MyNemours Sign-InOur Medically Complex Coordination Clinic helps families and pediatricians coordinate care for children with complex medical conditions. This means a dedicated team of Nemours pediatric experts comes together to create a roadmap of care for your child. This roadmap is a plan that you and your child’s pediatrician can follow to help your child get the best care possible. It will also help your family manage care costs and coordinate appointments — we’ll even help you discover resources and support.
Dedicated Nemours experts help your family and your child’s health care providers with:
- personalized, family- and patient-centered care plans for you and your child’s pediatrician
- prioritizing specialty care
- a focus on improving quality of life
- customized emergency information forms
Complex conditions we can help you manage include:
- severe cerebral palsy
- complex cardiopulmonary diseases
- genetic syndromes with multisystem involvement
- neurodegenerative diseases
- problems requiring advanced home care equipment
- rare diseases (especially when community support is limited or unavailable)
- life-limiting conditions
The Medically Complex Coordination Clinic is a great benefit if your child uses assistive and adaptive medical technology such as:
- tracheotomy feeding tubes
- diapers (beyond the typical toilet training age)
- surgical ostomies
- total parenteral nutrition (TPN)
- vagal nerve stimulator
- baclofen pumps
- ventilator, home oxygen or other mechanical ventilation assistance device (CPAP, BiPAP)
- ventriculoperitoneal shunt