Neurocutaneous syndromes are rare neurologic disorders that affect the central nervous system due to tumors (cancer or non-cancer) that develop in the brain, spinal cord, organs, bones and skin. Although children are born with these syndromes, they may not be diagnosed until tumors can be seen on the skin or they cause problems with a child’s function. The oncologists (cancer doctors) in our Nemours Children's Center for Cancer and Blood Disorders work closely with Nemours experts in neurology and orthopedics to find the cause of your child’s symptoms. Since tumors grow and change as your child develops, our experts monitor and address each issue. Although there’s no cure, our specially trained care teams are here to help your child and family as you learn to manage this lifelong condition.
Our Nemours Center for Cancer and Blood Disorders (or “NCCBD”) offers children renowned oncology (cancer) and neurology (brain and spinal cord) care that includes extensive experience in the these rare conditions. And since neurocutaneous syndromes can develop in many different ways as your child grows, we coordinate our care to provide a personal treatment plan for your child — not a standard, one-size approach. We also offer:
We have many pediatric specialists and locations — find the care closest to you:Find a Doctor Find a Location
Nemours has a number of service regions. Selecting your region will help us show you the right contact information and the most relevant content for you.