The goal of our Down Syndrome Clinic is to maximize your child’s potential by providing coordinated care from a variety of medical and therapeutic specialists all in one place. Down syndrome experts work together to assess and prevent medical problems, provide resources and emotional support, and encourage opportunities for down syndrome families to interact with one another.
Down syndrome is the most common chromosomal abnormality, occurring in approximately one out of every 800 births. Despite sharing some physical similarities, as well as common medical and developmental problems, each child with Down syndrome is a unique individual with his or her own health and developmental potential.
Phone: (302) 651-5916
- photo ID
- medical and pharmacy insurance cards
- preferred pharmacy name and phone number
- names and dosage of all medications, including over-the-counter medication, your child is currently taking
- guardianship and custody papers, if a legal guardian rather than a parent accompanies your child
- Patient Presents Without Legal Guardian (PDF)
English | Spanish
Note: A parent or legal guardian must be with a child for a first visit.
Resources for Patients & Families
At Nemours/Alfred I. duPont Hospital for Children we provide coordinated medical, social, and developmental care for children with Down syndrome. Our clinic also features a representative from the Down Syndrome Association of Delaware who is available to serve as a resource for families and describe the programs and support available in the community and through their organization.
What You Can Expect During A Visit To Nemours Down Syndrome Clinic
Down Syndrome Clinic visits are comprehensive and may last an hour or more. At each visit, your child will be evaluated by a medical geneticist and a physician assistant, and any appropriate tests and referrals will be ordered. If a medical problem is found, we can coordinate more specialized care with a Nemours subspecialist. A developmental/behavioral medicine expert will also be on hand to discuss specific concerns, including autism.
Because physical, occupational, and speech therapy are critical for children with Down syndrome, your child’s therapy plans will be reviewed at your visit as well.
After your child’s first visit to the Down Syndrome Clinic, we anticipate follow-up visits at six-month intervals until age three. At that point, the visits generally become annual. Of course, if you have any questions or concerns any time in between, please don’t hesitate to contact us.