Down Syndrome

A Nemours patient with Down syndrome

The goal of our Down Syndrome Program is to maximize your child’s potential by providing coordinated care from a variety of medical and therapeutic specialists — all in one place. Our Down syndrome experts work together to assess and prevent medical problems, provide resources and emotional support, and encourage opportunities for Down syndrome families to interact with one another.

 
Read More About Down Syndrome

Down syndrome is the most common chromosomal abnormality, occurring in approximately one out of every 800 births. Each child with Down syndrome is unique, although many share common physical, medical and developmental problems.

Nemours Children's Hospital, Orlando


13535 Nemours Parkway
Orlando, FL 32827
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For Appointments: (407) 650-7715

Hours: vary, please call

 
What to Bring
  • photo ID
  • medical and pharmacy insurance cards
  • preferred pharmacy name and phone number
  • names and dosage of all medications, including over-the-counter medication, your child is currently taking
  • guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
New Patients

Bring these forms for your first appointment:

Returning Patients
  • Patient Presents Without Legal Guardian (PDF)
    English | Spanish
    Note: A parent or legal guardian must be with a child for a first visit.
 
Forms & Resources
New Patient Forms
Returning Patient Forms
  • Patient Presents Without Legal Guardian (PDF)
    English | Spanish
    Note: A parent or legal guardian must be with a child for a first visit.
Resources for Patients & Families

Community and Care for Pediatric Down Syndrome 

Nemours Children’s Hospital provides specialty care for newborns and kids up to age 18 with Down syndrome. Our integrated, coordinated approach addresses your child’s medical, developmental and social needs at every age and stage.

Our hospital in Orlando’s Lake Nona Medical City is also home to the Down Syndrome Association of Central Florida’s annual Florida Down Syndrome Conference. In partnership with the University of Central Florida College of Education and Human Performance, the event fosters insight and learning from nationally recognized leaders in medicine, health and advocacy for children with Down syndrome and their families.

Coordinated Cardiac Services for Kids With Down Syndrome

An estimated 50 percent of babies born with Down syndrome have or will develop heart problems later in life. Our cardiology team coordinates with onsite specialists to evaluate and regularly monitor for congenital (present at birth) heart defects, such as atrioventricular and ventricular septal defects and tetraology of Fallot. With early diagnosis and advanced treatment, we can do a lot to protect your child’s heart now, and in the future.

Learn More About Nemours Cardiac Center in Florida »

 
Family Centered Care at Nemours

No matter what your child’s condition, we recognize the importance of the family in the care and healing process. Because many of the children we see have chronic (long-term) illnesses that require repeated visits, we are committed to building strong relationships with families. We’re also committed to teaching our patients and their families about their condition and how best to manage it. Through education, we can help improve your child’s quality of life.

Learn More About Family-Centered Care in Central Florida »

 
Electronic Health Record: Keeping Track of Your Child's Progress

No matter where your child receives care at Nemours, your medical team (including your primary care provider) can keep track of your child’s progress and access your child’s medical history, test results and visit notes anytime through our award-winning electronic health record system.

You can also view parts of your child's health records, communicate with your Nemours care team, make appointments, request prescription refills and more through our MyNemours online patient portal.

Learn More About MyNemours »