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Heterotaxy syndrome is a rare, congenital (present at birth) condition, where a baby’s developing body has a problem determining the left and right sides. Heterotaxy translates to “different arrangement.” This causes problems where the baby’s liver may go across both sides of the abdomen and the spleen may be missing altogether. It also means the structure of the heart, lungs and blood vessels can be in the wrong place. Since heterotaxy syndrome happens while a baby is growing in the womb, it’s often diagnosed during prenatal tests.

At Nemours Children's, we offer leading-edge capabilities to detect problems early, including babies still in the womb. If your baby is diagnosed with heterotaxy syndrome, you can trust the pediatric heart care in our Nemours Cardiac Center. Our board-certified, fellowship-trained pediatric cardiologists are here to answer your questions, address your concerns and offer treatment options.

Why Choose Us

World-class heart care requires the compassion to understand your family's journey, and the expertise to heal even the most complex conditions. Our cardiac surgeons treat a vast array of heart defects in infants, children and teens, using the most innovative, up-to-date approaches. Our specialty is the early detection and repair of heart problems. Our heart care specialists have been recognized for their commitment to delivering top-notch, compassionate care to children with congenital heart disease. We work closely with your family to help your child live their life to the fullest.

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