Cystic fibrosis (CF) is an inherited disease that affects the lungs and digestive system. Kids who have the condition are more likely get to lung infections. That's because it causes the lungs to produce thick, sticky mucus that clogs the airways. CF also affects the intestines and how the body digests and absorbs food. At Nemours, our CF care teams give children from birth to age 18 treatment and support at our certified CF Care Centers. We also offer the latest clinical trials for new medicines and therapies to help kids breathe easier and live better.
Learn About Cystic Fibrosis
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Cystic Fibrosis
Nationally Accredited CF Care
Cystic Fibrosis Services We Offer
Our teams of CF experts work together to support your child and family. We’re here to help you learn how to manage the condition and cystic fibrosis symptoms on a daily basis. Our CF services, which may vary depending on the condition and location, may include:
- respiratory care to protect kids from infections that can affect their lung function
- state-of-the-art diagnostic testing for newborns and kids
- cystic fibrosis genetic expertise, including a certified genetic counselor who offers counseling and support
- education and emotional support — teaching families what to do in emergencies, providing education and the latest information about the disease, and hosting support groups with speakers
- full, coordinated care from pulmonologists, geneticists, gastroenterologists, CF clinical nurse specialists, registered dietitians, respiratory therapists, physical therapists and social workers
- nutritional support designed by CF-registered dieticians (to help kids grow and fight infections)
- transition of care assistance for our teenage patients moving to adult CF care programs
Why Choose Us
At Nemours, our CF programs are nationally accredited by the Cystic Fibrosis Foundation . We participate in the foundation’s registry and transparency programs, which share outcome data and information for managing CF with families. Our research centers also provide access to CF clinical trials. In 2017, Nemours was recognized with the CF Foundation’s Outstanding Partnership Award at the annual North American CF scientific conference. And many of our physicians are named Best Doctors in America® , year after year. We work together to help children living with cystic fibrosis get the care they need to live longer, healthier lives.
Regional Cystic Fibrosis Highlights
Services, programs and care teams differ at each location. Call for details.
We offer complete cystic fibrosis care at Nemours Children’s Hospital, Delaware (Wilmington, Del.).
- Delaware’s only pediatric CF Care Center nationally accredited by the Cystic Fibrosis Foundation
- CF Family Advisory Council (works with our CF care team to promote family-centered care)
- Ronald McDonald House of Delaware (across the street from the hospital grounds) for a safe, affordable home away from home during long hospital stays
We complete cystic fibrosis care at Nemours Children’s Hospital and Nemours Children’s Health, Downtown Orlando.
- CF Care Center nationally accredited by the Cystic Fibrosis Foundation
- awarded the Cystic Fibrosis Foundation Fundamentals Learning and Leadership Collaborative grant in 2016 to improve care processes and clinical outcomes
- part of the Cystic Fibrosis Therapeutic Development Research Network
- aerosol laboratory (nationally recognized for helping determine the right amount and size of particles needed for medicines to be absorbed in kids’ lungs)
- Ronald McDonald House at Nemours Children’s Hospital for a safe, affordable home away from home during long hospital stays
We complete cystic fibrosis care at Nemours Children's Health, Jacksonville (working with Wolfson Children’s Hospital).
- the first nationally accredited CF Care Center in Northeast Florida
- Cystic Fibrosis Clinical and Research Center (nationally accredited by the Cystic Fibrosis Foundation and part of the Cystic Fibrosis Therapeutic Development Research Network)
- full pulmonary function testing
- Ronald McDonald House of Jacksonville (located just across the street) for a safe, affordable home away from home during long hospital stays
We complete cystic fibrosis care at Nemours Children’s Specialty Care, Pensacola.
- nationally accredited CF Care Center — Northwest Florida’s only pediatric program nationally accredited by the Cystic Fibrosis Foundation
- Ronald McDonald House of Northwest Florida (located near Nemours Children’s Specialty Care, Pensacola) for a safe, affordable home away from home during long hospital stays
Patient Stories
Sometimes the best support and peace of mind comes from families who’ve been there. Meet some of the inspiring kids we’ve been honored to treat.
Research & Clinical Trials
At Nemours, we’re actively researching new approaches for childhood disease prevention, diagnosis and treatment.
KidsHealth Library
Learn more about your child’s medical condition from the experts at Nemours’ KidsHealth.
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