Genetic Disorders

In the Words of Our Families

We believe that your thoughts and feedback about your family's experience with Nemours are integral to helping us continue to improve our care. Here are some of the personal testimonials we’ve received from parents like you:

"We absolutely loved the geneticist and her assistant. She is very sensitive to the parent’s feelings, explained things well, took lots of time with us, and looked our son over more thoroughly than others have. The genetic counselor was very good as well documenting and asking questions, etc."

"Being worried of the unknown of our child’s condition, everyone was extremely kind and treated us well, not like other experiences when you are just a number."

"Nemours has the best nurses on hand. They always put my son at ease instantly. Very gratifying as a parent."

"My doctor went above and beyond my expectations. We have seen more than 10 doctors; I have great confidence in her to help us get a diagnosis. She offered to attempt to put a case study together to take for genetics meeting in March, took videos and pictures of my son."

"My provider was very nice, willing to explain in layman’s terms and showing me papers for support data. Related to me what ways the testing could be helpful to others in the family in the future."

"Awesome experience. Dr. Bober and staff are the most kind, caring, and very informative care providers we've ever met. We are very pleased with both staff and hospital. All of our concerns were addressed, thoroughly discussed without being rushed, very patient, honest, and sincere. Top-notch doctors and staff."

"We love [Nemours/Alfred I. duPont Hospital for Children]. It takes us 21 hours one way by car to get there and every mile is worth it."

"Since we've been bringing our daughter to the hospital, she has improved and is meeting her full potential. We feel fortunate to have found Dr. Bober and the skeletal dysplasia clinic."

"We looked at other hospitals for treatment, and none came close to the cleanliness, friendly, or just great experience we have here. Thank you so much for caring about each and every parent and their families."