For Appointments: (407) 650-7715
Hours: Monday–Friday, 8 a.m. to 5 p.m.
- photo ID
- medical and pharmacy insurance cards
- preferred pharmacy name and phone number
- names and dosage of all medications, including over-the-counter medication, your child is currently taking
- guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
Bring these forms for your first appointment:
New Patient Forms
Returning Patient Forms
- Patient Presents Without Legal Guardian (PDF)
English | Spanish
Note: A parent or legal guardian must be with a child for a first visit.
Resources for Patients & Families
Neuromuscular disorders in children can be a life-changing challenge for the whole family. At Nemours Children’s Hospital, a major regional pediatric neuromedical center, you’ll have the comfort of knowing your child’s care is in great hands. Our multidisciplinary team includes some of the area’s most experienced, caring and skilled experts.
Our first goal will be to diagnose your child’s condition accurately and efficiently. Our neurologists and other experts will review your child’s medical history and conduct a thorough physical exam.
If your child has had any previous diagnostic tests or imaging, please bring the results with you or make them available (via email or fax). We may need additional information, including testing on specific muscles or nerves, imaging studies, tissue biopsy, lab studies or genetic tests.
Consulting with other specialists, we’ll develop a coordinated clinical plan that will help slow the progress of the disorder and help your child thrive. If appropriate, we’ll let you know about opportunities to participate in promising new treatments through clinical trials.
Our broader goals for families with children who have neuromuscular disorders include:
- providing information and training to help your family adjust to life with a child who has a neuromuscular disorder
- providing genetic counseling, when needed, to help your family make informed planning decisions
- connecting your family with social, educational and other supportive resources
Neuromuscular disorders in children are medically complex and require the care of a multidisciplinary team of doctors, nurses, therapists and other professionals. Our experts bring extensive knowledge and experience in their own fields — along with a shared commitment to do everything they can to help your child enjoy an active, happy childhood and a rewarding quality of life.
Working together — and coordinating with your child’s primary care doctors — our experts will develop a treatment plan customized for your child. Your child’s care team may include:
- neurologists (experts in disorders of the brain, spinal cord, and nerves). Ranked among the best in the nation, Nemours neurologists will lead your child’s team.
- physical medicine and rehabilitation specialists and therapists (experts in physical and occupational therapy)
- assistive technology specialists (experts in devices, such as wheelchairs and braces, that help promote independent living)
- orthopedists and surgeons (experts in bones and joints). Nemours Children’s Health System has one of the largest and most widely respected pediatric orthopedic practices in the U.S. — and the world.
- geneticists (experts in hereditary disorders), who can offer genetic testing for certain neuromuscular disorders in children, as well as screening for other family members
- pulmonologists (experts in lungs and breathing disorders) and certified respiratory therapists, who work closely together to manage any breathing issues related to NMDs
- gastroenterologists (“GI”) and nutritionists (experts in digestion and food), who can assist with any feeding-related issues
- pain management specialists, who use a family-centered approach to develop a plan to relieve your child’s pain using the least amount of medication
The muscular dystrophy program at Nemours Children’s Hospital is the only one in Central Florida that’s certified and approved by the Muscular Dystrophy Association (“MDA”). It brings together two important elements to care for kids who have neuromuscular diseases like muscular dystrophy:
- the latest, most promising, most advanced techniques, medications and therapies
- a caring, compassionate, family-centered approach that offers support for patients and families alike
Most neuromuscular disorders in children benefit from a combination of treatment approaches. Depending on your child’s condition, your child’s care team may recommend any of the following:
- Orthotics (braces) — Kids with some neuromuscular disorders need a brace to provide stability and strength when they move their arms or legs. Our professionals will help you obtain customized braces, make sure they fit properly, show you and your child how to use them, and adjust them as needed.
- Assistive technology — Children with some kinds of neuromuscular disorders often take advantage of wheelchairs and other devices to help them get around, communicate and perform other routine tasks. Our assistive technology team can show you what devices might be available and teach you and your child how to use them to enjoy a better quality of life. We also have an on-site wheelchair clinic where your child can get any necessary adjustments or repairs.
