Offered by: Nemours Children's
Location: Delaware Valley
Primordial Registry at Nemours Children's Hospital, Delaware
The goal of this registry is to collect information on individuals with Microcephalic Osteodysplastic Primordial Dwarfism Type II (also called MOPDII) and other forms of microcephalic primordial dwarfism.
Individuals with MOPDII, MOPDI/III, Meier-Gorlin syndrome, and unclassified or closely related forms of microcephalic primordial dwarfism as diagnosed by a physician are eligible for this registry.
This study involves only the collection and storage of data extracted from the medical record. There are no special procedures, visits, or expectations of you as a result of participation in this registry. You will not be asked to have any specific testing for the sole purposes of research.
Trial Name: Primordial Registry at Nemours Children’s Hospital, Delaware
IRB#: 83142-36
Learn more about clinical trials and get answers to questions you might have.
Go to FAQs View All Clinical TrialsNemours has a number of service regions. Selecting your region will help us show you the right contact information and the most relevant content for you.