Nemours Children's Hospital, Orlando


13535 Nemours Parkway
Orlando, FL 32827
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For Appointments: (407) 650-7715
Hours: Monday–Friday, 8 a.m. to 5 p.m.

 
What to Bring
  • photo ID
  • medical and pharmacy insurance cards
  • preferred pharmacy name and phone number
  • names and dosage of all medications, including over-the-counter medication, your child is currently taking
  • guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
New Patients

Bring these forms for your first appointment:

Returning Patients
  • Patient Presents Without Legal Guardian (PDF)
    English | Spanish
    Note: A parent or legal guardian must be with a child for a first visit.
 
Forms & Resources
New Patient Forms
Returning Patient Forms
  • Patient Presents Without Legal Guardian (PDF)
    English | Spanish
    Note: A parent or legal guardian must be with a child for a first visit.
Resources for Patients & Families

Neuromuscular disorders in children can be a life-changing challenge for the whole family. At Nemours Children’s Hospital, a major regional pediatric neuromedical center, you’ll have the comfort of knowing your child’s care is in great hands. Our multidisciplinary team includes some of the area’s most experienced, caring and skilled experts.

 
What to Expect on Your First Visit

Our first goal will be to diagnose your child’s condition accurately and efficiently. Our neurologists and other experts will review your child’s medical history and conduct a thorough physical exam.

If your child has had any previous diagnostic tests or imaging, please bring the results with you or make them available (via email or fax). We may need additional information, including testing on specific muscles or nerves, imaging studies, tissue biopsy, lab studies or genetic tests.

Consulting with other specialists, we’ll develop a coordinated clinical plan that will help slow the progress of the disorder and help your child thrive. If appropriate, we’ll let you know about opportunities to participate in promising new treatments through clinical trials.

Our broader goals for families with children who have neuromuscular disorders include:

  • providing information and training to help your family adjust to life with a child who has a neuromuscular disorder
  • providing genetic counseling, when needed, to help your family make informed planning decisions
  • connecting your family with social, educational and other supportive resources
 
Multidisciplinary Care for Neuromuscular Disorders in Children

Neuromuscular disorders in children are medically complex and require the care of a multidisciplinary team of doctors, nurses, therapists and other professionals. Our experts bring extensive knowledge and experience in their own fields — along with a shared commitment to do everything they can to help your child enjoy an active, happy childhood and a rewarding quality of life.

Working together — and coordinating with your child’s primary care doctors — our experts will develop a treatment plan customized for your child. Your child’s care team may include:

  • neurologists (experts in disorders of the brain, spinal cord, and nerves). Ranked among the best in the nation, Nemours neurologists will lead your child’s team.
  • physical medicine and rehabilitation specialists and therapists (experts in physical and occupational therapy)
  • assistive technology specialists (experts in devices, such as wheelchairs and braces, that help promote independent living)
  • orthopedists and surgeons (experts in bones and joints). Nemours Children’s Health System has one of the largest and most widely respected pediatric orthopedic practices in the U.S. — and the world.
  • geneticists (experts in hereditary disorders), who can offer genetic testing for certain neuromuscular disorders in children, as well as screening for other family members
  • pulmonologists (experts in lungs and breathing disorders) and certified respiratory therapists, who work closely together to manage any breathing issues related to NMDs
  • gastroenterologists (“GI”) and nutritionists (experts in digestion and food), who can assist with any feeding-related issues
  • pain management specialists, who use a family-centered approach to develop a plan to relieve your child’s pain using the least amount of medication
 
Our World-Class Muscular Dystrophy Program

The muscular dystrophy program at Nemours Children’s Hospital is the only one in Central Florida that’s certified and approved by the Muscular Dystrophy Association (“MDA”). It brings together two important elements to care for kids who have neuromuscular diseases like muscular dystrophy:

  • the latest, most promising, most advanced techniques, medications and therapies
  • a caring, compassionate, family-centered approach that offers support for patients and families alike
 
Coordinating Resources to Give Your Child the Most Effective Treatment

Most neuromuscular disorders in children benefit from a combination of treatment approaches. Depending on your child’s condition, your child’s care team may recommend any of the following:

  • Orthotics (braces) — Kids with some neuromuscular disorders need a brace to provide stability and strength when they move their arms or legs. Our professionals will help you obtain customized braces, make sure they fit properly, show you and your child how to use them, and adjust them as needed.
  • Assistive technology — Children with some kinds of neuromuscular disorders often take advantage of wheelchairs and other devices to help them get around, communicate and perform other routine tasks. Our assistive technology team can show you what devices might be available and teach you and your child how to use them to enjoy a better quality of life. We also have an on-site wheelchair clinic where your child can get any necessary adjustments or repairs.
  • Medication — Some kids have conditions that require medicine for a number of reasons: to control spasticity (muscle stiffness or spasms); to reduce swelling or pain; to improve breathing, digestion or other functions; or to slow the progress of the disorder.
  • Therapy — Physical or occupational therapy can often make a big difference in a child’s life by helping strengthen affected nerves and muscles. The experienced pediatric therapists in our Division of Physical Medicine & Rehabilitation will develop a customized therapy plan to help your child improve flexibility and strength, and live more independently.
  • Surgery Surgery is rarely performed to treat most neuromuscular disorders. In some cases, a surgical procedure can improve your child’s comfort by addressing a problem that’s associated with the disorder — by reducing pain, increasing flexibility or repairing damaged tissue.
  • Diet — Our nutritionist may suggest foods that are high in helpful nutrients or low in harmful ones.
 
Connecting With Your Child’s Primary Care Physician

We believe that one of the best ways to advance medicine to benefit children is through collaboration. We work closely with physicians in the community to triage their cases, offer expert diagnostics, and help to send patients to the right place for treatment.

NemoursOne, our electronic health record (EHR) is a secure, online environment that connects all phases of care for a child — inpatient, outpatient, at home, and at the referring physician's office. Using a special physician portal, primary care and referring physicians can securely access information about the care provided by the Nemours medical team and monitor a child’s progress any time, day, or night.