Spina bifida is a congenital condition (meaning it is present at birth) that involves the incomplete development of the spinal cord or its coverings. Nemours’ spina bifida experts are uniquely prepared to treat the medical challenges of the condition while giving children the tools they need to grow into active, independent adults.
The term spina bifida comes from Latin and literally means "split" or "open" spine. Though the cause is unknown, the spine’s failure to close properly happens during the first month of pregnancy.
A child born with spina bifida (also called myelomeningocele), or the related disorder lipomeningocele (when the “open” spine is covered over by an area of fatty tissue), often has some sort of damage to the nerves of the spinal cord. The extent of this damage can vary widely, but may include paralysis in the lower extremities and loss of bowel and bladder control. Children with spina bifida may also have hydrocephalus (fluid on the brain), and some may also experience attention deficit hyperactivity disorder or other learning difficulties.
For Appointments: (407) 650-7715
- photo ID
- medical and pharmacy insurance cards
- preferred pharmacy name and phone number
- names and dosage of all medications, including over-the-counter medication, your child is currently taking
- guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
Bring these forms for your first appointment:
Spina bifida experts from the Nemours Children’s Hospital come to the Nemours Children’s Specialty Care, Orlando to provide outpatient evaluation and treatment for newborns, children and teens in Central Florida and the Southeast.
Our spina bifida program is one-of-a-kind in the area because your child has access to an expert, multi-disciplinary team of surgeons, specialists, nurses and care coordinators who treat the whole child and family.
Spina Bifida Specialists at Nemours Children’s Specialty Care, Orlando, Treat Your Child as Our Own
At Nemours Children’s Specialty Care, Orlando, your child is treated as one of our own, which means we not only provide expert medical care, we’re involved in ensuring your child’s (and family’s), needs are being met at home, school and in the community.
Your team is also in close contact with your primary care physician who can access your child’s treatment and care through our award-winning electronic health record, so no matter where you go, everyone is on the same page.