Arthrogryposis

Arthrogryposis is a condition of the joints and muscles that impairs a child’s ability to use his or her shoulders, wrists, fingers, and lower extremities. It is congenital, meaning a child is born with it.

There are many variations of this disease, some mild and some severe. In mild cases, only a few joints may be affected and the child may have nearly full range of motion, while in extreme cases nearly every joint is impacted, including those of the jaw and back.

At the Nemours/Alfred I. duPont Hospital for Children in Delaware, we team up with the Orthotic and Prosthetic group, Medical Imaging, Physical and Occupational Therapy, and Rehabilitation to provide personalized treatment for children with this condition. From the early evaluation stages to the creation of a long-term rehabilitation plan, we work closely with your family to determine the best course of care for your child.

Conditions We Treat

• arthrogryposis multiplex congenita
• distal (towards the end of the limb) arthrogryposis
• syndromes associated with arthrogryposis-like contractures

Services We Offer

• clinical evaluation
• diagnostic testing
• genetic consultation, as necessary
• muscle biopsy
• surgical intervention
• splinting
• therapeutic and rehabilitation services 
• home exercise program development
• aquatic therapy
• Wilmington Robotic EXoskeleton (WREX)