Patient Education & Support

Nemours Center for Cancer and Blood Disorders

Learn More About Your Child's Condition and Treatment

View trusted, helpful information about pediatric cancer and blood disorders. These videos and articles were developed by KidsHealth.org, the No. 1 most-visited health site for children, created by the experts at Nemours.

Educational Videos

It can be hard for young children to understand what it means to have cancer. Things like staying at the hospital and getting an IV can be overwhelming and scary. Thanks, in part, to a grant from Hyundai Hope on Wheels®, Nemours’ experts at KidsHealth teamed up with the Nemours Center for Cancer and Blood Disorders and Little Airplane Productions (creators of "Wonder Pets!" and other award-winning shows) to produce "A Boy Named Finn,” a 12-minute video geared toward toddlers and preschoolers with cancer. The program includes puppetry, animation and real kids who were diagnosed with cancer.


Articles for Families Dealing With Cancer and Blood Disorders

Guiding You Through Your Journey

Along with our exceptional care, we recognize that your child and your family may need additional services and resources. We offer a variety of support services designed to help your child, and entire family, throughout your journey.

Support Resources in Your Area

At Nemours you’ll find a wide range of health professionals and support team members who have tremendous experience in helping kids and families with cancer.

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National Support Resources 

Here are some of the organizations that offer financial, emotional and educational resources for families. 

 
Cancer (General)
Alex’s Lemonade Stand

This foundation raises money for cancer research and provides cancer information and support.

American Cancer Society

The society provides programs and services, and raises funds for research and support programs. Find information about cancer, treatments and research, and resources for support.

Beyond the Cure

This is a college scholarship program of The National Children’s Cancer Society.

Cancer.Net

Get oncologist-approved information about cancer and types of cancer from the American Society of Clinical Oncology.

CHILD Cancer Fund

This nonprofit organization assists children and their families through the challenges of a childhood cancer diagnosis and treatment.

Children’s Oncology Group (COG)

The Children’s Oncology Group is a clinical trials group supported by the National Cancer Institute (NCI), and the world’s largest organization devoted exclusively to pediatric cancer research. The site provides important information for children and their families from the time of diagnosis, through treatment and following cure.

The Children's Oncology Group Family Handbook 2nd Edition (PDF)

This book provides families with reliable information about treatment, support and follow-up care for children and young people with cancer.

CureSearch for Children's Cancer

This group funds and supports targeted and innovative children's cancer research, and provides resources and education.

LIVESTRONG Foundation

This site provides support to guide people through the cancer experience, and brings people together to fight cancer.

National Children’s Cancer Society

The society offers financial, emotional and educational resources for those in need at every stage of cancer illness and recovery.

National Institutes of Health

The institute provides a vast amount of information on diseases, treatments and research, including the informative site, Medline Plus.

The National Cancer Institute

The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), and is the Federal Government's principal agency for cancer research and training. On this site, visitors can learn more about cancer, the types of cancer, and get cancer-related information.

 
Blood Disorders (General)
American Society of Hematology

The world's largest professional society working to conquer blood diseases offers resources (videos and information) for patients and their families about common blood diseases, such as anemia, bleeding and clotting disorders, and blood cancers.

National Heart, Lung, and Blood Institute

The institute is part of the Department of Health and Human Services, and promotes the research, prevention and treatment of heart, lung and blood diseases.

Platelet Disorder Support Association

The Platelet Disorder Support Association is dedicated to enhancing the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through education, advocacy, research and support. 

 
Blood & Bone Marrow
Blood & Marrow Transplant Information Network

This site provides information and support for patients and families before, during and after transplant.

The Bone Marrow Foundation

Find information on financial assistance and resources to bone marrow/stem cell transplant patients and their families.

Center for International Blood & Marrow Transplant Research (CIBMTR)

The center disseminates information about blood and bone marrow transplant research.

National Marrow Donor Program

The site contains info about marrow and cord blood donation and transplantation, and has information on leukemia and lymphoma.

National Bone Marrow Transplant Link

The organization helps patients, caregivers and families cope with the social and emotional challenges of bone marrow/stem cell transplantation, from diagnosis through survivorship. They provide information and personalized support services.

 
Brain Tumors
Children’s Brain Tumor Foundation

The foundation seeks to improve the treatment, quality of life and long-term outlook for children with brain and spinal cord tumors through research, support, education and advocacy to families and survivors.

