Neurofibromatosis (NF)

Neurofibromatosis (NF) is a genetic condition (can be passed from parent to child) that causes tumors to grow on nerve cells. This leads to problems in the skin, bones, eyes and brain which can affect a child’s abilities and appearance. Although these tumors are usually benign (not cancer), treating them requires an expert team since they can develop in many ways, over a long period of time. Our specialists work together to address each issue as your child grows. 

Learn More About Neurofibromatosis

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Neurofibromatosis (NF)

Neurofibromatosis (NF) is a genetic condition (can be passed from parent to child) that causes tumors to grow on nerve cells. This leads to problems in the skin, bones, eyes and brain which can affect a child’s abilities and appearance. Although these tumors are usually benign (not cancer), treating them requires an expert team since they can develop in many ways, over a long period of time. Our specialists work together to address each issue as your child grows. 

Learn More About Neurofibromatosis

Contact Us
Neurofibromatosis (NF)

Why Choose Us

At Nemours Children's , we have the experience and the expertise to care for children with complex conditions like NF. Our medical teams will take the time to listen to your concerns and give your child personal, thorough, medical and surgical care.

Our neurologists have been recognized for advancements in treating children at our hospitals, as well as through our research. If your child needs surgery, our highly skilled neurosurgeons are experienced in performing endoscopic (minimally invasive) surgery for smaller incisions and faster healing. For kids whose tumors become malignant (cancer), our internationally recognized Nemours Center for Cancer and Blood Disorders offers state-of-the-art therapies. 

Regional Care Highlights

Delaware Valley Highlights

Delaware/Greater Philadelphia

We offer complete neurofibromatosis care for kids at Nemours Children’s Hospital, Delaware (Wilmington, Del.), named one of the best children’s hospitals in the country for cancer care by U.S. News & World Report.

We also collaborate with the National Cancer Institute (NCI)-designated Helen F. Graham Cancer Center at ChristianaCare in Newark, Del., and the Sidney Kimmel Cancer Center at Thomas Jefferson University in Philadelphia.

Florida Highlights

Central Florida

We offer complete neurofibromatosis care for kids at Nemours Children’s Hospital, Florida in Orlando and outpatient appointments at select Nemours specialty care locations.

We’re also part of an integrated pediatric program with UF Health/Shands, the nation’s largest proton therapy provider and a State of Florida Cancer Center of Excellence (and the only one in the Southeast). 

Northeast Florida

We offer complete neurofibromatosis care for kids at Nemours Children's Health, Jacksonville and our hospital affiliate, Wolfson Children’s Hospital, with outpatient and follow-up appointments also available at select Nemours Children’s Specialty Care locations.

Nemours specialists provide the neurology care at the Stys Neuroscience Institute at our affiliate, named one of the best children’s hospitals in the country for neurology and neurosurgery by U.S. News & World Report.

We’re also part of an integrated pediatric program with UF Health/Shands, the nation’s largest proton therapy provider and a State of Florida Cancer Center of Excellence (and the only one in the Southeast).

Find Care at Nemours

We have many pediatric specialists and locations — find the care closest to you: