Medically Complex Coordination Clinic

Our Medically Complex Coordination Clinic helps families and pediatricians coordinate care for children with complex medical conditions. This means a dedicated team of Nemours pediatric experts comes together to create a roadmap of care for your child. This roadmap is a plan that you and your child’s pediatrician can follow to help your child get the best care possible. It will also help your family manage care costs and coordinate appointments — we’ll even help you discover resources and support.

 
How It Works

Dedicated Nemours experts help your family and your child’s health care providers with:

  • personalized, family- and patient-centered care plans for you and your child’s pediatrician
  • prioritizing specialty care 
  • a focus on improving quality of life
  • customized emergency information forms 

Complex conditions we can help you manage include:

  • severe cerebral palsy
  • complex cardiopulmonary diseases
  • genetic syndromes with multisystem involvement
  • neurodegenerative diseases
  • problems requiring advanced home care equipment 
  • rare diseases (especially when community support is limited or unavailable)
  • life-limiting conditions

The Medically Complex Coordination Clinic is a great benefit if your child uses assistive and adaptive medical technology such as:

  • tracheotomy feeding tubes
  • diapers (beyond the typical toilet training age)
  • surgical ostomies 
  • total parenteral nutrition (TPN)
  • vagal nerve stimulator
  • baclofen pumps
  • ventilator, home oxygen or other mechanical ventilation assistance device (CPAP, BiPAP)
  • ventriculoperitoneal shunt