Pediatric Brain Tumor Foundation

The foundation works to eliminate the challenges of childhood brain tumors, and maintains info on cancers, resources and research.

 
Diamond Blackfan Anemia
Diamond Blackfan Anemia Foundation

Find information and resources for patients, families and research about this blood disorder.

 
G6PD Deficiency (Glucose-6-Phosphate Dehydrogenase)
G6PD Deficiency Support

This online support group and information center offers resources about this inherited condition in which the body doesn't have enough of the enzyme glucose-6-phosphate dehydrogenase (or “G6PD”), as well as related topics such as nutritional concerns and the potential effects on other health issues. 

 
Hemophilia
National Hemophilia Foundation

This is the leading national nonprofit organization dedicated to finding better treatments and cures for inheritable bleeding disorders and preventing the complications of these disorders through education, advocacy and research.

 
Idiopathic Thrombocytopenic Purpura (ITP)
Platelet Disorder Support Association

The Platelet Disorder Support Association is dedicated to enhancing the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through education, advocacy, research and support. 

 
Leukemia & Lymphoma
Leukemia & Lymphoma Society

The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health agency dedicated to blood cancer. The site provides information and support for patients with blood cancers. 

 
Retinoblastoma
Retinoblastoma International

This site provides online information to parents, family, friends as well as medical education and hands-on training in the management of retinoblastoma to health care professionals.  

 
Sickle Cell Disease
Hope and Destiny: The Patient and Parent’s Guide to Sickle Cell Disease and Sickle Cell Trait

This informative guide is given to parents of children with sickle cell disease.

Nemours’ Eating Well With Sickle Cell

This cookbook helps kids with sickle cell eat for their condition to achieve better nutrition and improved energy.

Sickle Cell Disease Association of America

The SCDAA works to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, and promotes the search for a cure.

 
Siblings
SuperSibs!

SuperSibs! is a nonprofit effort, which was recently supported by the Alex’s Lemonade Stand Foundation, to support the siblings of children with cancer.

 
Survivorship
Survivorship Guidelines

Access the Children’s Oncology Group’s guidelines for post-treatment, long-term wellness.

 
Wellness and Wishes
Corporate Angel  Network

This charitable organization helps U.S.-based kids with a cancer diagnosis get access to the best possible treatment by arranging free travel to their treatment facility using empty seats on corporate jets.

LIVESTRONG.COM

This partner site to the LIVESTRONG Foundation provides general health and nutrition information, as well as cancer-specific information.

Make-A-Wish Foundation®

The foundation grants the wishes of children diagnosed with life-threatening medical conditions.

March of Dimes

The March of Dimes funds lifesaving research and programs and works to end premature birth, birth defects and infant mortality.


Camps for Children With Cancer

Learn more about camps for children with cancer and blood disorders, from local and regional offerings to those in other parts of the country.

 
Delaware Valley
Camp Can Do

This weeklong sleepover summer camp in Mt. Gretna, Pa., is free for children ages 8 to 17 currently undergoing cancer treatment or within five years of their last treatment.

Camp No Worries

Held at the YMCA of Burlington and Camden counties in New Jersey, this weeklong sleepover camp is geared toward children with cancer between the ages of 6 and 16 who live in New Jersey.

Camp Sunrise

Sponsored by Johns Hopkins University and located in White Hall, Md. (near Baltimore), this camp is for children who have battled or are currently battling cancer. There’s an overnight summer camp experience for children aged 6 and 18, as well as a day camp for younger children, ages 4 and 5.

Happiness Is Camping

Located on 145 scenic acres of woodland in Hardwick, N.J., this camp is for children with cancer. Campers and siblings ages 6 and 15 years may attend one or all four sessions, based on availability.

Kay’s Camp

Located in Middletown, Del., this weeklong sleepover camp is free and open to children between the ages 5 and 17 with cancer and those in remission.

 
Florida
Camp Boggy Creek

Located in Eustis, Fla., this year-round, free camp works in association with the Hole in the Wall Gang Camp and is open to children with cancer and blood disorders between the ages of 7 and 16, and their siblings. Camp Boggy Creek also holds an annual Family Weekend camp for families of children with cancer.

