Medically Complex Coordination Clinic

Our Medically Complex Coordination Clinic helps families and pediatricians coordinate care for children with complex medical conditions. This means a dedicated team of Nemours pediatric experts comes together to create a roadmap of care for your child. This roadmap is a plan that you and your child’s pediatrician can follow to help your child get the best care possible. It will also help your family manage care costs and coordinate appointments — we’ll even help you discover resources and support.

 
How It Works

Dedicated Nemours experts help your family and your child’s health care providers with:

  • personalized, family- and patient-centered care plans for you and your child’s pediatrician
  • prioritizing specialty care 
  • a focus on improving quality of life
  • customized emergency information forms 

Complex conditions we can help you manage include:

  • severe cerebral palsy
  • complex cardiopulmonary diseases
  • genetic syndromes with multisystem involvement
  • neurodegenerative diseases
  • problems requiring advanced home care equipment 
  • rare diseases (especially when community support is limited or unavailable)
  • life-limiting conditions

The Medically Complex Coordination Clinic is a great benefit if your child uses assistive and adaptive medical technology such as:

  • tracheotomy feeding tubes
  • diapers (beyond the typical toilet training age)
  • surgical ostomies 
  • total parenteral nutrition (TPN)
  • vagal nerve stimulator
  • baclofen pumps
  • ventilator, home oxygen or other mechanical ventilation assistance device (CPAP, BiPAP)
  • ventriculoperitoneal shunt

Nemours Children's Hospital, Orlando


13535 Nemours Parkway
Orlando, FL 32827
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For Appointments: (407) 650-7715

 
What to Bring
  • photo ID
  • medical and pharmacy insurance cards
  • preferred pharmacy name and phone number
  • names and dosage of all medications, including over-the-counter medication, your child is currently taking
  • guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
New Patients

Bring these forms for your first appointment:

Returning Patients
  • Patient Presents Without Legal Guardian (PDF)
    English | Spanish
    Note: A parent or legal guardian must be with a child for a first visit.
 
Forms & Resources
New Patient Forms
Returning Patient Forms
  • Patient Presents Without Legal Guardian (PDF)
    English | Spanish
    Note: A parent or legal guardian must be with a child for a first visit.
Resources for Patients & Families

The Medically Complex Coordination Clinic at Nemours Children’s Hospital is a service that helps you reach a higher level of wellness and coordinated care for your child with special medical needs. Not designed to diagnose conditions, our team comes together to create a care plan that addresses each of your child’s unique needs related to multiple conditions — and to provide support for your family.

Our Expert Care Team

The Medically Complex Coordination Clinic is led by a pediatrician who has a vast amount of experience managing the special needs of children with complicated health issues. Our nurse practitioner is a seasoned expert who holds dual-certification in neonatology and pediatrics. Other team members include:

  • a health and wellness coach to help maximize your child's well-being
  • a licensed clinical social worker to assist with non-medical needs, such as emotional support, assistance with access to financial and insurance resources, locating community resources and nonprofits who offer support
  • registered dietitians

The Nemours Commitment to Family-Centered Care

At Nemours, we recognize the importance of the family in the care and healing process. Because many of the children we see have chronic illnesses that require repeated visits, we build strong relationships with our families that foster respect, dignity and collaboration. We’re also committed to educating children and families about the medical condition, and how best to manage it. Our goal is to get your child back to the business of being a kid as quickly as possible.

Learn More About the Nemours Commitment to Family-Centered Care »