Sickle Cell Disease

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Sickle Cell Disease

Recognized Excellence With Supportive Services

Sickle cell disease is a condition that causes problems with red blood cells — instead of round discs, they look like crescent moons or sickles. It’s a genetic condition (can be passed from parent to child) so we often see new or expecting parents. Some sickle cell treatments can begin early — even while your baby is still in the womb. Our hematology experts and care teams in the Nemours Center for Cancer and Blood Disorders work together to address the needs of your child and family as you learn to manage sickle cell. We give your child a medical home for preventive care, and coordinate the specialists you need each step of the way. 

Learn More About Sickle Cell Disease 

Services We Offer for Sickle Cell Disease

Sickle cell treatment depends on your child’s age, sickle cell type and symptoms. We offer a variety of diagnostic and medical services, which vary depending on your location, including:

Why Choose Us for Sickle Cell Disease Care

Our internationally recognized Nemours Center for Cancer and Blood Disorders (or “NCCBD”) offers children hematology care for sickle cell disease with a focus on improving outcomes and providing state-of-the-art therapies. To help give kids the best possible care, we also offer: 

  • blood and bone marrow transplant programs accredited by the Foundation for Accreditation of Cellular Therapies (FACT)
  • customized treatment plans based on research and commonly accepted best care practices in pediatrics
  • world-class facilities featuring the most advanced diagnostic techniques and equipment in a family-friendly setting
  • school outreach and advocacy including help with community resources
  • CyberCell: A Sickle Cell Virtual Reality Experience. Our team in Delaware Valley is working on an experience for patients that helps them travel inside of your own body. This allows patients and families to see how sickle cell affects your body and how our team is taking efforts to improve your patient experience. Learn More

COBRE Grant 

Our sickle cell program is committed to changing the lives of patients through the use of research, education, and creating access opportunities for all. The program has been awarded a five-year grant extension to deliver on those commitments by The Center for Biomedical Research Excellence (COBRE) of the National Institute of Health. This extension allows our Delaware Comprehensive Sickle Cell Research Program at Nemours Children’s Hospital, Delaware to continue the incredible research work we've been doing through this grant over the previous 5 years.

Regional Sickle Cell Disease Highlights

Services, programs, facilities and care teams differ at each location. Call for details.

We offer complete care for kids with sickle cell disease at Nemours Children’s Hospital, Delaware (Wilmington, Del.) and outpatient appointments at select Nemours Children's Health locations.    

Our Nemours Partners for Perinatal Management can help parents-to-be plan ahead, prepare and determine next steps for their baby’s possible fetal diagnosis, including sickle cell disease.

We offer complete care for kids with sickle cell disease at Nemours Children’s Hospital (Orlando) and outpatient appointments at select Nemours Children’s Specialty Care locations. 

Our Nemours Center for Fetal Care is available at multiple locations throughout Central Florida to coordinate fetal tests, imaging and consults to help expecting mothers make the best decisions on many different health conditions, including sickle cell disease. 

We offer complete care for kids with sickle cell disease at Nemours Children's Health, Jacksonville working with our affiliate, Wolfson Children’s Hospital. Outpatient and follow-up appointments are available at select Nemours Children’s Specialty Care locations. 

Research & Clinical Trials

At Nemours, we’re actively researching new approaches for childhood disease prevention, diagnosis and treatment.

KidsHealth Library

Learn more about your child’s medical condition from the experts at Nemours’ KidsHealth.