Pulmonology Outcomes

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Why Choose Us: Pulmonology

Our Outcomes: The Results of Our Care

A big part of pediatric pulmonology care is treating children with cystic fibrosis (CF), an inherited disease that affects the lungs and digestive system. Kids with CF are more likely to get repeated lung infections. At Nemours, we’re committed to keeping children with CF as healthy and protected against infections as possible.

Why Measuring Results Matters

We measure our results and compare them to national rates to help track our progress in providing pediatric care with the best possible results. Why? So we can:

  • help you make decisions about your child’s care
  • be clear about our results
  • improve so we can consistently deliver better, safer care

Our CF centers in Wilmington, Del.; Pensacola, Fla.; Jacksonville, Fla.; and Orlando are among only 120 in the nation accredited by the Cystic Fibrosis Foundation. As certified CF centers, we voluntarily share with other facilities our cystic fibrosis outcomes — that is, the results of our care. Two important outcomes we measure — influenza (flu) immunization rates and prescribing specific inhaled therapy for children with a serious bacterial infection — show how we’re giving kids with cystic fibrosis the best chance for a longer, healthier life. 

 

Protecting Kids With CF From the Flu

Protecting Kids With CF From the Flu


Making Sure They Get the Influenza Vaccine Every Year

The flu can be really dangerous for kids with cystic fibrosis. It can affect how well the lungs work, and make CF symptoms and bacterial infections much worse. To help protect our cystic fibrosis patients from the flu, we strongly recommend annual flu immunizations in children ages 6 months and over. We work hard to make sure kids get the flu vaccines they need each year by building trusting relationships with our families and counseling parents about the importance of protecting their children against the flu.

 

Percentage of Cystic Fibrosis Patients 6 Months and Older Given Flu Vaccine, 2016

100%

Nemours/Alfred I. duPont Hospital for Children (Wilmington, Del.)

50.9%

Nemours Children’s Hospital (Orlando) and Nemours Children’s Specialty Care (Central Florida)*

96.8%

Nemours Children’s Specialty Care, Jacksonville (Jacksonville, Fla.)

90.3%

Nemours Children’s Specialty Care, Pensacola (Pensacola, Fla.)

92.8%

National average (benchmark)

 

Data source: Nemours data provided to the Cystic Fibrosis Foundation patient registry in 2016. *Rate for Nemours Orlando locations is low due to improper documentation.
Benchmark: Cystic Fibrosis Foundation guidelines for the same year.

Helping Children With CF Live Longer

Helping Children With CF Live Longer


Giving the Medications They Need to Battle Serious Infections

Children with CF need ongoing, intensive antibiotic therapy because they’re very vulnerable to bacterial infections in the respiratory tract. Antibiotics help maintain their lung function and quality of life, and keep infections from getting worse.

In children with cystic fibrosis, the bacteria Pseudomonas aeruginosa (or P. aeruginosa, for short) causes severe lung damage that can affect kids’ life expectancy. Children who contract the bacterial infection need to take inhaled antibiotics called “antipseudomonal therapy,” which could be given as the antibiotics tobramycin or aztreonam. These crucial medications help to combat P. aeruginosa after early lung infection.

Consistent, improved use of these antibiotics to treat the chronic infection has played a major role in helping patients with CF live longer. In 1969, people with CF in industrialized countries had an average survival of only 14 years old. By 2010, this had improved to more than 40 years old.

 

Percentage of Cystic Fibrosis Patients 6 Years and Older With P. Aeruginosa Infection Given Any Inhaled Antipseudomonal Therapy, 2016

89.5%

Nemours/Alfred I. duPont Hospital for Children (Wilmington, Del.)

80.7%

Nemours Children’s Hospital (Orlando) and Nemours Children’s Specialty Care (Central Florida)

92.6%

Nemours Children’s Specialty Care, Jacksonville (Jacksonville, Fla.)

92.9%

Nemours Children’s Specialty Care, Pensacola (Pensacola, Fla.)

82.1%

National average (benchmark)

 

Data source: Nemours data provided to the Cystic Fibrosis Foundation patient registry in 2016.
Benchmark: Cystic Fibrosis Foundation guidelines for the same year.

Our Differentiators: What Sets Us Apart

Our Differentiators: What Sets Us Apart


Why Choose Nemours Pulmonology

Nemours pulmonologists provide advanced care for all types of lung diseases and disorders. Here are just some of the reasons families choose us for their child’s pulmonology care:

  • Top children’s hospital for pulmonology. Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., is consistently recognized by U.S. News & World Report as one of the best children’s hospitals in the country for pulmonology treatment and care.
  • Lung care designed just for kids. Our board-certified physicians are trained and experienced not just in pulmonology, but in pulmonology for children. So they know what their pediatric patients — from newborns to teens —  need and how to deliver kid-friendly care.
  • Collaborative, team approach to care. To manage lung conditions related to other childhood diseases, our board-certified pulmonologists, advanced practice nurses and respiratory therapists work closely with specialists in allergy and immunology, gastroenterology, neurology, otolaryngology (ear, nose and throat, or ENT) and more.
  • Specialized pediatric programs. Our pulmonologists lead and participate in comprehensive, tailored programs built around specific conditions, such as asthma, sleep disorders, sickle cell disease and muscular dystrophy.
  • Pulmonology research that helps children everywhere. Nemours doctors and researchers are actively involved in research and clinical trials to look for better ways to diagnose and treat childhood lung diseases, such as cystic fibrosis and asthma.