Offered by: Nemours Children's
Location: Delaware Valley, Jacksonville, Fla., and Orlando
Using Patient Data to Transform Care and Improve Outcomes for Children, Adolescents and Young Adults
What is the trial about?
ImproveCareNow is a network of thousands of doctors, health care professionals and patients who are working together to improve the care and health of children, adolescents and young adults with Crohn’s disease and ulcerative colitis.
Who can participate?
Any age and diagnosed with Inflammatory Bowel Disease (Crohn's disease, ulcerative colitis or indeterminate colitis). If diagnosed with ulcerative colitis, must not have had a colectomy.
What is involved?
All of the doctors in ImproveCareNow contribute specific information about their IBD patients to a confidential secure database. The information that's shared includes information about your health and medical status (height, weight, disease location and type), medications, treatment response, as well as any information that you provide to your doctor about your daily experience with IBD and your overall well-being. These pieces of information allow doctors to track your disease over time, and to provide the best care for your individual needs. If you agree, researchers may continue to access your information for research purposes until you decide that you no longer want to have your information used for research.