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Neuroblastoma

Nemours Center for Cancer and Blood Disorders in the Delaware Valley and Florida

Locations & Doctors Who Treat Neuroblastoma

 
Delaware

Wilmington

Nemours/Alfred I. duPont Hospital for Children

1600 Rockland Road
Wilmington, DE 19803
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For Appointments: (800) 416-4441

Doctors Who Treat Neuroblastoma at This Location

 
New Jersey

Voorhees

Nemours duPont Pediatrics, Voorhees

443 Laurel Oak Road
Therapy Services (Suite 200)
Pediatric Specialty Services (Suite 230)
Voorhees, NJ 08043
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For Appointments: (800) 416-4441

Hours: Fourth Friday each month; 9 a.m. to 4 p.m.
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Doctors Who Treat Neuroblastoma at This Location

 
Pennsylvania

Philadelphia

Nemours duPont Pediatrics, Philadelphia

833 Chestnut St. E., Suite 300
Philadelphia, PA 19107
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For Appointments: (800) 416-4441

Hours: Monday–Friday: 8 a.m. to 5 p.m.
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Doctors Who Treat Neuroblastoma at This Location


Lancaster

Nemours duPont Pediatrics, Lancaster

2128 Embassy Drive, Suite A
Lancaster, PA 17603
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For Appointments: (800) 416-4441

Hours: Hours vary; please call
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Doctors Who Treat Neuroblastoma at This Location

 
Florida

Orlando

Nemours Children's Hospital, Orlando

13535 Nemours Parkway
Orlando, FL 32827
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For Appointments: (407) 650-7715

Doctors Who Treat Neuroblastoma at This Location


Nemours Children's Specialty Care, Orlando

1717 S. Orange Ave.
Orlando, FL 32806
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For Appointments: (407) 650-7715

Hours: Monday–Friday, 8 a.m. to 5 p.m.
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Doctors Who Treat Neuroblastoma at This Location

http://findaprovider.nemours.org/search?xmlfeed=true&locationName=Nemours+Children%27s+Specialty+Care%2C+Orlando&expertise=Neuroblastoma
To find out which providers serve this location, please call the main number above.

Melbourne

Nemours Children's Specialty Care, Melbourne

1270 N. Wickham Road
Melbourne, FL 32935
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For Appointments: (407) 650-7715

Hours: Monday–Friday: 8 a.m. to 5 p.m.
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Doctors Who Treat Neuroblastoma at This Location

To find out which providers serve this location, please call the main number above.

Jacksonville

Nemours Children's Specialty Care, Jacksonville

807 Children’s Way
Jacksonville, FL 32207
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For Appointments: (904) 697-3789

Hours: Monday–Friday, 8 a.m. to 5 p.m.
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Doctors Who Treat Neuroblastoma at This Location


Pensacola

Nemours Children's Specialty Care, Pensacola

5153 N. Ninth Ave.
Pensacola, FL 32504
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For Appointments: (850) 505-4790

Hours: Monday–Friday, 8 a.m. to 5 p.m. (Central Time)
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Doctors Who Treat Neuroblastoma at This Location

About Pediatric Neuroblastoma

Ayla was diagnosed with neuroblastoma as a newborn.

Neuroblastoma is a type of childhood cancer that affects the sympathetic nervous system (the network of nerves that carries messages from the brain throughout the body) and is most often diagnosed in infancy and in children under 5 years old. Neuroblastoma is a solid tumor that begins in immature neuroblasts (or nerve cells).

Our renowned oncologists, hematologists and researchers at the Nemours Center for Cancer and Blood Disorders (a Children’s Oncology Group member institution) work together to diagnose and treat children with newly diagnosed and recurring neuroblastoma, including the most progressive and complex cases.


Types of Childhood Neuroblastoma We Treat

Every year, more than 700 new cases of childhood neuroblastoma are diagnosed in the United States. While it isn’t clear what causes the disease, studies suggest certain genetic changes may contribute, some possibly inherited.

Despite the name, neuroblastoma is not a type of brain cancer. Most commonly found in the abdnomen near or in the adrenal glands (responsible for making horomones) above the kidney, childhood neuroblastoma can also arise in the neck, chest and near the spine. It often metastasizes (spreads) to the bones an bone marrow.

