Neurofibromatosis (NF)

Skip Navigation
Back to top

Neurofibromatosis (NF)

Experienced Specialists for Many NF Needs


Neurofibromatosis (NF) is a genetic condition (can be passed from parent to child) that causes tumors to grow on nerve cells. This leads to problems in the skin, bones, eyes and brain which can affect a child’s abilities and appearance. Although these tumors are usually benign (not cancer), treating them requires an expert team since they can develop in many ways, over a long period of time. Our specialists work together to address each issue as your child grows. 

Learn More About Neurofibromatosis 

Types of Neurofibromatosis We Treat

Types of Neurofibromatosis We Treat


Neurofibromatosis is one of the most common neurocutaneous syndromes (tumors in the nervous system). Our experts see a full spectrum of these conditions, and treat all three types of NF, including:

  • neurofibromatosis type 1 (also called “NF1” and “von Recklinghausen disease”) 
  • neurofibromatosis type 2 (also called “NF2”)
  • neurofibromatosis type 3 (also called “NF3” and “schwannomatosis”) 
Services We Offer for Neurofibromatosis

Services We Offer for Neurofibromatosis


We offer a variety of diagnostic and treatment services, which may vary depending on how your child’s NF develops and which specialist your child sees, including:

Why Choose Us for NF Care

Why Choose Us for NF Care


At Nemours, we have the experience and the expertise to care for children with complex conditions like NF. Our medical teams will take the time to listen to your concerns and give your child personal, thorough, medical and surgical care.

Our neurologists have been recognized for advancements in treating children at our hospitals, as well as through our research. If your child needs surgery, our highly skilled neurosurgeons are experienced in performing endoscopic (minimally invasive) surgery for smaller incisions and faster healing. For kids whose tumors become malignant (cancer), our internationally recognized Nemours Center for Cancer and Blood Disorders offers state-of-the-art therapies. 

Learn More About Why to Choose Us » 

Regional Neurofibromatosis Highlights

Services, programs, facilities and care teams differ at each location. Call for details.

Best children's hospital for neurology & neurosurgery

We offer complete neurofibromatosis care for kids at Nemours/Alfred I. duPont Hospital for Children (Wilmington, Del.), named one of the best children’s hospitals in the country for neurology and neurosurgery by U.S. News & World Report.

We also collaborate with the National Cancer Institute (NCI)-designated Helen F. Graham Cancer Center at Christiana Care (in Newark, Del.) and the Sidney Kimmel Cancer Center at Thomas Jefferson University (in Philadelphia).

We offer complete neurofibromatosis care for kids at Nemours Children’s Hospital (Orlando) and outpatient appointments at select Nemours Children’s Specialty Care locations.

We’re also part of an integrated pediatric program with UF Health/Shands , the nation’s largest proton therapy provider and a State of Florida Cancer Center of Excellence (and the only one in the Southeast). 

We offer complete neurofibromatosis care for kids at Nemours Children’s Specialty Care, Jacksonville and our hospital affiliate, Wolfson Children’s Hospital, with outpatient and follow-up appointments also available at select Nemours Children’s Specialty Care locations.

Nemours specialists provide the neurology care at the Stys Neuroscience Institute at our affiliate, named one of the best children’s hospitals in the country for neurology and neurosurgery by U.S. News & World Report.

We’re also part of an integrated pediatric program with UF Health/Shands , the nation’s largest proton therapy provider and a State of Florida Cancer Center of Excellence (and the only one in the Southeast). 

research icon

Research & Clinical Trials

At Nemours, we’re actively researching new approaches for childhood disease prevention, diagnosis and treatment.

kidshealth icon

KidsHealth Library

Learn more about your child’s medical condition from the experts at Nemours’ KidsHealth.