Camp Spirit Summer Camp

Camp Spirit summer camp is a week-long, medically supervised overnight camp for children with bleeding disorders ages 7-16. For the past 10 years the Hemophilia Foundation of Greater Florida has sponsored a week of camp, partnering with a medically staffed camping facility (Camp Boggy Creek) dedicated to serving the needs of children with chronic illnesses. Campers receive good medical care while having a wonderful camp experience.

Lighthouse Family Retreat

This non-profit organization holds fun family beach weekends and weeklong retreats for children with cancer and their families.

Miracle Camp

Sponsored by the Sacred Heart Health System (which partners with Nemours Children’s Specialty Care, Pensacola), this camp provides opportunities for children and adults with chronic or life-threatening illnesses to enjoy outdoor experiences and renew their spirits. Miracle Camp is located northwest of Pensacola, Fla. on a 40-acre site. 

 
Other States
Camp Māk-A-Dream

Located Missoula, Mont., this cost-free, weeklong camp has programs designed for children, teens and young adults affected by cancer. The camp fosters comfort, friendship, security, achievement and serenity. Camp Māk-A-Dream offers a limited number of travel scholarships to the camp.

Camp Rap-a-Hope

This free, weeklong summer camp in Mobile, Ala., is for children with cancer ages 7 to 17.

Camp NanKeRafe

Sponsored by Dream Day on Cape Cod in Brewster, Mass., this camp is for families of children with life-threatening and/or serious conditions. Each family gets their own small, modest cabin, each with electricity and a small refrigerator. 

Camp Sunshine

Located in South Casco, Maine, this free weeklong sleepover camp for families is designed to provide respite, professional counseling and recreational opportunities to families facing the physical, emotional and financial strain of having a child with a critical illness.

Hole in the Wall Gang Camp

Founded by Paul Newman, and located in Ashford, Conn., these year-round, free, weeklong sleepover camps and special weekends are open to children with cancer or blood disorders between the ages of 7 and 15 and their siblings.

The Imus Ranch

The Imus Ranch is a working cattle ranch for kids with cancer, located in beautiful Ribera, N.M. Since 1998, the ranch has hosted nearly 2,000 kids.

Resources

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Survivor Scholarships

Here’s a list of organizations with cancer-specific scholarship information, with contact info or Web addresses. Please note that some of these organizations provide multiple links for scholarships. We would love to hear feedback about the organizations and websites you visit. Please send comments to oncology@nemours.org.

 
Organizations With Cancer-Specific Scholarship Information
American Cancer Society

Various divisions of the American Cancer Society offer students with a history of cancer a scholarship program to help them achieve their academic goals. For more, phone (800) ACS-2345.

Association of Cancer Online Resources (ACOR)

This link gives an online list of many scholarships.

Care.Commit.Change

CCC is a 501(c)(3) nonprofit organization dedicated to improving the quality of life for young adult cancer survivors by increasing opportunities for college access and success through scholarship guidance and support in pursuing higher education. 

CureSearch

Select “scholarships” on this resources landing page for a scholarship list.

Fastweb

Students searching this free site will have access to more than 1.3 million scholarships.  Updates on scholarship matches are sent via email.

Legacy of Hope

The Stephen T. Marchello Scholarship Foundation is a nonprofit organization that allocates post-secondary scholarship money to survivors of childhood cancer.

The Scholarship Resource Network Express

Scholarship Resource Network Express offers a free search for scholarships with a database of more than 8,000 programs of awards for undergraduate and postgraduate students. The database also includes student loan forgiveness programs for those who have graduated from college and need an alternative for paying.

 
Individual Scholarships
Beyond the Cure

The National Children’s Cancer Society is proud to offer college and vocational scholarships to childhood cancer survivors.

Cameron Siemers Foundation for Hope

This group offers life grants to young adults with life-threatening illnesses, inspiring a new generation of survivors to create a life of hope and possibility. Some possibilities for using the life grant include sponsoring an event that'll make a profound difference in your community, starting a charitable foundation to address an issue close to your heart, and launching a business that will impact the lives of thousands of people.

Cancer for College

Cancer For College awards scholarships to current and former cancer patients who are currently attending a four-year accredited university, junior college or graduate school.

Cancer Survivors Fund

This fund is a non-profit organization whose mission is to provide college scholarships and medical expense assistance for the benefit of persons who are diagnosed with cancer, receiving treatment for cancer or are in remission.

