Policy & Advocacy

• Pediatric Mental, Emotional and Behavioral Health: Federal Policy Recommendations for Congress and the Executive Branch (PDF)
• Caring for the Whole Child: A New Way to Finance Initiatives to Improve Children's Health and Well-Being (PDF)
• Pediatric Value-Based Care and Social Drivers: Emerging Examples (PDF)
• Executive Summary – Pediatric Value-Based Care and Social Drivers (PDF)
• Pediatric Value-Based Care and Social Drivers: Recommendations (PDF)
• Spurring Innovation: The Role of Child Health Policy (PDF)
• Roadmap for Action: Advancing the Adoption of Telehealth in Child Care Centers and Schools to Promote Children’s Health and Well-Being (PDF)
• Defining an Accountable Community for Health for Children and Families (PDF)
• Case Study — Nationwide Children’s Hospital: An Accountable Care Organization Going Upstream to Address Population Health (PDF)
• Accountable Communities for Health for Children and Families: Approaches for Catalyzing and Accelerating Success (PDF)
• Data Sharing Across Child-Serving Sectors: Key Lessons and Resources (PDF)

• Reduce Childhood Poverty to Build Back Better for the Next Generation
• Pediatric Mental, Emotional and Behavioral Health: Federal Policy Recommendations for Congress and the Executive Branch
  
• Building Back Healthier: Improving Food, Nutrition, and Physical Activity Could Transform the Early Care and Education System
  
• We Must Collect Vaccine Data to Protect Future Generations
• Delaware's kids can get the services they need — if Biden leads. Here's why
  
• Creating an Agenda For Children's Resiliency And Health
  
• Caring for Kids in the COVID-19 Era 
• Giving Infants a Stronger Start 
• COVID-19 and Telehealth Revolution Policy Bariers — Standing in the Way of Transforming Care 
• Seeking State’s Help for Florida’s Sickest Children 
• Supporting Patient-Centered Research 
• Nemours Children’s CEO Calls for CMS to Push Smarter Strategies for Children’s Health 
• Spurring Innovation: The Role of Child Health Policy 
• Realizing the Promise of Telehealth for Children 
• Precision Medicine Saves Lives: One Family’s Story 
• What’s the Big Deal About Precision Medicine 
• Supporting Parents to Help Children Thrive 

2021

• NIH Research Request For Information to Advance and Strengthen Racial Equity, Diversity, and Inclusion in Biomedical Research and Advance Health Disparities and Health Equity (PDF)

Nemours encouraged the Administration to utilize big data, prioritize reducing health disparities in the pediatric population, and improve diversity and inclusion in research.

• OMB Equity RFI (PDF)

Nemours encouraged the Office of Management and Budget (OMB) to reduce disparities through the creation of a White House Office on Children and Youth, and a federal Children’s Cabinet.

• NIH Machine Learning and Artificial Intelligence RFI (PDF)

Nemours encouraged the National Institutes of Health (NIH) to reduce disparities through the use of Artificial Intelligence and Machine Learning with safeguards to protect personal health information.

2020

• MCHB Strategic Plan Request for Information (PDF)

Nemours encouraged the Administration to address health inequities in maternal and child health outcomes by focusing on social determinants of health as the Maternal and Child Health Bureau (MCHB) finalizes its strategic plan.

• NIH-Wide Strategic Plan for COVID-19 Research Request for Information (PDF)

Nemours urged the Administration to focus on the needs of the pediatric population as it examines funding strategies at the National Institutes of Health (NIH) to respond to the COVID-19 pandemic.

2019

• Health Insurance Portability and Accountability Act (HIPAA) Request for Information (PDF)

Nemours encouraged the Department of Health and Human Services (HHS) to create a more consistent compliance landscape and to provide further guidance on the interdependencies across state and federal privacy regulations.

2018

• Public Charge Proposed Rule Comments (PDF)

Nemours responded to the Administration’s proposal that could impact Medicaid coverage and nutrition benefits for children. Nemours’ comments focused on the potential impact on the health, development, and well-being of children and families.

• Managed Care Organization (MCO) Proposed Rule (PDF)

Nemours encouraged the Administration to recognize the unique health care needs of the pediatric population and to consider access to pediatric care as essential to children’s health as the Centers for Medicare & Medicaid Services (CMS) finalizes its MCO rule. 

2017

• Center for Medicare & Medicaid Innovation (CMMI) Request for Information Comment Letter (PDF)

Nemours encouraged CMMI to focus on pediatric test models. 

• Centers for Medicare & Medicaid Services (CMS) Medicare Hospital Inpatient Prospective Payment System (IPPS) Request for Information Comment Letter (PDF)

Nemours responded with recommendations for CMS to consider areas of payment system redesign and health information exchange as CMS revises its Medicare payment policies.

2021

• Recommendations for the Build Back Better Budget Reconciliation Package (PDF)
• COVID-19 Priorities for the 117th Congress (PDF)

2020

• Key Recommendations to the Senate Health, Education, Labor and Pensions (HELP) Committee for the Next Pandemic (PDF)

2019

• Recommendations to the Congressional Telehealth Caucus to Expand Telehealth and Remote Patient Monitoring Services (PDF)
  
• Removing Barriers to Care for Children with Medical Complexity via the ACE Kids Act (PDF)

2018

• Addressing Potential Changes to the Supplemental Nutrition Assistance Program (SNAP) in the Farm Bill (PDF)
  
• Advocating for Neonatal Abstinence Syndrome (NAS) and Pediatric Telehealth Provisions in the SUPPORT for Patients and Communities Act (PDF)
  
• Key Recommendations to the Senate Finance Committee for Neonatal Abstinence Syndrome (NAS) (PDF)