coordinate care for these unique patients and also ensure that patients receive the most innovative care, as new treatments are constantly being developed.
"Children with vascular anomalies often face a lifetime of challenges and interventions, but we can help them immensely with the creation of this program, which will increase coordination of the best services available," said Janet Steffen, Founder and Executive Director of Liam’s Land.
"We are always looking for ways to improve care and the delivery of that care for patients and their families," said Gary Josephson, MD, Chairman of the Department of Surgery at Nemours Children's Specialty Care. "We want parents to be able to spend time playing with their kids, not worrying about scheduling doctor’s appointments and coordinating procedures. The development of this program will help take the stress off of parents while ensuring that their children receive the best, most comprehensive care."