Diagnosing Neuroblastoma in Children

Signs & Symptoms of Neuroblastoma

Symptoms of neuroblastoma vary widely depending on the tumor location, size and if it has metastasized. Depending on where the tumor is in the body, neuroblastoma symptoms might include:

  • swelling in the abdomen and/or legs
  • droopy eyelids
  • a small pupil
  • difficulty moving arms and legs

Testing & Evaluations

If your child may have neuroblastoma, Nemours’ experienced cancer care team works together to appropriately diagnose and stage the cancer through a variety of tests and procedures, including:

  • thorough physical examination and medical history
  • blood tests
  • urine test
  • medical imaging (X-ray, CT or “CAT” scan, MRI, PET scan, MIBG scan, bone scan, ultrasound)
  • diagnostic biopsy
  • bone marrow biopsy and aspiration

Treating & Caring for Children With Neuroblastoma

Your Child's Comprehensive Neuroblastoma Care Team

If we discover neuroblastoma, our multidisciplinary (collaborative) team plans the most effective treatment personalized to your child’s needs.

In addition to an experienced, compassionate cancer coordinator (a nurse who provides your child and family support, education and care coordination), Nemours’ pediatric cancer teams include:

  • oncologists (cancer specialists)
  • hematologists (specialists in blood disorders)
  • surgeons (general surgeons and specialized surgeons)
  • pathologists (diagnose diseases by examining body tissues, fluids and organs)
  • geneticists (perform genetic counseling and testing)
  • radiologists (diagnose diseases through medical imaging)
  • radiation oncologists (specialists in radiation therapy treatment)
  • interventional radiologists (perform image-guided minimally-invasive procedures)
  • behavioral health specialists (psychologists and psychiatrists)
  • registered dietitians (nutrition specialists)
  • oncology nurses (registered nurses specializing in cancer) 

Your care team is here to provide your family with ongoing support and follow-up. We always include you in the entire process, because we truly believe in the healing power of families and that you know your child best.

Learn More About Nemours’ Pediatric Cancer Care Teams in Your Area »


Innovative Childhood Bone Tumors Treatment at Nemours

We offer advanced and innovative childhood cancer treatments and approaches (called “modalities”) often not available at other children’s hospitals. Because neuroblastoma treatment varies depending the child’s age and tumor stage, we may use one or a combination of modalities that include:

For your child’s overall health and wellness, we also prescribe:

Learn More About Pediatric Cancer Treatment at Nemours »

Additional Resources & Support for Families

 
Nemours Support Services

Dealing with childhood cancer is difficult for your child and family. But you don’t have to go through it alone. Nemours provides an array of support services that begin on the very first day we meet, and continues throughout your journey because at Nemours, your child and family become part of our own.

Our services include: 
  • patient and family education
  • social work
  • mental health counseling
  • Child Life services
  • survivorship programs
  • support groups
 
Trusted National Neuroblastoma Resources

American Childhood Cancer Organization — Neuroblastoma: This site provides a wealth of information and support resources for children and teens.

Children’s Neuroblastoma Cancer Foundation: This resource provides information to families about neuroblastoma research, education, awareness and advocacy.

National Cancer Institute — Neuroblastoma: This website offers information about neuroblastoma treatments, drugs, clinical trials and publications from the National Institute of Health.

 
Blood & Bone Marrow Resources

Blood & Marrow Transplant Information Network: BMTinfonet.org provides information and support for patients and families before, during and after transplant.

The Bone Marrow Foundation: They offer information on financial assistance and resources to bone marrow/stem cell transplant patients and their families. 

Center for International Blood & Marrow Transplant Research (CIBMTR): The center disseminates information on blood and marrow transplant research.

National Marrow Donor Program: The site contains info about marrow and cord blood donation and transplantation.

National Bone Marrow Transplant Link: The organization helps patients, caregivers and families cope with the social and emotional challenges of bone marrow/stem cell transplantation, from diagnosis through survivorship. They provide information and personalized support services.

Appointments & Referrals

Delaware, Pennsylvania & New Jersey

(800) 416-4441


Florida
Jacksonville Area

(904) 697-3789

Orlando Area

(407) 650-7715

Pensacola Area

(850) 505-4790

Learn About Our Locations »


International
Patients

+1 (302) 651-4993

Our Goal: A Better Tomorrow

At the Nemours Center for Cancer and Blood Disorders, we strive to maximize every child's quality of life — today and for many tomorrows. Watch Video »

Top-Notch Cancer Research

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