- Medication — Some kids have conditions that require medicine for a number of reasons: to control spasticity (muscle stiffness or spasms); to reduce swelling or pain; to improve breathing, digestion or other functions; or to slow the progress of the disorder.
- Therapy — Physical or occupational therapy can often make a big difference in a child’s life by helping strengthen affected nerves and muscles. The experienced pediatric therapists in our Division of Physical Medicine & Rehabilitation will develop a customized therapy plan to help your child improve flexibility and strength, and live more independently.
- Surgery — Surgery is rarely performed to treat most neuromuscular disorders. In some cases, a surgical procedure can improve your child’s comfort by addressing a problem that’s associated with the disorder — by reducing pain, increasing flexibility or repairing damaged tissue.
- Diet — Our nutritionist may suggest foods that are high in helpful nutrients or low in harmful ones.
We believe that one of the best ways to advance medicine to benefit children is through collaboration. We work closely with physicians in the community to triage their cases, offer expert diagnostics, and help to send patients to the right place for treatment.
NemoursOne, our electronic health record (EHR) is a secure, online environment that connects all phases of care for a child — inpatient, outpatient, at home, and at the referring physician's office. Using a special physician portal, primary care and referring physicians can securely access information about the care provided by the Nemours medical team and monitor a child’s progress any time, day, or night.
A Hospital Designed by Families, for Families
At Nemours Children’s Hospital, family-centered care is at the heart of everything we do. In fact, families helped shape the unique amenities and convenient services that make our hospital like no other in the region.
You’ll feel right at home in our patient's rooms designed with input from families who know what it’s like to have a child in the hospital.
Our large, comfortable, single-patient rooms have sleeping accommodations for two parents, a private bathroom, wireless internet access, connections for DVD players and game systems, and two flat-screen TVs.
Other in-room features include:
- full floor-to-ceiling windows for natural light
- refrigerator for family meals and snacks
- wardrobe storage for personal items and a hotel-style safe
- GetWellNetwork interactive television (uniquely based on your child’s age, medical condition and more) and allows your child to watch TV, surf the Web, check e-mail, play music and games, and learn about your Nemours health care team.
Our “hospital within a garden” setting features many places for you and your family to go for fresh air and relaxation, including a one-acre interactive sensory discovery garden or one of our rooftop gardens on the second and fourth floors.
We have many more comforts and amenities such as:
- complimentary valet and parking
- kid-friendly commons areas for siblings
- café and coffee shop
- nondenominational chapel
If your child needs medical imaging, we offer some of the area’s most advanced pediatric radiology services here on campus at Nemours
Our unique services include:
- interventional radiology: Our team of experts uses image guidance to diagnose and treat diseases and tumors throughout the body. Certain conditions that previously required open surgery can now be treated by Nemours pediatric interventional radiologists. We are very fortunate to have the only dual-trained pediatric diagnostic and interventional radiologist in the state.
- neuroradiological or cardiovascular imaging, and fetal MRI (magnetic resonance imaging): Our subspecialty-trained pediatric radiologists see children with complex conditions who require this highly specialized imaging.
- Central Florida’s only 256-slice Brilliance iCT Scanner: We are one of only a handful of children’s hospitals in the country to have this latest generation CAT (or CT) scanner that scans faster than most machines and produces excellent images in a much shorter time with much less radiation exposure for the child.
Our team of board-certified pediatric radiologists and pediatric radiologic technologists are experts in the safe medical imaging of children of every age, even newborns.
We have also pledged our commitment to the “Image Gently” campaign of the Alliance for Radiation Safety in Pediatric Imaging, which is increasing awareness of the opportunities to promote radiation protection in the imaging of children.
At Nemours, we want to hear your concerns and share with you everything we can about your child's condition and treatment. If English is not your first language, we'll make sure you understand what to expect — in your language.