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Neurofibromatosis (NF) is a genetic condition (can be passed from parent to child) that causes tumors to grow on nerve cells. This leads to problems in the skin, bones, eyes and brain which can affect a child’s abilities and appearance. Although these tumors are usually benign (not cancer), treating them requires an expert team since they can develop in many ways, over a long period of time. Our specialists work together to address each issue as your child grows. 

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Why Choose Us

At Nemours Children's , we have the experience and the expertise to care for children with complex conditions like NF. Our medical teams will take the time to listen to your concerns and give your child personal, thorough, medical and surgical care.

Our neurologists have been recognized for advancements in treating children at our hospitals, as well as through our research. If your child needs surgery, our highly skilled neurosurgeons are experienced in performing endoscopic (minimally invasive) surgery for smaller incisions and faster healing. For kids whose tumors become malignant (cancer), our internationally recognized Nemours Center for Cancer and Blood Disorders offers state-of-the-art therapies. 

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We have many pediatric specialists and locations — find the care closest to you:

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