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Nemours/Alfred I. DuPont Hospital for Children

1600 Rockland Road
Wilmington, DE 19803
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+1 (302) 651-4993

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(800) 829-KIDS

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Patient Stories

Nemours Orthopedic Center at Nemours/Alfred I. duPont Hospital for Children

1600 Rockland Road, Wilmington, DE 19803 | Get Map & Directions »

Stories From Families Who've Been There

Sometimes the best support and peace of mind comes from fellow families who’ve been there. Check out these uplifting stories about our inspiring pediatric orthopedic patients at the Nemours/Alfred I. duPont Hospital for Children’s Orthopedic Center.

Share these with your child and your whole family to help them understand what to expect — and to know they’re not alone.

Patient Stories & Videos by Condition


Video Story

Girl with arthrogryposis and robotic arm opens play refrigerator
Arthrogryposis Multiplex Congenita: Emma

See how a life-changing 3-D printed device called the “Wilmington Robotic Exoskeleton” (WREX) gave sweet little Emma her amazing “magic arms.”

Cerebral Palsy

Video Stories

Cerebral Palsy: Ira  Ira has cerebral palsy, but it doesn't interfere with his love of sports or his dream of being a broadcaster.
Cerebral Palsy: Ira

Ira has cerebral palsy, but it does not interfere with his love of sports or his dream of being a broadcaster.

Cerebral Palsy: Shannon

Shannon's wheelchair and communication device give her the freedom to explore and a voice to be heard.

Cerebral Palsy: Parents Talk

Get advice from parents raising kids with CP. Learn what works, what doesn't and what helped these families the most.

Feature Story

  • Cerebral Palsy: Melissa
    Cerebral Palsy: Melissa

    Melissa is a former patient of Dr. Freeman Miller at Nemours/Alfred I. duPont Hospital for Children. When her parents found out she had cerebral palsy, they had no idea if she would develop normally.

Neuromuscular Disorders

Feature Stories

  • Duchenne Muscular Dystrophy: Liam
    Duchenne Muscular Dystrophy: Liam

    Liam, who has Duchenne muscular dystrophy, is treated by the neuromuscular disorder experts at Nemours/Alfred I. duPont Hospital for Children.

  • Neuromuscular Research: Matthew
    Neuromuscular Research: Matthew

    Diagnosed at 15 months old with spinal muscular atrophy (SMA), Matthew and his mom agreed to try out the Wilmington Robotic Exoskeleton (WREX) to see if it would improve his movement.

Orthopedic Trauma (Fractures/Broken Bones)

Feature Story

  • Orthopedics: Joey
    Orthopedics: Joey

    Two-year-old Joey was running around with the family dog when his mother Lynn saw his leg twist under him. Her little boy fell to the floor and screamed.

Scoliosis & Spinal Deformities

Video Stories

Scoliosis: Teens Talk

See how this inspiring group of adolescents didn’t let their spine curvatures keep them from doing the things they love.

Scoliosis: A Patient's School Project About Her Journey

Rachel, a lifelong dancer who had spine surgery to correct her scoliosis, shares her experience (and that of her friends' with scoliosis) in this video she created for a school project.

Feature Stories

  • Kyphoscoliosis: Gavin
    Kyphoscoliosis: Gavin

    To see Gavin now, riding his bike, playing sports and beginning first grade, you’d never know what he's been through in his 6 years of life.

  • Scheuermann's Kyphosis: Bill
    Scheuermann's Kyphosis: Bill

    Bill always knew he had had poor posture because, for the past 14 years, his mom often reminded him to “sit up straight.”

  • Scoliosis: AJ
    Scoliosis: AJ

    “Do what you have to do to get to where you want to be.” This is the thought that fueled AJ as he recovered from spine surgery.

  • Scoliosis: Anna
    Scoliosis: Anna

    Having had spine surgery just 4 weeks earlier, Anna never thought she would be going to her senior prom and, most definitely, not in a backless dress. But she did.

  • Scoliosis: James
    Scoliosis: James

    To look at James today, an active teenager and competitive swimmer, you would never know that he spent more than 8 years of his life battling scoliosis. And he won.

  • Scoliosis: Kelly
    Scoliosis: Kelly

    Kelly was suddenly catapulted from an innocent, routine “school check” to a condition for which surgery was the only realistic option.

  • Scoliosis: Sammy
    Scoliosis: Sammy

    Sammy was diagnosed with a dramatic 104-degree curve in her thoracic spine, resulting from congenital scoliosis. The only way to resolve a curve this severe was through surgery.

  • Scoliosis: Tara
    Scoliosis: Tara

    When Tara was 10, her family chiropractor sensed something wasn’t right and ordered a spinal X-ray, which revealed a slight S-curve.

  • Spondylolisthesis: Carley
    Spondylolisthesis: Carley

    For nearly a year, there were signs that something was wrong. First, it was the pain in her legs and a loss of flexibility. Then her gait (how she walked) changed.

Skeletal Dysplasia (Dwarfism)

Video Story

Video about young adult woman with dwarfism
Diastrophic Dysplasia: Emily

See how Emily, who has diastrophic dysplasia (a form of dwarfism), leads a big life, regardless of being a little person.

Feature Story

  • Skeletal Dysplasia: Mackenzie
    Skeletal Dysplasia: Mackenzie

    Mackenzie competes in horse shows, goes swimming and loves to read. Even though Mackenzie has a form of dwarfism, almost nothing slows down this friendly, energetic young teen.

Sports Medicine

Video Stories

ACL Injury: Dejuan

See how stretching and rest aided Dejuan’s recovery after a devastating high school football injury.

ACL Injury: Kameron

See how this lifelong athlete — from ballerina to field hockey player, cheerleader to soccer player — became even stronger after an ACL injury.

Concussion: Jack

See how Jack recovered from a scary concussion he sustained during a rugby game.

Overuse Pain: Shannon

See how Shannon, a competitive hockey and lacrosse player, found help after dealing with ongoing hip pain.

Feature Stories

  • Anterior Cruciate Ligament (ACL) Tear: Mia
    Anterior Cruciate Ligament (ACL) Tear: Mia

    Mia played competitive basketball for her high school and local travel teams. During one game, an opposing player fell on the outside of her right knee.

  • Back Fracture: Vinnie
    Back Fracture: Vinnie

    In the winter of seventh grade, Vinnie was diagnosed with a bilateral fracture in his lower back. Like many athletes, he admitted that he “played through the pain.”

  • Back Injury: Tony
    Back Injury: Tony

    Tony started figure skating when he was just 5 years old. Now at 14, his dream was to win nationals. But would he be able to perform at his best with a prolonged back injury?

  • Spinal Stress Fracture: Leighanne
    Spinal Stress Fracture: Leighanne

    Leighanne first knew something was wrong when her pain progressively got worse during gymnastics training. She began with simple home treatment of ice and rest, but that didn’t ease the pain.

  • Wrist Pain: Alyce-Faye
    Wrist Pain: Alyce-Faye

    Alyce-Faye was experiencing wrist pain. And it was getting worse — a real concern for anyone, but even more so for an athlete working towards the Olympics.

Asian girl with pediatric orthopedic problem plays soccer

Learn more about all of the conditions we treat, the programs and services we offer, and our renowned doctors and care teams at the Nemours Orthopedic Center.
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