Genetics Outcomes

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Why Choose Us: Genetics

Our Outcomes: The Results of Our Care

The pediatric genetics team at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., diagnoses and manages genetic conditions in children, supporting and counseling families every step of the way. As part of our commitment to helping kids reach their fullest potential, our genetics experts measure key metrics related to better outcomes.

Why Measuring Results Matters

At Nemours, we measure our results and compare them to national rates to help track our progress in providing pediatric care with the best possible results. Why? So we can:

  • help you make decisions about your child’s care
  • be clear about our results
  • improve so we can consistently deliver better, safer care

Here are a couple of the outcomes we track and focus on to improve the experience for both you and your child.

 

Involving Families in Making Medications Safer

Involving Families in Making Medications Safer


We Ask About, Review and Make Sure You Understand Your Child’s Medications

Every child’s medication needs vary — some might get none, others could require many different kinds of medicines every day. So managing kids’ medicines and making sure children are always getting the right kinds of medicines — whenever and however much they need — is complicated. That’s why it’s so crucial for us to work together as a coordinated team that incorporates the latest technology and our most important team members — you, the parents.

Through a process called “medication reconciliation,” we maintain accurate medication records so we can reduce confusion and prevent problems with:

  • duplication (prescribing medicine you already have)
  • dosage (not giving the right amount of medicine — not enough or too much)
  • dangerous interactions (medicines that shouldn’t be taken together)

At Nemours, our genetics team exceeds the national benchmark for medicine reconciliation by providing more families with up-to-date medication lists with doses, frequency and clear prescribing instructions. That means we:

  1. Ask you at the beginning of your family’s encounter with us about all the current medications your child is taking (including herbal and nonprescription treatments). Then our goal is to review that list with you to make sure that all recommended medicines are still appropriate.
  2. Keep track of and update the medications in our award-winning electronic health record (EHR) so that our health care providers will know the type, dosage and frequency of all of your child’s medications.
  3. Go over any changes in medications with you and your child and provide a new list at the end of the visit.

 

Percentage of Patients Receiving Updated Medication Lists

82%

Nemours genetics patients, 2017

92%

Nemours genetics patients, 2016

91%

Nemours genetics patients, 2015

74%

National average (benchmark)

Data source: Nemours medication reconciliation data for Nemours/Alfred I. duPont Hospital for Children (Wilmington, Del.); Nemours Children's Hospital (Orlando); and Nemours Children's Specialty Care, Jacksonville (Jacksonville, Fla.), 2015-2017.
Benchmark: Patient Safety and Quality: An Evidence-Based Handbook for Nurses. Hughes RG, editor. Rockville (MD): Agency for Healthcare Research and Quality (US); 2008 Apr. Chapter 38: Medication Reconciliation, Jane H. Barnsteiner, PhD, RN, FAAN.

Publishing Important Genetic Research

Publishing Important Genetic Research


Consistently Publishing Research With Far More Impact Than the Average Academic Researcher

Our genetics team is constantly conducting research and publishing their findings in medical journals. Journals are scored by publishers from across the world with an "impact factor," which is a ratings scale that's been used for more than 15 years. The higher the number, the more prestigious (and used by others) the journal. The scores change every year, based upon journal readership, how often the journal is cited, etc. This impact factor is something that every journal now works toward, as it's tied to what they can charge for advertisements and subscriptions. Globally, the average rating for journals is a 1.0. At Nemours, we're continually publishing reseach in journals that are rated six or seven times higher.

Our research into genetic disorders is an integral part of our commitment to the kids we treat. Our goal is to help advance life-changing medical care for the children we see and those who may never even enter our doors.

 

Average Impact Factor Score of Nemours Genetics Publications

7.5

Nemours genetics publications, 2017

7.3

Nemours genetics publications, 2016

6.6

Nemours genetics publications, 2015

1.0

International average (benchmark)

Our Differentiators: What Sets Us Apart

Our Differentiators: What Sets Us Apart


Why Choose Nemours Genetics

Nemours’ pediatric genetic providers identify the underlying cause for a wide range of complex, and sometimes seemingly unrelated, problems in children. But our care doesn’t stop there. We also involve siblings and adult relatives to see if the disease may affect current or future generations.

Here are just some of the other reasons families choose us for their child’s care:

  • Care from some of the Top Doctors and Best Doctors in America®. Many of our geneticists are recognized among the best in the country through independent, peer and family reviews.
  • Collaborative, multispecialty team approach to care. We work closely with pediatric subspecialists in neurology, cardiology, ophthalmology and orthopedics to treat every aspect of your child’s condition. We also schedule appointments with multiple providers on the same day for your convenience.
  • Ongoing research into better treatments and cures for children with genetic disorders. Our teams are actively involved in researching new and better tests and treatments for kids with genetic conditions such as musculoskeletal and neurodevelopmental diseases.

See how Nemours' care is recognized locally, across the country, and around the world. View Awards »