Medically Complex Coordination Clinic

Expert Care for Children With Complex Medical Problems

Our Medically Complex Coordination Clinic helps families and pediatricians coordinate care for children with complex medical conditions. This means a dedicated team of Nemours Children's pediatric experts comes together to create a roadmap of care for your child.

The roadmap is a plan that you and your child’s pediatrician can follow to help your child get the best care possible. It will also help your family manage care costs and coordinate appointments — we’ll even help you find resources and support.

Conditions Medically Complex Care Coordination Can Help

Complex medical conditions we can help you manage include:

• Severe cerebral palsy
• Complex cardiopulmonary diseases
• Genetic syndromes that involve more than one area
• Neuromuscular disorders such as spinal muscular atrophy (SMA)
• Problems requiring advanced home care equipment 
• Rare diseases (especially when community support is limited or unavailable)
• Life-limiting conditions

Services We Offer Kids With Complex Medical Needs

Dedicated Nemours experts help your family and your child’s health care providers with:

• Personalized care plans
• Specialty care prioritization
• Focus on improving quality of life
• Customized emergency information forms

The Medically Complex Coordination Clinic is also a great benefit if your child uses assistive and adaptive medical technology such as:

• Tracheostomy tube — a small hole that surgeons make through the front of the neck and into the windpipe (trachea) to help with breathing
• Gastrostomy tube — when feeding is given through a temporary or permanent opening in the stomach
• Diaper use — beyond the typical toilet training age
• Surgical ostomies — a temporary or permanent opening made to the intestine or other part of the body
• Total parenteral nutrition, or TPN — a way to deliver nutrients through a vein for those who can’t process food by mouth
• Vagal nerve stimulator — a device implanted under the skin in the chest to prevent seizures by sending mild pulses of electrical energy along the vagus nerve to the brain
• Baclofen pumps — small devices implanted under the skin to deliver muscle relaxant medicine to decrease severe muscle contractions 
• Ventilator, home oxygen or other mechanical ventilation assistance device — like CPAP or BiPAP
• Ventriculoperitoneal shunt — a medical device that drains excess fluid in the brain

Coordinated, Expert Care Planning

The Medically Complex Coordination Clinic is led by a pediatrician who has a vast amount of experience managing the special needs of children with complicated health issues. 

Our nurse practitioner is a seasoned expert who has dual certification in neonatology and pediatrics. Other team members include a health and wellness coach to help maximize your child's well-being, and registered dietitians specifically experienced with complex medical conditions.