Nemours Children's Hospital, Orlando

13535 Nemours Parkway
Orlando, FL 32827
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For Appointments: (407) 650-7715

Clinic Location: Second Floor

Hours: Monday–Friday, 8 a.m. to 5 p.m.

What to Bring
  • photo ID
  • medical and pharmacy insurance cards
  • preferred pharmacy name and phone number
  • names and dosage of all medications, including over-the-counter medication, your child is currently taking
  • guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
New Patients

Bring these forms for your first appointment:

Returning Patients
  • Patient Presents Without Legal Guardian (PDF)
    English | Spanish
    Note: A parent or legal guardian must be with a child for a first visit.
Forms & Resources
New Patient Forms
Returning Patient Forms
  • Patient Presents Without Legal Guardian (PDF)
    English | Spanish
    Note: A parent or legal guardian must be with a child for a first visit.
Resources for Patients & Families

Nemours Children’s Hospital in Orlando’s Lake Nona Medical City is the region’s only coordinated treatment center for pediatric intestinal failure in newborns, children and teenagers. In addition to effective nonsurgical treatments for motility and absorption disorders, we’re one of the few children’s hospitals in the country that offers the advanced serial transverse enteroplasty (STEP) — a bowel lengthening procedure to treat short bowel syndrome (the most common cause of intestinal failure) — as well other leading-edge minimally invasive surgical techniques.

At Nemours, our goal is to do everything in our power to restore your child’s bowel function and provide the independence and confidence for a happy, healthy life.

Pediatric Care Like No Other

Families from Central Florida, the Southeast, across the country and around the globe come to Nemours Children’s Hospital because our pediatric specialists and surgeons are consistently recognized among the very best in clinical care and research. And, because we’re an academic medical center, we’re at the forefront of treating highly complex pediatric conditions, including intestinal failure in children.

Highlights of Our Care

Nemours Children’s Hospital is completely committed to caring for kids.

We offer:
  • the most advanced diagnostic techniques and equipment available
  • renowned surgeons and specialists involved in clinical trials, research and publications in peer reviewed medical journals
  • customized treatment plans based on advanced research and best practices
  • innovative surgical techniques that minimize surgery risks, recovery time and pain
  • one of the country’s few pediatric general surgeons capable of performing serial transverse enteroplasty (STEP) for short bowel syndrome
  • extensive imaging and navigational equipment for precise instrument guidance
  • nutritional experts trained in managing pediatric parenteral and enteral nutrition (intravenous and tube feeding) and the dietary needs of children with complex illnesses
  • care without delay; seamless, rapid access to specialists
  • family-centered facilities, support services and hospital amenities
  • strong, meaningful relationships with community primary care doctors
  • access and close proximity to the Orlando International Airport for national and international patients

Multidisciplinary Intestinal Failure Care in Central Florida and Beyond

The world-class multidisciplinary intestinal failure care team at Nemours Children’s Hospital provides comprehensive evaluation, diagnosis, treatment, ongoing care and education for families and kids with intestinal failure caused by short bowel syndrome, motility/movement disorders and absorptive disorders of the small intestines. We have a deep understanding of the physiological and psychological changes that occur as children grow and develop, and we personalize our treatments to your child’s specific physical and emotional needs — from initial diagnosis to transition to adult health care.

Because intestinal failure in children can cause life-threatening problems, your child’s care can’t wait. That’s why we offer appointments with multiple members of our intestinal failure team within days (not weeks) to evaluate your child’s symptoms and make recommendations for further testing or treatment at the very first visit.

In the most rare and complex cases, our award-winning electronic health record system allows our specialists to consult instantly across the Nemours Children’s System throughout Florida and at our sister hospital, Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del. This means your child’s case can be reviewed by a large group of leading intestinal failure experts — without leaving the area.

Members of Your Child’s Intestinal Care Team

Treating intestinal failure in children involves comprehensive, long-term management from multiple pediatric specialists.

Depending on the condition, your child’s medical team may include pediatric:

Our team also includes nurse care coordinators, social workers and Child Life specialists with special expertise in caring for pediatric patients with intestinal disorders.

Pediatric Intestinal Failure Conditions We Treat

Short Bowel Syndrome

Short bowel syndrome, or “short gut,” occurs when a baby is born with a short intestine or, more commonly, when a portion of the small intestine has been surgically removed (or “resected”) because of injury or disease.

