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Helping Your Child Move & Play

Young girl with plastic exoskeleton we developed to help her with arthrogryposis.

Children born with arthrogryposis (also called "arthrogryposis multiplex congenita") have stiff joints that don't move well. This rare condition affects children in different ways. In some cases, it only impacts a few joints and doesn’t have much effect on kids’ movement. More severe forms can fuse together joints, including in the jaws and back. In either case, at Nemours we have the same goal: To help kids move as independently as possible. We’re here to help your child get around, play and just be a kid.

Services We Offer

Services We Offer

We offer a variety of arthrogryposis services, which may vary depending on the condition or location, including:

  • aquatic (water) therapy (to help strengthen muscles and build flexibility in a pool’s more supportive environment)
  • devices and technologies including the Wilmington Robotic EXoskeleton (WREX) (to provide support, improve movement, and encourage muscle growth)
  • genetic consultation (to look for cases of arthrogryposis caused by errors in the genes passed from parents to child)
  • neurology (to provide ongoing care)
  • occupational therapy (to help build your child’s independence, so they can play, walk and do other everyday activities)
  • orthopedic surgery if needed (to improve the range of motion of the bones and muscles around a joint)
  • orthotics (inserts, splints or braces to help your child’s movement)
  • pain management (medications and/or complementary treatments like massage to help with pain)
  • physical therapy evaluation (to build flexibility and strength in the affected joints)
  • radiology (imaging) services (to take pictures of the affected joints to develop a treatment plan)
  • rehabilitation services (to help kids move better)
  • support services such as animal-assisted activities, Child Life specialists, expressive arts, social workers
Why Choose Us

Why Choose Us

Although arthrogryposis is a rare condition, it’s not rare for us. At Nemours, we’ve assembled teams of doctors, nurses, social workers and more to meet the specific needs of kids with arthrogryposis.

Regional Arthrogryposis Highlights

Services, programs and care teams differ at each location. Call for details.

US News & World Report Best Children's Hospital for Orthopedics 2018-19

We offer specialized programs to treat arthrogryposis at Nemours Children’s Hospital, Delaware (Wilmington, Del.) and select satellite Nemours Children's Health locations.

We offer arthrogryposis care at Nemours Children’s Hospital (Orlando) and select Nemours Children’s Specialty Care satellite locations.

We offer arthrogryposis care at Nemours Children's Health, Jacksonville (working with Wolfson Children’s Hospital) and select satellite locations.

We offer arthrogryposis care at Nemours Children’s Specialty Care, Pensacola and select satellite locations.

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Research & Clinical Trials

At Nemours, we’re actively researching new approaches for childhood disease prevention, diagnosis and treatment.

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KidsHealth Library

Learn more about your child’s medical condition from the experts at Nemours’ KidsHealth.