Pediatric palliative care focuses on relieving pain and enhancing the quality of life of children with severe, life-limiting, or life-threatening conditions. At Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., our pediatric palliative care team uses a variety of therapies to help these children feel better (physically and emotionally) — no matter what kind of condition or prognosis they face.
But it’s more than just treatment — our pediatric palliative care team provides a compassionate, supportive and organized approach to care that’s geared toward helping your child’s whole body, mind and spirit. And caring for a child with a medically-complex or chronic illness means caring for your whole family — offering support and comfort for your child, your family and your journey.
At every step, we involve you — the family — because no one knows your child better or understands more about what you child and family are going through than you do.
“A pediatric palliative care program is necessary for the quality of life for a critically ill child and their family. It is imperative to minimize the child's pain, while guiding and nurturing the family during this most difficult time of their lives. An effective palliative care program will reach beyond the walls of the hospital and help sustain the family for years to come."
— Diana, a mother, who (after the loss of her child)
championed the effort for the creation of a pediatric palliative care program at duPont Hospital for Children
“We love our team at Nemours and we feel loved by them … Everyone takes care of Lucy first then takes care of her medical needs. It’s made a huge difference for our family.”
— Nicole, mother of Lucy, age 3,
who has mitochondrial disease (a chronic genetic disorder)