Conditions that cause short bowel syndrome include:
  • gastroschisis (a hole in the muscles and skin in the abdomen)
  • inflammatory disorders (such as ulcerative colitis)
  • intestinal atresia (when part of the intestine doesn’t develop properly)
  • necrotizing enterocolitis (when part of the intestine dies due to bacterial infection/inflammation)
  • thrombotic disorders (when clots impact blood flow in the intestine)
  • volvulus (when the intestine is twisted and causes blockage)

Learn More About Short Bowel Syndrome and Care at Nemours »

Motility Disorders

Motility disorders occur when the muscles or nerves don’t move the stool through the intestine correctly — either too quickly or too slowly — which in turn, affects digestive function.

Motility disorders that can cause intestinal failure include:
  • Crohn disease (inflammatory bowel disease caused by the immune system attacking healthy cells in the intestine)
  • chronic intestinal pseudo-obstruction (when muscle contractions in the intestinal tract do not work properly)
  • Hirschsprung disease (blockage caused by improper muscle relaxation in the bowel)
  • intestinal aganglionosis (lack of ganglion nerve cells that impacts sensation)
Absorptive Disorders

Absorptive disorders are genetic, congenital (present at birth) diseases that affect the lining or “walls” of the intestines and impact how nutrients are absorbed into the body.

Absorptive disorders that can cause intestinal failure include:
  • microvillus inclusion disease (incomplete development and/or degeneration of cellular membranes in the wall of the intestine)
  • tufting enteropathy (hereditary disease that affects the tiny villi, or hair-like projections that aid absorption, in the intestines)

Diagnosing Intestinal Failure in Children

Depending on your child’s symptoms, we may order a variety of imaging studies and procedures.

Symptoms and Complications of Pediatric Intestinal Failure
Symptoms of intestinal failure depend on the cause, and commonly include:
  • diarrhea
  • constipation
  • bloating
  • abdominal pain
  • vomiting
  • weight loss or poor weight gain
  • poor appetite
Complications of intestinal failure in children can include:
  • dehydration and malnutrition
  • vitamin, mineral and electrolyte deficiencies
  • bacterial overgrowth
Diagnostic Tests We May Recommend
  • blood tests (monitors electrolyte, mineral and vitamin levels)
  • breath hydrogen testing (detects bacterial overgrowth malabsorption disorders)
  • imaging studies (X-rays, ultrasound, CT or “CAT” scan, MRI)
  • esophagogastroduodenoscopy, or EGD (evaluates the colon, intestines, stomach or esophagus through a tiny scope/camera)
  • upper gastrointestinal (GI) series (also called “barium swallow,” examines the upper part of the digestive system after ingesting a chalky fluid)
  • lower gastrointestinal (GI) series (also called “barium enema” examines the rectum, the large intestine and parts of the small intestine after ingesting a chalky fluid)
  • liver biopsy (detects liver damage)

Treating Pediatric Intestinal Failure at Nemours Children's Hospital

The first line of treatment for pediatric intestinal failure is to provide for your child’s nutritional needs. When the bowel is not functioning, nutrition is provided typically through parenteral or enteral nutrition (intravenous or tube feeding). Then we work to help your child regain normal intestinal function through a combination of treatments that may include nutritional management, intestinal rehabilitation and minimally invasive surgery, if necessary.

Nutritional Management

Working together with pediatric gastroenterologists and surgeons, nutritionists at Nemours Children’s Hospital use national, standards-based nutritional management protocols developed with the contribution of a Nemours dietitian (standards from the American Society for Parenteral and Enteral Nutrition and Academy of Nutrition and Dietetics).

If your child’s digestive system isn’t working properly, or oral feeding isn’t adequate for healthy growth and development, we will provide important vitamins and minerals through:

  • parenteral nutrition, or “PN” (nutrients are infused through an intravenous catheter, or IV, for months or years)
  • enteral nutrition, or “EN” (more commonly known as “tube feeding,” nutrients are provided through a tube placed directly into a functioning part of the gastrointestinal tract, either in the stomach or small bowel)

We also educate your family on how to manage IV or tube feeding at home, and provide ongoing, customized nutritional planning based on your child’s condition, developmental stage and treatment goals.

Learn More About Nutritional Care at Nemours Children’s Hospital »

Intestinal Rehabilitation

Due to the high risk for blood infection and liver damage with very long-term IV or tube feeding, whenever possible, our goal is to restore your child’s natural bowel function through intestinal rehabilitation.

Intestinal rehabilitation involves gradually weaning your child off of parenteral or enteral nutrition, transitioning to oral feeding and adapting the bowels to work properly. We do this with careful, continuous planning and monitoring.

