Spina Bifida

nurse caring for infant

Spina bifida is a congenital condition (meaning it is present at birth) that involves the incomplete development of the spinal cord or its coverings. Nemours’ spina bifida experts are uniquely prepared to treat the medical challenges of the condition while giving children the tools they need to grow into active, independent adults.

 
Learn More About Spina Bifida

The term spina bifida comes from Latin and literally means "split" or "open" spine. Though the cause is unknown, the spine’s failure to close properly happens during the first month of pregnancy.  

A child born with spina bifida (also called myelomeningocele), or the related disorder lipomeningocele (when the “open” spine is covered over by an area of fatty tissue), often has some sort of damage to the nerves of the spinal cord. The extent of this damage can vary widely, but may include paralysis in the lower extremities and loss of bowel and bladder control. Children with spina bifida may also have hydrocephalus (fluid on the brain), and some may also experience attention deficit hyperactivity disorder or other learning difficulties.

Jacksonville

Nemours Children's Clinic, Jacksonville

807 Children’s Way
Jacksonville, FL 32207
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For Appointments: (904) 697-3600

Hours: Monday–Friday, 8 a.m. to 5 p.m.
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What to Bring
  • photo ID
  • medical and pharmacy insurance cards
  • preferred pharmacy name and phone number
  • names and dosage of all medications, including over-the-counter medication, your child is currently taking
  • guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
New Patients

Bring these forms for your first appointment:

Returning Patients
 
Forms & Resources
New Patient Forms
Returning Patient Forms
Resources for Patients & Families

At Nemours Children's Clinic, Jacksonville, we partner with the University of Florida and Wolfson Children’s Hospital to offer a comprehensive Spina Bifida Program. Your child will have access to a team of medical specialists, including a nurse case manager who can coordinate outpatient care and family education.

 

The team follows up with your primary care physician, school system, and other participants in your child’s care.

We continue to evaluate your child at regular intervals to identify current and potential treatment problems and correct them as quickly as possible.