Jackie Spellman Scholarship Foundation

The Jackie Spellman Scholarship Foundation awards annual scholarships to help improve the quality of life for those affected by leukemia or lymphoma. The focus of the scholarship is on supporting secondary education (undergraduate and graduate studies) for leukemia or lymphoma patients and/or children, siblings or parents of leukemia or lymphoma patients.

Matthew Debono Scholarship Fund

Learn about this $1,000 college scholarship for aplastic anemia/bone marrow transplant survivors.

Michael A. Hunter Memorial Scholarship

The Michael A. Hunter Memorial Scholarship Fund awards annual scholarships to help improve the quality of life for those affected by leukemia or lymphoma. The focus of the scholarship is on supporting secondary education for leukemia or lymphoma patients and/or children of non-surviving leukemia or lymphoma patients

The National Collegiate Cancer Foundation

The National Collegiate Cancer Foundation offers a scholarship program to provide financial support to college students whose lives have been impacted by cancer and are seeking to continue their higher education while still undergoing treatment. The $1,000 competitive awards are one-time awards and nonrenewable.

No Wooden Nickels

Scholarships are through the Felton A. Childress, Sr. and Rhoda A. Wilson scholarship funds, and provide assistance to students of cancer families to help with the costs of beginning or continuing their education. Both funds are open to students of families or individuals who have applied to and approved in the MedStart-5 program.

Patient Advocate Foundation

These college scholarships are intended to provide support to a person seeking to start or complete a course of study that’s been interrupted or delayed by a diagnosis of cancer or other critical or life-threatening disease.

Pacific West Cancer Fund

The Pacific West Cancer Fund grants scholarships to collegiate cancer survivors throughout the United States. You can also contact the financial aid office at any college or university and they should be able to provide you information about this scholarship.

The SAMFund

This fund helps young adult cancer survivors with a successful transition into their post-treatment life by providing financial support through grants and scholarships. Survivors are empowered to achieve their educational, professional and personal goals.

SuperSibs Scholarship for Siblings

SuperSibs awards five $5,000 scholarships each year. To qualify, an applicant must be a sibling of a child with cancer, live in the United States, be a graduating high school senior, and must be attending an accredited educational institution.

The Simon Cancer Foundation

The Simon Cancer Foundation was created in honor of Harvey Simon and his struggle with cancer, and gives financial assistance to cancer patients through scholarships and charitable donations to camps and educational programs.

The Ulman Fund

The Ulman Cancer Fund for Young Adults provides support for the financial needs of college students who are battling or have overcome cancer.

Working Against Cancer

Working Against Cancer’s Survival Scholarship Program assists young adult cancer survivors (ages 30 years and under) by providing awards toward academic and vocational education. These scholarships will encourage each recipient to engage in a trade, an art or some other form of higher education. Candidates must be a cancer survivor or recently diagnosed with cancer, but do not need to be currently receiving treatment to qualify.

 
For Brain Tumor Survivors
Pediatric Brain Tumor Foundation of the United States (PBTFUS)

PBTFUS offers college scholarships for brain tumor survivors. 

 
Financial Aid for Students With Disabilities
Financial Aid for Students With Disabilities Resource Directory

Learn about sources of aid for students with disabilities.

Anne Ford and Allegra Ford Thomas Scholarship

Established in June 2001 for college-bound students with learning disabilities by the National Center for Learning Disabilities, this scholarship is an annual gift of $10,000 to a promising high school senior with learning disabilities who plans to pursue a university degree. Although not cancer-survivor specific, survivors with learning disabilities will be interested in applying for this scholarship.

25 Great Scholarships for Cancer Survivors

Learn more about scholarships for cancer survivors, including some for students with disabilities.

 
For Maryland Residents
Maryland Community Cancer Scholarship

The Maryland Community Cancer Scholarship Award recognizes the dreams, challenges and triumphs of young adults affected by cancer. Founded in Columbia, Md., in 1997, the award encourages Maryland residents impacted by cancer to pursue higher education.  


Childhood Cancer Podcasts

This Week in Pediatric Oncology

Hear Dr. Andy Kolb, director of the Nemours Center for Cancer and Blood Disorders, and other experts discuss childhood cancer research.
Find the Series of Podcasts »

View Videos

See how our comprehensive care and research impact the children and families we treat: 

Patient Stories

Read about the journeys of patients and their families who've been there.
Read Their Stories »