Offered by: Nemours Children's
Location: Delaware Valley
Scoliosis Outcomes Database Registry
The purpose of this study is to develop a Database Registry containing standardized information from a large prospective, multi-center series of patients who undergo surgical correction for idiopathic scoliosis, as well as a group of patients who have not undergone surgical correction.
All study related evaluations will be performed during routine care visits with your doctor. Study-related evaluations will require an additional 20-30 minutes to complete during routine care visits. Patients are expected to come back for follow-up visits with their surgeon at approximately one month after surgery, six months, one year, two years and five years. These are the normal clinical visits for this condition.
The researchers will be collecting the following information about your surgery:
The information from the routine tests listed below will be used for the study. The trunk flexibility evaluation and the Body Image Disturbance Questionnaire-Scoliosis version (BIDQ-S) are study-related and are not a part of the patient's routine care. The following procedures are routine during the visit with the physician:
First Erect Visit: (first clinic visit after spine surgery):
6-Month Post-Op Visit:
1-Year Post-Op Visit:
2-Year Post-Op Visit:
5-, 10-, 15-, 20-, and 25-Year Post-Op Visit:
Nonoperative patients require only radiographic data, SRS outcomes questionnaire and BIDQ-S questionnaire.
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