Treatments may include:
  • medicines to help the bowel work better (antibiotics, antacids, anti-diarrheal medicines, hormones to promote growth of mucosa, or the intestinal lining)
  • speech and language therapies to improve feeding and swallowing
  • nontransplant, minimally invasive surgery to fix problems with the small intestine
  • family support and guidance to help you find resources and understand the condition, treatments and how to care for your child at home
Specialized Care for Children With Digestive Motility Dysfunction

The pediatric gastroenterology motility team at Nemours Children’s Hospital is specially trained to diagnose and treat digestive motility problems in children, including those requiring special care.

Our Nemours Pediatric Motility Program manages a variety of conditions, including:
  • food refusal
  • dysphagia and other swallowing disorders
  • reflux
  • rumination
  • esophageal dysmotility
  • gastroparesis (when the stomach doesn’t empty food properly)
  • small intestine/colonic obstruction and pseudo-obstruction
  • chronic/episodic abdominal pain
  • outlet dysfunction (constipation)
  • other gastrointestinal motility disorders
Minimally Invasive Surgery for Pediatric Intestinal Failure and Short Bowel Syndrome

Minimally invasive surgical bowel tapering and lengthening techniques can fix problems with the small intestine and often eliminate the need for parenteral and enteral nutrition and, in many cases, intestinal transplantation.

Minimally invasive surgery to treat intestinal failure is performed endoscopically (using existing body cavities) and/or laparoscopically (using small incisions) with tiny scopes (or cameras) instead of large, “open” incisions in the abdomen. This technology can reduce recovery time, pain and the risk for infection. Surgical procedures include, but are not limited to:

  • restorative proctocolectomy (removing the rectum and part of the colon and attaching the small intestine to the anus)
  • intestinal resection (removing a portion of the small bowel that is not functioning)
  • laparoscopic colectomy (repairing or removing the colon)
  • stoma creation (making a hole in the abdomen for stool to pass through)

Learn More About Pediatric General Surgery at Nemours Children’s Hospital »

Advanced Surgical Treatment for Short Bowel Syndrome

Nemours Children’s Hospital has the expertise of one of a handful of pediatric general surgeons in the United States who performs the advanced serial transverse enteroplasty (STEP), a minimally invasive bowel lengthening technique for children with short bowel syndrome.

Bowel lengthening helps with absorption by providing more time for food to move through the intestines.

Two minimally invasive procedures include:
  • serial transverse enteroplasty, or STEP (includes a series of “V” incisions into the existing intestine to create a “zigzag” or accordion formation to lengthen the bowel)
  • Bianchi procedure (the standard method for bowel lengthening which includes separating the bowel lengthwise and attaching the tubes end-to-end)

Learn More About Short Bowel Syndrome and STEP Surgery at Nemours »

Caring For the Whole-Child and Family

At Nemours, we’re committed to not only treating your child’s physical condition, but also attending to the emotional health and wellness of the entire family. We’re here with you every step of the way, educating you about the medical condition and treatments, helping you manage your child’s home care and providing your child and family with coping strategies for success at home, at school and out in the community.

Coping and Support for the Entire Family

To help make the experience as comfortable as possible, we also provide emotional and psychosocial support and many other services for your child and family, including:

Learn More About the Support Services and Amenities at Nemours Children’s Hospital »

Where We Provide Care: Where and When You Need It

Our specialty inpatient and outpatient care services are offered on the same floor of our hospital, a design (recommended by our Family Advisory Council) that fosters maximum collaboration among your child’s specialists, and, just as important, is convenient for your family.

What’s more, some of the very same pediatric specialists your child sees at Nemours Children’s Hospital also provide convenient care at our specialty locations in downtown Orlando, Lake Mary and Melborne.

Electronic Health Record System: Keeping Track of Your Child’s Care

No matter where your child receives care at Nemours, your medical team (including your primary care provider) can keep track of your child’s progress and access your child’s medical history, test results and visit notes anytime through our award-winning electronic health record system.

You can also view parts of your child's health records, communicate with your Nemours care team, make appointments, request prescription refills and more through our MyNemours online patient portal.

Learn More About MyNemours »

What to Expect When Your Child Needs Surgery

If your child needs surgery, you can trust the highly trained pediatric surgical team at Nemours Children’s Hospital. Our pediatric surgical specialists (surgeons, anesthesiologists and nurses) understand what kids (and families) need, psychologically and physically.

Because we truly believe in family-centered care, we invite you (one parent or guardian) to the operating room to be with your child until just after sedation. We also provide our families with a peaceful place to wait without leaving the surgical floor, in our beautiful rooftop garden.

What Happens During the Presurgical Visit

Before any type of surgical procedure, your child will require a presurgical visit. At this visit, you and your child will meet your surgeon, discuss the diagnosis and details of the operation, and get answers to all of your questions or concerns. You may also meet with an anesthesiologist if necessary.

