Shortly after receiving Kaii’s diagnosis, Ebonee enrolled in HEARTPrep, a support program being piloted through a research study at Nemours Children’s Hospital, Delaware. HEARTPrep is delivered through the Nemours app and aims to help expectant parents emotionally prepare and cope when they learn their baby will be born with CHD.
“Parents, like Ebonee, who enroll in the HEARTPrep study, have access to tips and tools that may facilitate understanding and coping. These include video meetings with a psychologist to discuss how they and other family members are dealing with the situation,” said Erica Sood, PhD, Pediatric Psychologist in the Cardiac Center at Nemours Children’s Hospital, Delaware, and Director of the Cardiac Learning and Early Development (LEAD) Program.
Ebonee participated in HEARTPrep until she gave birth to Kaii via C-section at 34 weeks.
Following his birth, Kaii was immediately airlifted to Nemours Children’s Hospital, Delaware, where the entire family was supported by a network of experts. This included a team of clinical psychologists and social workers who helped Ebonee seek support for her post-partum depression and manage the emotional toll of Kaii’s diagnosis.