Hemophilia is a rare disease that prevents blood from clotting properly. This means after a cut or injury, a child bleeds too much. Hemophilia is a congenital condition, which means a child is born with it. In our Nemours Center for Cancer and Blood Disorders, our renowned hematologists (blood disorder specialists) diagnose and treat hemophilia. Although there’s no cure, with treatment and follow-up care, your child can lead a happy, active lifestyle.
Nationally Recognized Care for Hemophilia
Services We Offer for Hemophilia
In our Nemours Center for Cancer and Blood Disorders, we treat all types of hemophilia (hemophilia A, hemophilia B, and von Willebrand disease or “vWD”). We offer a variety of diagnostic and treatment services, which may vary depending on your location, including:
- clotting factors are added through the veins to help control bleeding
- genetic counseling to help with diagnosis and family planning since hemophilia is usually inherited (passed from parent to child)
- liver transplants in rare cases may be needed
- neurology for headaches or seizures
- nutrition plans from registered dietitians
- orthopedic experts monitor your child’s bones, joints and muscles
- pain management to help with chronic pain or headaches
- palliative care to manage hemophilia symptoms or injuries
- physical medicine and rehabilitation helps your child get stronger using physical and occupational therapy
- psychology and psychiatry to learn coping skills for living with hemophilia
- transition of care when it’s time for adult care and services
Why Choose Us for Hemophilia Care
Our Nemours Center for Cancer and Blood Disorders (or “NCCBD”) offers renowned hematology (blood disorder) care to families managing hemophilia — from the mildest to the most severe and rare types. Our medical teams take the time to listen to your concerns, and work closely with other specialists to address your child’s needs. As a member of the Children’s Oncology Group , we’re also involved in pediatric hematology and oncology research, and have opportunities for clinical trials. We also offer:
- home management guidance to help your child and family be safe with over-the-counter medicines, sports participation, dental work and more
- school outreach and advocacy including help with community resources
Regional Hemophilia Highlights
Services, programs, facilities and care teams differ at each location. Call for details.
We offer care for kids with hemophilia at Nemours/Alfred I. duPont Hospital for Children (Wilmington, Del.) and outpatient appointments at select Nemours duPont Pediatrics locations.
In rare cases, kids with hemophilia need a liver transplant. Nemours/Alfred I. duPont Hospital for Children is ranked among the best children’s hospitals in the country for gastroenterology (GI) and GI surgery by U.S. News & World Report. Our program is approved by the United Network for Organ Sharing (UNOS) , working in partnership with the Gift of Life Donor Program .
We offer complete care for kids with hemophilia at Nemours Children’s Specialty Care, Jacksonville working with our affiliate, Wolfson Children’s Hospital, and collaborating with University of Florida College of Medicine-Jacksonville, UF Health/Shands Hospital and Mayo Clinic Florida. Outpatient and follow-up appointments are available at select Nemours Children’s Specialty Care locations.
Our team located at Nemours Children’s Specialty Care, Jacksonville is part of the federal hemophilia treatment center (HTC) network recognized by the Centers for Disease Control and Prevention.