We’ll call you before your visit so you'll know what to bring, like:
  • any medications your child is currently taking
  • your ID
  • insurance and/or Medicaid cards
  • proof of guardianship, if applicable

When you arrive for a presurgical visit, go directly to the presurgical clinic area on the second floor. There, the patient service representative will review and verify your information and insurance. You will also complete a medical history form.

A nurse practitioner will assist with the visit and order any necessary tests. She or he will also inform you about what to expect the day of the surgery, including:

  • how your family will be kept updated during the procedure
  • when you can expect the surgeon to come out and speak with you
  • when you can join your child in the recovery room

EmmiKids Programs: Online Educational Videos for Families

At the end of the presurgical visit, you and your child may have the option to view an online educational program from EmmiKids about the upcoming surgical procedure and the anesthesia. You can watch these programs at the hospital or you may choose to watch them at home or in your local library. We’ll give you an access code to view the program(s).

Learn More About EmmiKids at Nemours »

How to Prepare the Day Before Surgery

The day before surgery, the surgical services staff will call you to check on your child’s health status, give you a time of arrival for the next day, update you on feeding instructions, and answer any questions.

General Feeding/Drinking Instructions

No food, milk, formula or breast milk may be consumed after a specific time (provided by your surgeon) on the day of the surgery. Your child may only have apple juice, electrolyte replenishing/sports drinks or water up to four hours prior to scheduled surgery time. These are considered “clear liquids.” We ask that you do not substitute other juices. Special Note: Infants 11 months or younger may have breast milk, but only up to six hours prior to surgery.

Suggested items to pack for your child:
  • empty baby bottle or cup
  • special feeding or suction equipment (if needed)
  • bathrobe
  • slippers
  • socks
  • favorite stuffed animal and/or blanket
  • loose-fitting clothes
  • eyeglasses (if needed)
Please remove the following items from your child:
  • all jewelry — including earrings
  • fingernail polish
  • hair accessories
  • contact lenses
  • retainers
What Happens the Day of Surgery

On the day of surgery, we ask that you be here at the time instructed so your child’s surgery won’t be delayed. We encourage you to allow extra time in your travel plans in case of traffic or unexpected delays.

Parking and Where to Go in the Hospital

When you arrive at the hospital on the day of surgery, you can use our complimentary valet parking, or you can self-park in the garage near the outpatient entrance. Valet services are located at the outpatient entrance and are available Monday through Friday, from 8 a.m. to 6 p.m.

Once inside the hospital, go straight to the surgical services desk on the second floor. There, the patient service representative will greet you, review your child’s information and insurance status, and check your child in. We’ll give you a case number, as well as a pamphlet with instructions about where to go and what to do during the waiting period. We’ll ask your child to change into a hospital gown and will then check vital signs: temperature, pulse, blood pressure and weight.

Just Before Surgery

While waiting for surgery, your child can play in our colorful, relaxing surgical commons area featuring many interactive games and activities to help reduce anxiety and pass the time. We also have a “toy store” where your child or teen can choose from a variety of gifts like stuffed animals, ball caps, and electronic items to keep.

When it’s close to the time for surgery, we’ll escort you and your child to an exam room, where you’ll meet the anesthesiologist and operating room nurse. As part of our unique family-centered model of care, our anesthesiologists may allow one parent to accompany your child to the operating room and stay until just after the anesthesia is administered.

During and Just After Surgery

You’ll be asked to stay in the surgical waiting area while your child is in the operating room. A nurse liaison or a trained volunteer will keep you updated during the procedure. If you need to leave the area for any reason, please inform a staff member.

After surgery, your child’s surgeon will come out to discuss the procedure and answer any questions you may have. We’ll inform you as soon as you can join your child in the recovery area or “wake up” room.

Patients must be fully awake before discharge. You should plan to stay in the recovery area for at least one hour (or longer, depending on your child). It’s very common for children to experience nausea and/or vomiting just after surgery, and also have a flushed face. We’ll offer clear liquids to drink when your child is ready. If your child will be admitted to the hospital after surgery, you’ll be given instructions ahead of time.

Once your child is ready for discharge, a nurse will review instructions with you regarding diet, wound care, medication, activity, and when your child should return to see the doctor. You may also be given prescriptions.

What to Expect During and Just After Surgery

You’ll be asked to stay in the surgical waiting area while your child is in the operating room. A nurse liaison or a trained volunteer will keep you updated during the procedure. If you need to leave the area for any reason, please inform a staff member.

After surgery, your child’s surgeon will come out to discuss the procedure and answer any questions you may have. We’ll inform you as soon as you can join your child in the recovery area or “wake up” room.

Patients must be fully awake before discharge. You should plan to stay in the recovery area for at least one hour (or longer, depending on your child). It’s very common for children to experience nausea and/or vomiting just after surgery, and also have a flushed face. We’ll offer clear liquids to drink when your child is ready. If your child will be admitted to the hospital after surgery, you’ll be given instructions ahead of time.

Once your child is ready for discharge, a nurse will review instructions with you regarding diet, wound care, medication, activity, and when your child should return to see the doctor. You may also be given prescriptions.

What to Expect the Day After Surgery

Make sure your child rests as much as possible after surgery. Temporary nausea or vomiting is quite common after discharge. But if your child experiences any of the symptoms below, call your surgeon or the nursing staff immediately:

  • a fever of more than 101 degrees Fahrenheit
  • persistent nausea or vomiting
  • severe pain that’s not relieved by prescribed medication
  • excessive bleeding from an incision

A nurse will call to check on your child’s recovery and to address any questions or concerns. We’re committed to making your child’s surgical visit as pleasant and safe as possible – before, during and after the procedure.

Managing Pain After Surgery: Nemours Pain Management Program

If your child is experiencing postsurgical pain, we can help. Nemours Children’s Hospital has one of the only pediatric pain management programs in the country that provides holistic, whole-child — and whole family — healing for children and teens experiencing acute (temporary) or chronic (ongoing) pain. Our integrated program is led by a world-renowned pediatric anesthesiologist who is also board-certified in pain management. We focus on relieving the physical, mental, and emotional aspects of pain using a variety of therapies in an outpatient or inpatient (day stay hospital program) setting.

Learn More About Pediatric Pain Management at Nemours Children’s Hospital »

A Hospital Designed by Families, for Families

At Nemours Children’s Hospital, family-centered care is at the heart of everything we do. In fact, families helped shape the unique amenities and convenient services that make our hospital like no other in the region.

If Your Child Needs to Stay Overnight in Our Hospital

You’ll feel right at home in our patient's rooms designed with input from families who know what it’s like to have a child in the hospital.

Our large, comfortable, single-patient rooms have sleeping accommodations for two parents, a private bathroom, wireless internet access, connections for DVD players and game systems, and two flat-screen TVs.

Other in-room features include:
  • full floor-to-ceiling windows for natural light
  • refrigerator for family meals and snacks
  • wardrobe storage for personal items and a hotel-style safe
  • GetWellNetwork interactive television (uniquely based on your child’s age, medical condition and more) and allows your child to watch TV, surf the Web, check e-mail, play music and games, and learn about your Nemours health care team.

Our “hospital within a garden” setting features many places for you and your family to go for fresh air and relaxation, including a one-acre interactive sensory discovery garden or one of our rooftop gardens on the second and fourth floors.

We have many more comforts and amenities such as:
  • complimentary valet and parking
  • kid-friendly commons areas for siblings
  • café and coffee shop
  • nondenominational chapel

Learn More About Nemours Children’s Hospital »

Advanced Pediatric Medical Imaging Services Available Onsite

If your child needs medical imaging, we offer some of the area’s most advanced pediatric radiology services here on campus at Nemours
Children’s Hospital.

Our unique services include:
  • interventional radiology: Our team of experts uses image guidance to diagnose and treat diseases and tumors throughout the body. Certain conditions that previously required open surgery can now be treated by Nemours pediatric interventional radiologists. Nemours also offers the only dual-trained pediatric diagnostic and interventional radiologists in the state, including those based at Nemours Children's Hospital.
  • neuroradiological or cardiovascular imaging, and fetal MRI (magnetic resonance imaging): Our subspecialty-trained pediatric radiologists see children with complex conditions who require this highly specialized imaging.
  • Central Florida’s only 256-slice Brilliance iCT Scanner: We are one of only a handful of children’s hospitals in the country to have this latest generation CAT (or CT) scanner that scans faster than most machines and produces excellent images in a much shorter time with much less radiation exposure for the child.

Our team of board-certified pediatric radiologists and pediatric radiologic technologists are experts in the safe medical imaging of children of every age, even newborns.

We have also pledged our commitment to the “Image Gently” campaign of the Alliance for Radiation Safety in Pediatric Imaging, which is increasing awareness of the opportunities to promote radiation protection in the imaging of children.

Learn More About Medical Imaging at Nemours Children's Hospital »

Family-Centered Care Means We're Here for You

At Nemours, we want to hear your concerns and share with you everything we can about your child's condition and treatment. If English is not your first language, we'll make sure you understand what to expect — in your language.

Learn More About Interpreter Services at Nemours Children’s Hospital »